Topic: Not Diagnosed and Waiting for Test Results? Start Here

Forum: Waiting for Test Results — We know, waiting is VERY difficult but we're here for you.

Posted on: Sep 1, 2011 12:46PM - edited Jun 18, 2022 02:02PM by moderators

Posted on: Sep 1, 2011 12:46PM - edited Jun 18, 2022 02:02PM by moderators

moderators wrote:

Often, the hardest part of screening and testing isn't undergoing the tests themselves, but WAITING for results to come back. If you're like most people, you will want your test results as soon as possible.

Read here for steps you can take to feel more in control of the process:

In addition, there is a thread on Abbreviations to help you follow discussions going on in the community.

And If you've been diagnosed with breast cancer and are waiting for test results about your diagnosis, connect with others in the Breastcancer.org Discussion Board forum Diagnosed and Waiting for Test Results.

We hope this helps!

--The Mods

To send a PM to the Mods: community.breastcancer.org/my/...
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Mar 17, 2023 10:43AM maggie15 wrote:

Februarystar27, I'm sorry that you have to go through the stress of a biopsy and waiting for pathology but that is the only way to know what is going on. Condolences on the loss of your mom. You are correct in assuming that the lump is probably benign. It's hard not to imagine the worst but try to distract yourself with other things. Hopefully you will be able to resume IVF treatment soon. This site is a good place to get your anxiety out because we understand. Best wishes for a benign result!

DX 2/15/2021, IDC, Right, 3 cm, stage 2A, ER+/PR+, HER2-
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Mar 17, 2023 11:03AM joce wrote:

Hi all,

I just had an excisional biopsy yesterday for an area in my right breast that showed "atypical ductal hyperplasia suspicious for DCIS" from the needle core biopsy. Since there wasn't enough tissue to decipher whether it is cancer or simply in the category of being a high-risk lesion, it needed to come out. Today is Friday and I have to wait until Monday or Tuesday to get the results. Any way the pathology sorts out, I was told that I would need to start Tamoxifen, the side effects of which sound kind of awful and I am very reactive to medications.

I'm not sure what I am asking here, but just putting my worry out into the universe. I am trying so hard not to let fear steal from me and focus on the gratitude of having access to care.

Thank you for reading and holding space for the uncertainty.

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Mar 17, 2023 11:39AM maggie15 wrote:

Hi joce, I'm sorry that you are having to endure the wait for pathology. If it turns out to be a high risk lesion like ADH a low dose of tamoxifen (with fewer side effects) is often prescribed. Things get better once you know what you are dealing with since there is a treatment plan in place. Good luck going forward!

DX 2/15/2021, IDC, Right, 3 cm, stage 2A, ER+/PR+, HER2-
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Mar 17, 2023 02:42PM februarystar27 wrote:

maggie15, thank you so much! The uncertainty right now is stressful, but I'm trying not to let it get to me. It definitely helps to have a community who understands what that's like.

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Mar 17, 2023 05:00PM salamandra wrote:

Hi Februarystar,

Please don't borrow trouble over the tamoxifen. Plenty of women don't have side effects at all, and another large subset is able to find a way to make it work by finding the right generic for them, splitting doses am and pm, or cutting doses. The minority of us for whom that doesn't work are the most likely to show up here and post about it, but many of us do end up finding other options (for me it was toremifene) or making peace with the decision to forego the hormonal therapy.

I don't think you can really predict based on other meds. I'm generally pretty tolerant of meds but something about tamoxifen just exhausted me. On the other hand, toremifene has been fine.

Good luck!

Dx at 39. 1.8cm. Oncotype 9. Dx 9/19/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 10/17/2018 Lumpectomy; Lymph node removal Hormonal Therapy 11/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 12/3/2018 Whole breast: Breast Hormonal Therapy 12/18/2019 Fareston (toremifene)

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