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Topic: "Breast Left Unsaid" - Book proceeds go to BC research ONLY

Forum: Walks, Runs and Fundraising Events for Breastcancer.org —

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Posted on: Feb 5, 2013 03:15PM - edited Feb 8, 2013 12:41PM by HeyJude

HeyJude wrote:

[Send me a private message here or a comment on facebook that you found out about Breast Left Unsaid on BC.org and I will donate 50% of the proceeds to BC.org]

I've been "on the boards" here at BC.org since 2006, and in fact I mention this wonderful site in the book. Two weeks after I completed the manuscript for "Breast Left Unsaid" I was diagnosed with a recurrance and am now Stage IV. "Breast Left Unsaid" has been receiving great reviews from not only our BC community but health care professionals and surprisingly, many men are reading it and sending feedback that "the didn't understand all this" before. I decided that since my disease is progressing I would like to leave behind a touchstone of hope and a reminder that we MUST find a cure - and drugs that won't make us sicker. My book ends on a hopeful and positive note~ I hope you enjoy it and know that I support organizations dedicated to research for a cure. Full stop.

http://breastleftunsaid.com/  is my website. You can order soft copy of Kindle via my site or Amazon.

facebook: Jude Callirgos Author  (like me!)

twitter: @JudeCallirgos

Dx Stage IV, ER+
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Jun 12, 2013 12:18AM JillThut wrote:

Just finished your book. Sorry about the metastasis. I'm wondering what if anything you might have written differently if you had the metastasis before you started the book.

How are you doing now? What treatment are you on? if you don't mind my asking

bone, liver and brain mets Jill Dx 10/6/2009, Stage IV, mets Dx IDC, Stage IV, Grade 3, 0/8 nodes, mets, ER+/PR+, HER2-
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Aug 26, 2013 03:56PM HeyJude wrote:

Hello Jill

Thank you for your note. I'm sorry I don't visit BCOrg as much as I should these days. I sort of pick my moments.

I probably would not have had the stamina for the book if I was Stage 4, so I'm glad I wrote it when I did. I'm current on Taxol and monthly Xgeva but also just got dx with a spot on my brain. I am starting to feel the metal SEs more than the physical ones. How are YOU??

Jude

Dx Stage IV, ER+
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Aug 26, 2013 06:26PM JillThut wrote:

Glad to see you're still around!

Kind of surprised you're doing taxol....only because taxol was my first chemo. I have had metastatic disease with mets to liver and bone since 11/09 and have been on chemo ever since. 17 mo of taxol, 12 mo of xeloda, 2 mo of navelbine, 4 mo Gemzar, 3 carboplatin/taxotere, 5 perjeta /taxotere and just started Tdm-1 today.

I've had brain mets for about a year and a half but they were few and small so I had gamma knife twice, once this past January and once the January before. I hope that's what they are recommending for you since it really is not that hard a procedure.

I had a good quality of life for the first three years with minimal side effects, mental or physical but have suffered much with harsh side effects the past several months so mentally I'm at the point of being tired of it all!

Thanks for responding. :)

bone, liver and brain mets Jill Dx 10/6/2009, Stage IV, mets Dx IDC, Stage IV, Grade 3, 0/8 nodes, mets, ER+/PR+, HER2-

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