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Topic: Waiting and worrying

Forum: Waiting for Test Results —

For members not diagnosed with breast cancer, but waiting for test results:  Biopsy, mammogram, ultrasound, or other screening tests. Waiting is VERY difficult but remember...

"Worry does not empty tomorrow of its sorrow. It empties today of its strength." -- Corrie Ten Boom

Posted on: Jul 16, 2017 10:22PM

HannahRuth wrote:

After my first screening mammogram a couple of weeks ago, I was called back in. On Friday, I had additional imaging, an ultrasound, and then a core biopsy. The diagnostic radiologist was "very concerned," which of course makes me very concerned as well.

I am grateful not to have to have waited between each step of diagnosis, especially since I knew I had to be out of town this week. This morning I flew down to visit my mother (currently recovering from minor surgery herself). She is a breast cancer survivor herself--which could be a source of great support were she not so immediately challenged with her own medical issues. I'm sorry to have to be away from my husband during these stressful days, but he texts and calls frequently--and my terrifically supportive 18yo son is with me here at my mother's.

The earliest I could hear is tomorrow, although I gather it is likely to beat least one more day before the results come back. I am hoping for good news but also trying to prepare myself for a more difficult path ahead.

I'm so grateful I stumbled upon this community, which I have been reading through since the moment I found it.




My profile picture was taken last year--long before I was ever diagnosed. My penchant for headwrapping and my enormous scarf collection may serve me well this year. Dx 7/18/2017, IDC, Right, Grade 3, ER-/PR-, HER2- Surgery 8/1/2017 Mastectomy: Right; Prophylactic mastectomy: Left Chemotherapy 9/11/2017 AC + T (Taxol)
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Jul 16, 2017 11:04PM sweetp6217 wrote:

HannahRuth,

It's wonderful that you have such a supporting family. Please try not to be too worried. In my case, it took two days longer than they quoted. They told me to get an appointment with a Breast Cancer Surgery Doctor (no stress, right?!). I looked her up and found out that she also works with non-cancerous patients. Whew! Luckily, I picked the later day to get in to see her and the results came in that very morning. It was a very informative talk with her, but I had already taken a peek at the ultrasound and 3D mammogram results, so I wasn't too surprised. I had to "ask" for the earlier results while I was waiting for the biopsy results.

I guess try to get some things done that perhaps have been put off or delayed, that is if your results take longer. But, what do I know? Hugs.

Dx 7/7/2017, IDC, Left, 3cm, Stage IIB, Grade 3, ER+/PR-, HER2+ (FISH) Targeted Therapy 7/27/2017 Herceptin (trastuzumab) Targeted Therapy 7/27/2017 Perjeta (pertuzumab) Chemotherapy 7/27/2017 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Jul 17, 2017 06:52AM justbeatgeno wrote:

Good morning, HannahRuth,

Waiting is tough, but if it helps at all, I'm right here with you. My first mammo ever was on Thursday, u/s right after, biopsy the next morning. It's great your mom is a survivor and can be a supportive voice for you when/if you need one. My initial reports show me at a Bi Rads 5, so 95% chance of cancer. I almost don't want to wait for biopsy results, I just want to get it out all ready. But, I guess this is part of the process. Hang in there. I do find posting/reading here helpful. I like that I can start to prepare for next steps.

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Jul 17, 2017 06:56AM mommakat wrote:

the waiting is hard Hannah Ruth. Hang in there. I got my initial CNB results after 4 days but am still in limbo with some follow up things. My surgeon appointment isn't until 8/10, so I have for ever to wait and wonder. But. One thing I try to focus on: worrying now is only going to use up time and energy I could spend on something else. Good luck

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Jul 17, 2017 08:05AM HannahRuth wrote:

Thank you for the support, everyone. I'm sending my hopes for good news to all waiting.

I slept much better last night than the previous two since the discomfort has mostly dissipated and my middle-of-the-night panics have calmed down.

I chose to tell my closest friends what was up--and it helps me feel more grounded. Having a mass hiding in me is enough hidden stuff. I know other folks make very different decisions and I see why, but I decided to tell a few folks who I knew I 'd want to share difficult news with and also celebrate good news with if I am lucky enough to get it.

My profile picture was taken last year--long before I was ever diagnosed. My penchant for headwrapping and my enormous scarf collection may serve me well this year. Dx 7/18/2017, IDC, Right, Grade 3, ER-/PR-, HER2- Surgery 8/1/2017 Mastectomy: Right; Prophylactic mastectomy: Left Chemotherapy 9/11/2017 AC + T (Taxol)
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Jul 18, 2017 12:49PM HannahRuth wrote:

The first part of my biopsy results came back positive for invasive ductal carcinoma. Info on hormone receptivity, staging, etc won't be in for a few days--and I won't be given that info until my appointment with the team (which is getting scheduled now). Deep breaths...

My profile picture was taken last year--long before I was ever diagnosed. My penchant for headwrapping and my enormous scarf collection may serve me well this year. Dx 7/18/2017, IDC, Right, Grade 3, ER-/PR-, HER2- Surgery 8/1/2017 Mastectomy: Right; Prophylactic mastectomy: Left Chemotherapy 9/11/2017 AC + T (Taxol)
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Jul 18, 2017 01:13PM mommakat wrote:

i'm so sorry to read this Hannah! Best of luck to you and I will keep you in my prayers xo

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Jul 18, 2017 02:20PM Susug wrote:

Hannah - I'm so sorry tohere this.... the breathing will get better just not today. Hugs Susu

Surgery 6/19/2014 Lumpectomy: Left Surgery 6/30/2014 Lymph node removal: Left, Sentinel Radiation Therapy 9/28/2014 Breast Dx 5/10/2016, DCIS, Right, 1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+, HER2- Surgery Lumpectomy Radiation Therapy
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Jul 18, 2017 05:44PM HannahRuth wrote:

I am so grateful I found this supportive list so early on my journey! Thank you all.

My profile picture was taken last year--long before I was ever diagnosed. My penchant for headwrapping and my enormous scarf collection may serve me well this year. Dx 7/18/2017, IDC, Right, Grade 3, ER-/PR-, HER2- Surgery 8/1/2017 Mastectomy: Right; Prophylactic mastectomy: Left Chemotherapy 9/11/2017 AC + T (Taxol)
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Jul 18, 2017 06:24PM jenny153 wrote:

Hang on in there Hannah Ruth. For me, this part was the hardest. As soon as you have a treatment plan in place, things will get a little easier and that panicky feeling subsides. In the meantime, take time out for yourself and get as much support from loved ones around you.

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Jul 20, 2017 05:07PM HannahRuth wrote:

I got a call today from a geneticist who works with the team to which I have been assigned for my first consult on Monday. She reports that the tumor is triple negative and suggested that I consider genetic counseling. Boo. I won't hear about grade until the the team meeting. I'm feeling overwhelmed right now, more frightened than before. Aargh.

My profile picture was taken last year--long before I was ever diagnosed. My penchant for headwrapping and my enormous scarf collection may serve me well this year. Dx 7/18/2017, IDC, Right, Grade 3, ER-/PR-, HER2- Surgery 8/1/2017 Mastectomy: Right; Prophylactic mastectomy: Left Chemotherapy 9/11/2017 AC + T (Taxol)
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Jul 20, 2017 05:49PM MTwoman wrote:

HannahRuth, there is a Triple Negative forum that might provide some helpful information as well as connect you to women who've gone through treatment (to ask questions) and some who are just starting (for support). I'm sorry you're feeling so overwhelmed and frightened. This time in your journey, when you're collecting a lot more information, but unable to start actual treatment, is the absolute worst. Please do think about connecting to some TN ladies so you can get our questions ready for your team meeting. Once the team is in place and treatment plan decided, most women start to feel more empowered. Sending you warm thoughts and gentle ((hugs))

Dx 12/10/2002, DCIS, Right, 1cm, Stage 0, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 12/20/2002 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/23/2003 Reconstruction (right): Nipple reconstruction Surgery Reconstruction (right): Saline implant Surgery Reconstruction (right): Tissue expander placement Surgery Mastectomy: Right

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