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Topic: Spiculated Mass

Forum: Waiting for Test Results —

For members not diagnosed with breast cancer, but waiting for test results:  Biopsy, mammogram, ultrasound, or other screening tests. Waiting is VERY difficult but remember...

"Worry does not empty tomorrow of its sorrow. It empties today of its strength." -- Corrie Ten Boom

Posted on: Jan 17, 2009 06:50PM

joanmac52 wrote:

I have just received the news fom my gynocologist that they have found a starburst shaped mass at 12:00 on my right breast 1/2 inch in size. I have made an appointment to see a surgeon as my Dr. said I need a biopsy asap. What should I expect now??? I am scared and from what I have read this does not look good. Any answers will help as I haven't talked to anyone yet about this. Thanks

Joan Dx 2/2/2009, IDC, 1cm, Stage I, Grade 3, ER-/PR-, HER2-
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Jan 17, 2009 07:17PM anianiau wrote:

This is scarey territory. Take deep breath, joanmac52, then do the follow up your MD has set up.

What should lyou expect? My guess is that you will have a lot of decision making to do, as soon as you know what you are dealing with. Sounds as though you have a single mass, so an excisional biopsy would give you a definitive answer to the question, Is this cancer? Other biopsy methods can miss the target, so if you are given a choice, you may want to request the excisional biopsy.

When you go to the appointment that is being set up with your surgeon, TALK with him/her! You'll get his/her best effort on your behalf if you ask for the reasons behind the recommendations being made.

I suggest bringing along a significant other to the surgical consultation. That person could be your husband, friend, sister, whoever you know will be level-headed enough to handle the job of listening, taking notes, and asking questions you may not have thought to ask. Yes, you should make the decisions, but that doesn't mean you can't have help.

Of course you are scared! You can ask you MD for anti-anxiety meds if you think that would help.

Whatever you decide, know that you have come to a very good place for support and information. Women who have traveled your path--whatever it may be--know the inside scoop on how to handle day to day issues. (I think the registration shows about 44,000 women and some men, as well, are registered users.) The research threads are good places to search for expert information from the MDs and clinicians.

You can go to the chat rooms as well as the discussion boards, for real-time contact with other users. I wish you the best of outcomes. Please let people know how you fare. 

Hugs & aloha.

Dx 10/20/2008, DCIS, 1cm, Stage 0, Grade 3, 0/8 nodes, ER-/PR-, HER2+
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Jan 17, 2009 07:57PM jast wrote:

Hi joanmac52,

Sorry to hear you are going through this--this board is a great place to get support.  

I found out right before Christmas that I had a spiculated mass with a Birads 5 rating.  My surgeon suggested a needle biopsy, which I had and it came back as a benign fibroadenoma. However, my surgeon is not comfortable with the result because fibroadenomas are not spiculated--so I am now going to have an excisional biopsy.

As anianiau wrote, an excisional biopsy would give you a definitive result. I did take my husband with me, which I found helpful.  I was quite nervous and forgot about half of what the doctor said, so my husband was able to fill in the blanks.  The waiting is difficult--I have found it helpful to stay busy with projects around the house.

Best wishes for a B9 outcome!

Hugs, 

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Jan 17, 2009 10:13PM Lories wrote:

Hi joanmac - first I am sorry you had to join the club, I was just diagnosed a month ago today, right before Christmas, so am fresh in the mix.  Luckily, for me, because I am so impatient, I was able to be diagnosed quickly and had the surgery a few weeks later.

The first procedure will be a biopsy, so do encourage your doc to set one up soon.  That is the worst part, waiting for the biopsy, then waiting for results, then waiting for the next step.

There are a number of different techniques for doing a biopsy, one, if you can feel the lump, the doc can take a sample with a needle.  If not they will either locate it on a sonogram or with a mammogram or with an MRI to locate the mass and then take a sample.  Once you know what kind of biopsy you are having, there are a lot of different threads on this forum that can explain the technique. 

It could be a day or two later that you get pathology results, then your doc can offer different choices and can recommend what comes next.  When it comes to surgery, if it is indeed cancer, then chose what you feel is the best way to go.  Most treatment options have similar outcomes and your doc can help with his thoughts as well.  Much depends on the type of cancer and the location and the size and the size of your breasts as well.

This is not a fun time for you, but this site is an excellent place to find answers and ask questions. 

I hope things turn out well - there are many, many caring people here who are a fabulous resource, and we are with you!  Keep us posted.  Lori

Dx 12/19/2008, IDC, <1cm, Stage I, Grade 2, 0/10 nodes, ER+/PR+, HER2- Surgery 1/5/2009 Lumpectomy: Right Radiation Therapy 2/1/2009 Breast Hormonal Therapy 3/1/2009 Femara (letrozole) Hormonal Therapy 10/15/2011
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Jan 18, 2009 12:23AM revkat wrote:

A spiculated mass flips the odds that the lump will be cancerous from the 80% benign -- 20 % cancer to 80% cancer -- 20% benign. But that still is a significant chunk of them that turn out benign.

Lori gave a good overview of what happens now. Best of luck to you and hope for a good outcome.

Dx 1/28/2008, IDC, 2cm, Stage II, Grade 2, 1/20 nodes, ER+, HER2-
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Jan 18, 2009 10:15AM auntpeggy wrote:

Hi!  Thats what I have.  A 3 cm spiculated mass.  I found a lump that felt like the size of a pea.  They told me I was feeling one tip of a star shaped mass.  It didn't show up on mammogram either.  Only thing that showed up was microcalcifications.  Imagine a 3cm tumor not showing up!  That in itself is scary.  Had sterotactic biopsy under mammogram and ultrasound.  Both positive for breast cancer.  Invasive Ductal.  Next step is surgery.  Bilateral mastectomy. 

Peg 

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Jan 18, 2009 10:38AM auntpeggy wrote:

Sorry, I guess I should have posted in the Newly Diagnosed section.  So glad I found this site.

Peg

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Jan 18, 2009 01:05PM joanmac52 wrote:

Thanks to all of you who have replied. Who did you get to do the biopsy, local surgeon ????? what kind of surgeon????... and should I insist on an MRI of both breast before the biopsy??? I don't know where to start or who to see I am so confused!!!!!!!!!!

Joan Dx 2/2/2009, IDC, 1cm, Stage I, Grade 3, ER-/PR-, HER2-
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Jan 18, 2009 01:57PM - edited Jan 18, 2009 01:59PM by leaf

Hi Joan!  At my place, my routine mammogram was ordered by my OB/GYN.  It was suspicious.  The radiologist recommended a biopsy, but it had to be ordered by a clinician.  My OB/GYN ordered the biopsy.  When I got the results, I was referred to a breast surgeon, who did the excisional biopsy. 

Some people get a breast surgeon involved earlier than this. Then the breast surgeon recommends a biopsy.  At my place, the radiologist can't order a biopsy.  I suspect they want several docs involved in case of law suits.

Whether or not you have an MRI may depend on your situation.  MRIs are not as invasive as a biopsy, but they are costly, and some insurance companies will not cover them.  So sometimes in the process of getting diagnosed, some people have MRIs and some don't.

Classic LCIS.If knowledge can create problems, it is not through ignorance that we can solve them- Isaac Asimov Dx 12/8/2005, LCIS, ER+/PR- Surgery 1/24/2006 Lumpectomy: Left Hormonal Therapy 7/15/2006 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 18, 2009 02:59PM Lories wrote:

Hi Joan - leaf is right.  Since your gyn got you started they can order up the biopsy.

The other thing they can do is to recommend a BS or surgeon who is familiar with breast cancer surgery and treatment.  In my town there are only 2 BS so the surgeon I had recommended by my OBgyn years ago (when I had a small cyst) had done a lot of breast surgeries. He is also one of the main supporters of BC fundraising in town and I routinely send all my mammograms and test results to him.

His nurses were right on the stick and ordered my biopsy immediately.

He called me on the phone with the diagnosis and when I saw him a few days later to discuss it all, he ordered up an MRI.  He wanted to be sure the cancer had not spread anywhere which can show up on MRI.  His staff got me in the very next day (Christmas Eve) which was incredible.

So, get that biopsy scheduled asap and also get some recommendations on a surgeon, and have your obgyn get you in for an appointment - these docs have the power to move us up in lines and get us seen soon.   Or if you know someone who knows someone get help to weasal in (remember I said I was impatient :))

My obgyn was very good and called me as well to ensure I was good with a surgeon as well when he realized I needed a biopsy.  I am so lucky to have good people, and there are a lot of them out there.

Your signature does not say where you live, but you may get some advice from this forum. If you lived in Anchorage I could help.  Thinking of you.  Lori

Dx 12/19/2008, IDC, <1cm, Stage I, Grade 2, 0/10 nodes, ER+/PR+, HER2- Surgery 1/5/2009 Lumpectomy: Right Radiation Therapy 2/1/2009 Breast Hormonal Therapy 3/1/2009 Femara (letrozole) Hormonal Therapy 10/15/2011
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Jan 19, 2009 09:35AM jast wrote:

The radiologist called my OB/GYN (who ordered the initial mammogram/ultrasound) with the results and my OB/GYN ordered the biopsy and referred me to a breast surgeon at a breast center.  The surgeon did the needle biopsy and will do the excisional biopsy at then end of the month.  My surgeon did not suggest and MRI and I did not know enough to inquire about one.  

This site has helped to educate me...I will ask about an MRI.  What I have learned so far is to ask a lot of questions about the process, all options available, why the surgeon wants to do things a certain way, etc.  Then do research--this is helping me to feel more comfortable with the course of action.   

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Jan 19, 2009 12:21PM joanmac52 wrote:

Thanks a bunch, I Don't even know what kind of surgeon my Ob-Gyn is sending me to. I feel stupid I left it in his hands I told him to refer me to someone good,that's where we left it. His office set this appointment up for me. I meet for consult on Wed morning , I know better now to ask questions I will have a list with me....Thanks for this site or I would not know where to start....I will ask for Xanax lol.

Joan Dx 2/2/2009, IDC, 1cm, Stage I, Grade 3, ER-/PR-, HER2-
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Jan 21, 2009 11:08AM jast wrote:

Hi joan,

Don't be hard on yourself-this is unchartered territory.  It is reasonable to get a referral from a physician that you trust and if you desire, you can always opt for a second opinion.  Hope the consult went well.

Penny 

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Feb 21, 2009 08:08AM - edited Feb 21, 2009 08:10AM by jan-marie

jast,

I am new here today but noticed your post about the biopsy of a spiculated mass that came back as fibroadenoma. Your doctor said that wasn't possible, but here's an article I found last night that said that it could be a fibromatosis, The name of the article is "Fibromatosis: The Breast Cancer Imitator" and it was published in Southern Medical Journal, 2004 Vol. 97, No. 11, pp 1100-1103. Of course your doctor would need to evaluate the atricle, but at least it proves that a spiculated mass could be a fibroadenoma and not a cancer.

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Feb 23, 2009 12:25PM shap wrote:

Hi...where I live the follow ups are either coordinated by the radiology dept at the hospital or with a surgeon that your OB/GYN refers you too. I highly recommend the surgeon route. They still work with the radiology dept at the hospital, but I had my excisional biopsy on Tuesday and the surgeon called personally with the results on Thursday (benign thankfully). A week after my benign results I got a letter from the hospital telling me that my mammogram showed suspicious calcifications and I should seek follow up procedures. I was really glad my OB/GYN and subsequent surgeon (who was just a general surgeon, but still great) were so pro-active on my behalf.

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Apr 30, 2017 01:24PM Nimmichstp wrote:

I am new to this group. My mammogram shows a new, irregular, speculated mass with architectural distortion in my right breast. I'm scheduled for a spot compression and ultrasound next Wednesday. My breast is not dense. Should I be concerned

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Apr 30, 2017 05:01PM Tpralph wrote:

nimmich, speculated is never a good word; however most breast masses are benign.  I think whenever we get a breast lump there is concern; howeve you are doing what you can and following up with your health care suggestions ie, u/s and spot compression , from there they will decide if it is concerning enough to get a biopsy. No point worry about what might be until you know. (terrible advice from me who worries all the time). IN the meantime, try to keep busy and I find distraction with friends/ family and chores helps.  I also like to bake!

Dx 3/10/2017, IDC, Right, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 4/10/2017, IDC, Right, <1cm, Grade 1, ER+/PR+, HER2- Surgery 5/18/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 6/28/2017 AC + T (Taxol)
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May 4, 2017 06:36PM Nimmichstp wrote:

thanks. I have a biopsy scheduled for tomorrow, ultrasound-guided. We shall see

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Jun 14, 2017 06:23AM Kaso wrote:

My compressed mamo/ultrasound was yesterday & my biopsy is today. I was told a spiculated mass, but no more was told. I set an apt. with a breast cancer specialist at Smilow in New Haven for 13 days from today since I was told hormone receptors are needed for a plan of action and these take 5-7 work days. I would find comfort in reading of different approaches in "attacking" this situation. I always teach with a "backward approach"- my visions are set first and then I plan my approach. I'd like to deal with this situation in the same manner & again welcome hearing outcomes and approaches.

Dx 7/5/2017, IDC, Right, 1cm, Stage IA, Grade 1, 0/5 nodes, ER+/PR+, HER2-
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Jun 14, 2017 11:39AM MTwoman wrote:

Kaso, I'm a bit confused by your post, but let me try to answer as best I can. It seems that even before a biopsy, you've assumed you have bc and scheduled a consulting appointment with a bc specialist? Would that be a breast surgeon? I agree that the word "spiculated" is concerning, but not a guarantee that you have bc, so thinking about hormone receptor status seems a bit presumptive. But I'll try to roll with your assumptions, to answer your questions about plans of "attack".

There are lots of factors that go into determining treatment strategies and appropriate risk reduction interventions. First, there are the personal/family history factors such as family history of bc or genetic mutations (genetic testing is recommended in certain cases to determine this). Age at diagnosis is also a factor. The size of the tumor, histological grade , receptor status (ER/PR) and other markers (HER2 and/or KI67); whether any lymph nodes or other areas of the body are involved determine the stage. The standard arsenal of treatment options are: surgery (lx vs mx), chemo (neoadjuvant is before surgery and used in specific cases, adjuvant is after surgery), targeted therapy (like Herceptin, used for HER2+) and radiation (typically used in conjunction with lx, less with mx). Each of these are interventions used to reduce specific risks, so should be applied to a specific individual's risk profile and their personal risk tolerance as well as their preferences. For example, some women prefer lx over mx or vise versa. Some women opt for reconstruction after mx, others not. Some women want to throw everything possible at their bc, for maximum risk reduction, others think about their side effects and/or have comorbidities that increase the risk of certain interventions. I'm not sure I can really give you any more helpful information when you haven't even completed your biopsy yet - 70-80% of biopsies produce B9 results. Hoping you're in the majority!

Dx 12/10/2002, DCIS, Right, 1cm, Stage 0, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 12/19/2002 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/23/2003 Reconstruction (right): Nipple reconstruction Surgery Reconstruction (right): Saline implant Surgery Reconstruction (right): Tissue expander placement Surgery Mastectomy: Right
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Jun 15, 2017 11:20AM Kaso wrote:

You are wonderful to reply. My mass is an 8MM spiculated mass at 12:00 on my right breast. The radiologist said cancer or radial scar. Both will need to be removed. My mind is stubborn and as a "calmer" I need to know what is ahead. I know I have to await for results tomorrow- B9 or malignant. And I know I have to await hormone receptors next week to plan a course of drug treatment if malignant. Can you explain how you chose a lumpectomy? Can you share if you had a spiculated mass? Can you explain why the implant and nipple reconstruction followed, (assuming site of lumpectomy) and if this was can be done at the time of lumpectomy. What confuses me most in your personal surgery history is mastectomy. What made this your final surgery and not first?

I am 63. I am an identical twin and there is no history of BC known in my family. The apt.I set is at Smilow in New Haven (nearby my home town) and with N. Horowitz a breast cancer surgeon.

Dx 7/5/2017, IDC, Right, 1cm, Stage IA, Grade 1, 0/5 nodes, ER+/PR+, HER2-
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Jun 15, 2017 11:33AM lrwells50 wrote:

Kaso, I also had a speculated mass, which my radiologist (also a good friend) said was IDC, and I could have a lumpectomy, radiation, anti-hormone pills, and be finished with it. He was right on everything except the IDC, which after the surgery labs turned out to be ILC. I ended up deciding on a BMX, due to my age and family history. My OncotypeDX score was also higher than anticipated, so I'm doing chemo. You never know exactly what's going to happen, and I've just tried to roll with the punches.

OncotypeDx 24, I think because although I was 100% ER+, I was very weakly PR+ . BARD1 mutation, mother had breast cancer twice. Dx 12/5/2016, ILC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/7/2017 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/18/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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Jun 15, 2017 11:36AM MTwoman wrote:

So, my stats are a bit out of order (which certainly adds to your confusion, but I've never figured out how to 're-order' them). I did not have a spiculated mass. I found what felt like a tremendous lump (but, of course wasn't all that big) that looked on images like a sunburst. It was a complex cystic mass, which the radiologist was unconcerned by (there was a fluid filled component), but he was a protocol follower so he did give me a surgical consult. The breast surgeon immediately "didn't like it" and asked if he could aspirate some fluid right then; which I of course agreed to. We got back the cytology report in a couple of days (cytology is done on fluid and is less precise than pathology which is done on tissue) which indicated adenocarcinoma. At that point, we knew I had breast cancer, but no more than that. So he asked me what I wanted to do, a biopsy or an excision (lumpectomy). I just wanted to remove it, not knowing if it was fast growing and aggressive or not. So he scheduled a lumpectomy and sentinel node biopsy at the same time - in case it turned out to be invasive and we needed to see if I had nodal involvement (to limit my surgeries, if possible). I got very good news with my pathology report - DCIS (and of course, no node involvement). I had my initial consult with the RO (radiation oncologist) and planned my rads treatment. I also sent for a second opinion on my pathology to an expert on DCIS, as my small local hospital might have missed something. The day before I was scheduled to go in for my rads mapping and tattoo, I got back the second opinion path report indicating I should get an mri as the architecture of my dcis tends to present itself as multi-focal disease. (MRIs are very commonly used now, but this was 14 years ago) I had the mri, which did in fact, find 2 more areas that were biopsied and proven to be DCIS, in a different quadrant of my right breast. At that point, the recommendation was for mx, as doing multiple lumpectomies in various quadrants does not result in a "good cosmetic outcome" and I was only 38, so they wanted to be sure and remove all of the DCIS. After the mx, I had several reconstruction surgeries (instead of just a couple, because I got a pretty good hematoma after my lx), TE placement, exchange surgery and then nipple reconstruction. I think that answers your questions. Please do ask if you have any others. ((hugs))

Dx 12/10/2002, DCIS, Right, 1cm, Stage 0, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 12/19/2002 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/23/2003 Reconstruction (right): Nipple reconstruction Surgery Reconstruction (right): Saline implant Surgery Reconstruction (right): Tissue expander placement Surgery Mastectomy: Right
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Jun 15, 2017 08:18PM Kaso wrote:

Thanks for responding. Irwells. Do you still feel as though you are "rolling with the punches"? Do you ever feel that you are in a 'better place'?

And, how do you and MTwoman get your strength and positive energy?

Dx 7/5/2017, IDC, Right, 1cm, Stage IA, Grade 1, 0/5 nodes, ER+/PR+, HER2-
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Jun 16, 2017 10:06AM Kaso wrote:

This week will forever be embedded in my mind- a repeat mammo with my first breast ultrsound, followed by a biopsy, markers and another mammo. Viewing of a 8mm spiculated mass at 12:00 and entry into the journey of cancer. Without a plan, which is the "control" I strive for, I am finding tremendous solace in this site and the amazing ladies who have reached out to me and truly touched my heart. I will find strength to pervail thanks to you!


Dx 7/5/2017, IDC, Right, 1cm, Stage IA, Grade 1, 0/5 nodes, ER+/PR+, HER2-
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Jun 16, 2017 10:23AM MTwoman wrote:

kaso, when will you hear back from pathology?

Dx 12/10/2002, DCIS, Right, 1cm, Stage 0, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 12/19/2002 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/23/2003 Reconstruction (right): Nipple reconstruction Surgery Reconstruction (right): Saline implant Surgery Reconstruction (right): Tissue expander placement Surgery Mastectomy: Right
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Jun 16, 2017 10:53AM Tpralph wrote:

i am assuming by that last post she just did find out the results. Hugs to you

Dx 3/10/2017, IDC, Right, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 4/10/2017, IDC, Right, <1cm, Grade 1, ER+/PR+, HER2- Surgery 5/18/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 6/28/2017 AC + T (Taxol)
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Jun 16, 2017 11:04AM MTwoman wrote:

oh goodness, perhaps so.

kaso, I am so sorry you've had to join our club. What can we do for you? ((hugs))

Dx 12/10/2002, DCIS, Right, 1cm, Stage 0, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 12/19/2002 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/23/2003 Reconstruction (right): Nipple reconstruction Surgery Reconstruction (right): Saline implant Surgery Reconstruction (right): Tissue expander placement Surgery Mastectomy: Right
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Jun 16, 2017 01:23PM Kaso wrote:

Just received word that a lumpectomy is in order. So far the biopsy report from the spiculated mass show "atypical ductal hyperplasia". My appointment with a breast surgeon is June 26th. My receptors are not in yet so any drug regimine is not known at this time. Also I am told that the mass and surrounding area will be biopsied after the lumpectomy. Continue hugs and good thoughts, and information/experiences as well.



Dx 7/5/2017, IDC, Right, 1cm, Stage IA, Grade 1, 0/5 nodes, ER+/PR+, HER2-
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Jun 16, 2017 03:48PM MTwoman wrote:

kaso, ADH is certainly concerning as it raises your risk for bc, but it isn't considered cancer (or even pre-cancer). See this info:

https://www.cancer.org/treatment/understanding-your-diagnosis/tests/understanding-your-pathology-report/breast-pathology/atypical-hyperplasia.html

They don't typically do receptor testing on ADH as they don't seem to be predictive of who's ADH will progress and who's won't. http://meetinglibrary.asco.org/record/99316/abstract

" If ADH is found on needle biopsy, more tissue in that area usually needs to be removed via excisional biopsy to be sure that nothing more serious is also present in the breast. The tissue that is removed is looked at under the microscope, and if nothing more serious is found, no other treatment is needed. The patient is then followed up with breast exams and breast imaging tests like mammography." (cancer.org)

You might find reading through threads on "benign breast conditions" OR "high risk for bc" helpful, to see other's experiences with ADH to inform your list of questions for the surgeon. Good luck!

Dx 12/10/2002, DCIS, Right, 1cm, Stage 0, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 12/19/2002 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/23/2003 Reconstruction (right): Nipple reconstruction Surgery Reconstruction (right): Saline implant Surgery Reconstruction (right): Tissue expander placement Surgery Mastectomy: Right
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Jul 10, 2017 10:42AM Kaso wrote:

MTwoman & evry other community friend...

I reread my posts and see utter confusion. I guess that, confusion, is par for the initial journey through a breast cancer diagnosis. As you now know my initial pathology report following my biopsy was misread at a local hospital. That is where my initial benign diagnosis ("it's not cancer") and ADH was termed and I was told myoepothelial cells were present. It was at the breast cancer surgeon meeting that the BS had Yale rerun the pathology and the diagnosis turned to invasive mammary carcinoma & complete absence of myoepithelial cells.

My lumpectomy and sentinal node biopsy was 5 days ago. I was told by the surgeon that she removed a wide area of margin and 3 tiny nodes. I was also told that there was not enough tissue for an oncotype. I really had hoped for the assurance of an oncotype to help guide decisions that are forthcoming. I will ask if perhaps tissue from the original biopsy can be used for this when I meet with the BS next week

I went for genetic counseling the day after my BS appointment. It was at the BS appointment that receptors were in fact ordered (due to the mis diagnosis they were never completed). I was tested following the genetic counseling meeting for BRCA 1 & 2, and a variety of other genome tests were ordered after the BRCA1 &2 were reported to be negative the day before surgery. My receptors to date came back as 100% Estrogen +, low progesterone +, and so far HER NEU was -. The fish score has not returned as yet.

Now it is time to heal a bit and brace myself for further surgery if either margins or nodes are positive for cancer. I have a meeting with the BS in a week to get results. I have a meeting with the radiologist in 2 weeks, and in 3 weeks with an oncologist. I am hoping these doctors will work as a team to take the best care of me.

Sherry

Dx 7/5/2017, IDC, Right, 1cm, Stage IA, Grade 1, 0/5 nodes, ER+/PR+, HER2-

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