Topic: Waiting for biopsy

Forum: Waiting for Test Results — We know, waiting is VERY difficult but we're here for you.

Posted on: May 10, 2022 02:55AM

Posted on: May 10, 2022 02:55AM

ness7432 wrote:

Hi Everyone,

My name is Amy, 40 years old, mother of 3 sons and 3 bonus kids. I am here because I am in the long 3 week wait for biopsies and I am not sure what to do with myself. I was hoping to tell my story, if others have had similar and how it worked out for them, or just read and gain information for whatever is happens next. I went for my first mammogram ever on 4/29. I was told it was very common to be called back after the first one and I was, instantly. They found asymmetries in both breasts and I am heterogeneously dense. They also saw a calcification in one lymph node but the radiologist feels that is from tattoo ink as I have several chest/arm/shoulder tattoos. I go in for diagnostic mammogram and was then sent for ultrasound. The radiologist came in to the room to also do a live scan in front of him, he seemed pretty concerned or perplexed. He said that what he saw on the first mammogram on the right breast is seen again in the diagnostic one but can't seem to locate it on the u/s. However the left one is for sure seen on u/s and I need to have both biopsied. He even used the words, I can't exactly determine what it is but it definitely isn't benign, and I don't know if he meant definitely isn't just nothing or like definitely cancerous. He has to do the right side biopsy using the mammo machine and the left side using the u/s. The report that was posted to my portal after the fact said the left side has a "non-circumscribed hypoechoic oval mass" and has a margin of 6mm and is 7 x 3 x 6 mm. Which seems taller than wide to me, which isn't typically good news, and the other labels of the mass aren't the good ones either. They also gave me a Bi-RADS score of 4. I am the kind of person that would rather prepare for the worst instead of hope for the best. Does anyone have any information on these kinds of findings? I don't go for the right side biopsy until next Monday and then the left side which is the mass until the following Monday 5/23.

Thank you for your time,

Amy

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May 12, 2022 01:17AM wondering44 wrote:

Amy,

I'm not educated on why doctors do a birads 4 without an a, b, or c. I have read it before though.

My birads last year was a 4c (high suspicion). My biopsy confirmed the cancer dx. This year I have a birads 4a (low suspicion) for findings on mammogram and a birads 4b (moderate suspicion) for MRI findings. I think each facility may have different ways of doing things. The facility you are at may stop at birads 4 or may not have put it on your report (not sure).

Last year my area of concern showed on the mammogram and ultrasound. The radiologist at that time said it is more suspicious when the same area shows on both the mammogram and ultrasound. If that info. is not in your reports you can definitely ask the facility that did the imaging.

Your PCP correct in getting the birads info. you are looking for from the facility who did the ultrasound and mammogram. The PCP may only have access to the same report you have that shows the birads 4.

Dr. Google is not your friend right now. Yes, it is hard to not search. Yes, many of us spent countless hours trying to get the answers there too. Try to talk to your doctors about questions. Make a list and call the breast care center to get better info. It is totally okay to call them to get all of your questions and concerns addressed while you wait for biopsies. It is okay to make it their job to explain everything during the "wait." If you have more questions keep posting here. This place has a lot of experience and a lot of great information to share with you. :-)

Surgery 8/18/2021 Lymph node removal (Right): Sentinel; Mastectomy (Right): Nipple Sparing Dx DCIS, Right, 1cm, Stage 0, Grade 2, ER+/PR+, HER2- Dx DCIS, Right, 6cm+, Stage 0, Grade 3, ER+/PR+, HER2- Dx IDC, Right, 2cm, Grade 2, ER+/PR+, HER2- Dx IDC, Right, 6cm+, Grade 3, ER+/PR+, HER2- Surgery 8/31/2022 Mastectomy (Left): Skin Sparing; Mastectomy (Right): Skin Sparing
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May 12, 2022 05:02AM ness7432 wrote:

"Thinking of the ladies who are also in the biopsy result waiting rooms. Doctors think a simple 4 is enough, because they think the report is for doctors' usage, they forget it is patient's right to get know what it means, we patients are becoming more and more knowledgeable." EXACTLY THIS!

My PCP is in the same building, he could have easily called over and asked for answers to my question, and the report specifically says if you have any questions about the report please call the doctor who ordered it. So I did, but I agree with you, they don't realize this goes to my portal and I can read it, and while I don't google some random information, I do read medical reports and research trials, and if I want to know something about what is inside my body, they should tell me. So yes I did call the breast care coordinator in the women's health office where they are doing my tests and hopefully she will call me back today.

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May 12, 2022 05:32AM - edited May 12, 2022 02:24PM by cathy67

Same here, I only read official publications, but all said birads 4 has 3 sub categories.


Oncotype 6, Dx 08/06/2019, IDC, Right, 2.1 cm, Grade2, 1/1 nodes,ER+/PR+, HER2- Surgery 9/10/2019 Lumpectomy; Lumpectomy (Right); Lymph node removal Hormonal Therapy 11/20/2019 Arimidex (anastrozole) Radiation Therapy 11/27/2019 Whole breast: Breast, Lymph nodes
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May 12, 2022 11:57AM wondering44 wrote:

ness,

You are correct it is your right to have the right info. Push to get it. Don't feel bad about the pushing.

My comment on "Dr. Google" only comes from a kind place. I spent countless hours last year searching while waiting. What I eventually learned was that my time was best spent doing fun things and enjoying my hours with my family. Dr. Google did not change the results. I did allow that "Dirty Dr. Google" to compromise my time I could have spent enjoying my husband and children. This year I have spent my time doing fun things with my family and friends. That has helped the time go by much better. That is all I meant by it. :-)

Surgery 8/18/2021 Lymph node removal (Right): Sentinel; Mastectomy (Right): Nipple Sparing Dx DCIS, Right, 1cm, Stage 0, Grade 2, ER+/PR+, HER2- Dx DCIS, Right, 6cm+, Stage 0, Grade 3, ER+/PR+, HER2- Dx IDC, Right, 2cm, Grade 2, ER+/PR+, HER2- Dx IDC, Right, 6cm+, Grade 3, ER+/PR+, HER2- Surgery 8/31/2022 Mastectomy (Left): Skin Sparing; Mastectomy (Right): Skin Sparing
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May 12, 2022 12:22PM ness7432 wrote:

wondering, I'm sorry I didn't mean to imply you meant anything else by it! I giggled at the dr google cuz I know it's never the best idea I was just saying I do make sure to read factual or professional stuff rather. And you are correct it's far better spending time with family as you said, im only looking it up while I am at work during down time actually im wayyy too busy during the day haha but yes agreed it's best not to focus on it because no matter what reports I read won't change the outcome or results for me personally. But it did help me gather some questions. I am definitely going to push for answers however no matter what she tells me I really won't know for another few weeks regardless so I will try to put it out of mind for now. I'm waiting for a call back though to see what she says. Thank you and again sorry I wasn't offended or anything like that.

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May 12, 2022 01:28PM wondering44 wrote:

ness,

No offense taken on this side. :-)

Save your finger strength from Google search for logging in your MyChart to check to see your results are posted. My fingers are in need of a break already. I am definitely giving them an excellent workout, lol. Not that the results will get posted any quicker with the EXCESS of log ins. :-D

Please keep us posted on your results.

Surgery 8/18/2021 Lymph node removal (Right): Sentinel; Mastectomy (Right): Nipple Sparing Dx DCIS, Right, 1cm, Stage 0, Grade 2, ER+/PR+, HER2- Dx DCIS, Right, 6cm+, Stage 0, Grade 3, ER+/PR+, HER2- Dx IDC, Right, 2cm, Grade 2, ER+/PR+, HER2- Dx IDC, Right, 6cm+, Grade 3, ER+/PR+, HER2- Surgery 8/31/2022 Mastectomy (Left): Skin Sparing; Mastectomy (Right): Skin Sparing
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May 12, 2022 02:00PM ness7432 wrote:

Wondering,

Haha! We are much alike. I do that with every test! I don't want to know how many times I refresh the test results page. I'm an over obsessing for sure. But I haven't even had the biopsies yet so I won't be doing that until next week and the week after lol The breast care coordinator called me back and she really didn't answer my questions she was just reading the report I have already read and she said well because it's oval it wouldn't be vertical it's horizontal and that to me doesn't make sense because something can be oval and vertical but she did say if it was taller than wide he would have wrote that however He put the measurements as 7 by 3 by 6 (length times with times height) is what I was always taught so that would mean so if the width is 3 and the height is 6 then it's taller then wide. So idk I don't think she wanted to tell me anything that wasn't already read on the paper. I'm getting a copy of the images tomorrow. And will just wait it out and hope.

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May 12, 2022 02:30PM cathy67 wrote:

ness,

Pushing won't change the result, but it can let us better prepare for it. Google let me know the options and why dr. recommend this not that.

Good luck for all of us.

Cathy

Oncotype 6, Dx 08/06/2019, IDC, Right, 2.1 cm, Grade2, 1/1 nodes,ER+/PR+, HER2- Surgery 9/10/2019 Lumpectomy; Lumpectomy (Right); Lymph node removal Hormonal Therapy 11/20/2019 Arimidex (anastrozole) Radiation Therapy 11/27/2019 Whole breast: Breast, Lymph nodes
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May 13, 2022 12:55PM cathy67 wrote:

Biopsy back normal, thanks everybody.

Oncotype 6, Dx 08/06/2019, IDC, Right, 2.1 cm, Grade2, 1/1 nodes,ER+/PR+, HER2- Surgery 9/10/2019 Lumpectomy; Lumpectomy (Right); Lymph node removal Hormonal Therapy 11/20/2019 Arimidex (anastrozole) Radiation Therapy 11/27/2019 Whole breast: Breast, Lymph nodes
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May 13, 2022 12:57PM purplecat wrote:

So glad for you! Thanks for sharing

Dx 10/2018, IDC, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 10/4/2018 Lumpectomy Surgery 10/18/2018 Lymph node removal Surgery Hormonal Therapy Femara (letrozole) Radiation Therapy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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