Topic: Take the Fright Out of Breast Cancer™

Forum: Walks, Runs and Fundraising Events for Breastcancer.org — Discuss and share pictures of the walks, runs or fundraising events for Breastcancer.org. Visit also our Fundraising Forum for suggestions.

Posted on: Sep 5, 2017 12:24PM - edited Sep 22, 2017 01:10PM by moderators

Posted on: Sep 5, 2017 12:24PM - edited Sep 22, 2017 01:10PM by moderators

moderators wrote:

Hello Community!

We started this education and fundraising campaign to address fear as one of the many barriers that may keep people from getting the best care possible. We know we can never remove all of the fears around breast cancer. We know everyone responds to and lives with fear differently. Our goal is to motivate people to courageously and confidently make informed health and life decisions.

GET INVOLVED

Share the facts about breast cancer and breast health found in our toolkit.
Host a fundraising event (make it a Halloween party if you think that will help your friends and loved ones get involved).
Contribute your stories of addressing your own fears of breast cancer (just as no two cancers are alike, there is no one way through it).
Support each other by joining our growing community.

BREASTCANCER.ORG'S MISSION

Breastcancer.org is a nonprofit organization dedicated to informing and empowering people to protect their breast health and overcome the challenges of breast cancer. For more than 18 years, we have provided expert medical information to millions to help reduce the fears and anxieties associated with a diagnosis by providing the most reliable, complete, and up-to-date information about breast cancer, as well as hosting the largest and most active online breast cancer peer community.

YOUR DONATION'S IMPACT

Your support funds Breastcancer.org's educational and support programs. In a moment when many feel overwhelmed by their diagnosis and the critical decisions they have to make about their care, Breastcancer.org is there to answer their most pressing questions about breast cancer and connect them to a supportive peer community when they need it.

To quote Jackie, a Breastcancer.org Community member:

"Whenever I would have a new symptom or a question would pop into my mind, I could always find the answer on Breastcancer.org."

Your generous support is vital because it helps us deliver on our mission. Every gift counts. Give today in support of the millions who rely and depend on Breastcancer.org, not just this October, but every day.

Thank you!

To send a PM to the Mods: community.breastcancer.org/my/...

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Sep 12, 2017 07:12PM Why2015 wrote:

Agree Spookiest Mom, people start to laugh at us and get sick of hearing about it. Take the fluff out of breast cancer marketing and just focus on the cure and figuring out how we don't turn out like fat slobs because of the freaking medication they give us for treatment! It is enough to send one into the deepest depression

Hormonal Therapy 8/10/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx IDC, Right, 1cm, Stage IA, Grade 3, ER+/PR+, HER2+, Surgery Lumpectomy; Lymph node removal: Right Chemotherapy Taxol (paclitaxel) Targeted Therapy Herceptin (trastuzumab) Radiation Therapy Whole breast: Breast

Sep 12, 2017 08:15PM jensgotthis wrote:

The idea for this campaign is just completely tone deaf. I feel like saying shame in you BCO but I do believe nothing was suggested with ill intent. BCO does so much good but this is a total fail.

I'm obviously not alone in this thought. Could the mods please update this community about this campaign status

Dx 12/3/2015, IDC: Tubular, Left, 2cm, Stage IV, metastasized to bone, Grade 1, 0/12 nodes, ER+/PR+, HER2- Chemotherapy 1/4/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 5/1/2016 External Local Metastases 5/1/2016 Radiation therapy: Bone Hormonal Therapy 5/23/2016 Surgery 5/25/2016 Lymph node removal; Lymph node removal (Left); Mastectomy; Mastectomy (Left) Targeted Therapy 9/14/2016 Ibrance (palbociclib) Hormonal Therapy 9/14/2016 Femara (letrozole) Radiation Therapy Whole breast: Breast, Lymph nodes, Chest wall Targeted Therapy

Sep 12, 2017 08:23PM jensgotthis wrote:

I just have to add that this campaign is also incredibly disrespectful. Breast cancer is so frightening. Take the fright out of BC is A load of BS. Going trough treatment, ending treatment, living the rest of your life in treatment until BC ends it - all of this is so effing scary.


Dx 12/3/2015, IDC: Tubular, Left, 2cm, Stage IV, metastasized to bone, Grade 1, 0/12 nodes, ER+/PR+, HER2- Chemotherapy 1/4/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 5/1/2016 External Local Metastases 5/1/2016 Radiation therapy: Bone Hormonal Therapy 5/23/2016 Surgery 5/25/2016 Lymph node removal; Lymph node removal (Left); Mastectomy; Mastectomy (Left) Targeted Therapy 9/14/2016 Ibrance (palbociclib) Hormonal Therapy 9/14/2016 Femara (letrozole) Radiation Therapy Whole breast: Breast, Lymph nodes, Chest wall Targeted Therapy

Sep 12, 2017 11:11PM Sara536 wrote:

I'd like to wake up tomorrow to find that BCO has come to it's senses, admits that this was a terrible mistake (although well meaning) and has called off the campaign. Wouldn't that take a lot of courage. Oh, but the party hats have been purchased and the hall has been hired! It would illustrate the meaning of "cutting one's losses" - sort of like discontinuing a treatment that is causing you more harm than good.

Sep 13, 2017 01:28AM - edited Sep 13, 2017 01:28AM by traveltext

Mods, some thoughts and ideas so far:

Pretty disgusted.

Please let us not try to hijack Halloween.

I was actually wondering if it was a strange joke.

This is so ridiculous!

Here we go again trying to turn cancer into some fun and games spectacle.

Dumbest idea ever!

Totally out of touch idea that sounds like it came from an ad agency.

I hope it is a major flop.

It's not your holiday; leave it alone.

This campaign is also incredibly disrespectful.


NED breast and prostate cancer. Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

Sep 13, 2017 04:30AM lilacblue wrote:

I don't agree with this new campaign for all the reasons stated, yet, there will be no change of course and the not so scary show will go on as planned. Take a look at how many weighed in thus far regarding the insanity of the new wheel spinner -20, including me. This is pitched for corporate sponsors - big wack $, that also has a the kiss of pinkwashing.

SPONSORSHIP OPPORTUNITIES Our 2017 sponsorship packages are designed to increase your visibility among our event audience of over 300 prominent philanthropists, corporate leaders, and high net-worth individuals, representing a wide array of industries from both the private and public sectors. Many packages include benefits that extend your exposure beyond the event — including pre- and post-event engagement opportunities. Corporate sponsors play a vital role in the success of Take the Fright Out. With support from partners like you, we can expand on the programs we offer to patients, healthcare professionals, and caregivers and extend our reach to new audiences in need.

https://www.charitynavigator.org/index.cfm?bay=search.summary&orgid=9417

Not cheap to run BCO or pay the salaries. What is the best thing of BCO... the active online community, a lifeline for almost all who post. Charities have to fund raise, some do better than others. Come November when this thread dies down, that is when they will review if it was worth it or not. My hunch, this stinker will be a keeper in the boards eyes.

Nothing is ever the same as they said it was. It's what I've never seen before that I recognise. - Diane Arbus Dx 4/13/2012, DCIS/IDC, 1cm, Stage IB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 6/12/2012 Lymph node removal; Mastectomy; Mastectomy (Left); Reconstruction (Left): DIEP flap, Nipple reconstruction

Sep 13, 2017 09:27AM poseygirl wrote:

I have read through all the responses and one thing is clear...an emotional chord has been seriously twanged.

I agree with LilacBlue and others that there are two audiences...there are we, the patients. The people that walk this path (and guess what - 15 months in and I'm STILL FRIGHTENED), and then there is the corporate audience which BCO must court in order to raise funds.

1. Re: the corporate audience. I understand completely the effectiveness and importance of a tight and catchy marketing campaign. I come from the field of marketing and think this way all the time. However, equally important is to design a campaign that is not only catchy and tight, but one that is also insightful, sensitive and progressive in its approach. Is it possible to accomplish both gains? YES. And unfortunately, BCO, although I believe you are very well intentioned, you have only fulfilled one aspect of a good marketing campaign. This is catchy, but it's completely insensitive to the realities of a cancer diagnosis. It - in essence - diminishes the fright by suggesting it CAN be diminished. It also belittles what everyone goes through during a long road of treatment and speculation and fear for the future.

I believe you have found yourself a gimmick and can now pay your 'hired on contract' marketing person for the cuteness of it all. But it's a miss. Royally. Please challenge yourselves to find a striking marketing hook while advancing the whole arena of education and awareness building for the purpose of research and cure.

Everyday, companies acknowledge public backlash and withdraw campaigns with an apology. No one underestimates your need to raise corporate support; we appreciate it. But please hire a marketing person who understands. You are doing your own reputation a complete disservice every moment this campaign stays active. Do not undo the good you are doing.

2. Re: us. We are so insulted because of the emotional and physical investments we have made and continue to make each and every day. To see the scary Hallowe'en font and idea of 'removing fright' is basically an abomination which strikes us at the core. But let's forgive BCO for the slip up...they do good stuff. But BCO, you need to take this down to remove the hurt. It doesn't matter if this intended to raise funds. Corporations will respond to other approaches/branding.

I am not concerned about any effect this campaign could have on children. They don't know this is out there. But yes, I agree. Hallowe'en is a holiday. So is Christmas. Let's leave them alone and not trivialize the breast cancer experience.

Take the Fright Out Of? Sorry, I really am shaking my head.

Radiation Therapy 1/11/2016 Whole breast: Breast, Lymph nodes, Chest wall Dx 6/23/2016, IDC, Right, 6cm+, Stage IIIA, Grade 3, ER+/PR+, HER2- Chemotherapy 7/11/2016 AC + T (Taxol) Targeted Therapy 9/15/2016 Herceptin (trastuzumab) Surgery 11/28/2016 Lymph node removal; Lymph node removal (Right); Mastectomy; Mastectomy (Right) Hormonal Therapy 12/20/2016 Femara (letrozole)

Sep 13, 2017 09:34AM - edited Sep 13, 2017 09:41AM by poseygirl

P.S.

In order to show you that I truly care about your idea for a campaign, I just want to offer you a slight change in perspective based on your copy at the top of this page. You have spoken about taking the fright out of, or reducing the fright, with information. I personally would upend this marketing idea and focus on the power of information. So, find something cool - a hook - that plays upon the getting informed part. Fright needs to be acknowledged.

But to be honest, I think if you are looking to raise money for this website and its participants, I would look to the people who make up your users as inspiration for your campaign. This website has thousands of faces behind the computer screen. Your campaign should be built in a manner that reflects what you are and what you provide (i.e. the medium is the message). I would scrap this whole thing and come up with a handle that focuses on how we are all individuals living all over the map with different lives, but sharing an experience, needing a watering hole to meet and share and support. In here, somewhere, is your golden nugget. If you care to probe further with me, I'm happy to put some brain power into it.

What are you? You are a Bridge Over Troubled Water. "When you're down and out, when you're on the street...when evening falls so hard...". THIS is really what you ARE. This of course is copyrighted to the hilt. But it pulls upon the emotions of this situation. You, BCO, are a bridge over troubled water. You connect us across the oceans, over time. We connect to share, to inform, to laugh, to cry. I sure hope you're reading this. This was five minutes of my time for completely FREE - :)

Radiation Therapy 1/11/2016 Whole breast: Breast, Lymph nodes, Chest wall Dx 6/23/2016, IDC, Right, 6cm+, Stage IIIA, Grade 3, ER+/PR+, HER2- Chemotherapy 7/11/2016 AC + T (Taxol) Targeted Therapy 9/15/2016 Herceptin (trastuzumab) Surgery 11/28/2016 Lymph node removal; Lymph node removal (Right); Mastectomy; Mastectomy (Right) Hormonal Therapy 12/20/2016 Femara (letrozole)

Sep 13, 2017 10:08AM SoCalBC wrote:

You've announced it on the site and received 100% backlash and scorn. But that's contained within the digital walls of BCO. Imagine what's going to happen when you really start to publicize this and you see BCO dragged all over Twitter, Facebook etc.

Dx 11/2016, DCIS, Left, 2cm, Stage 0, Grade 3, ER-/PR- Dx 12/2016, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER-/PR-, HER2+, Surgery Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel) Surgery Mastectomy: Left, Right Surgery Lumpectomy: Left

Sep 13, 2017 10:55AM spookiesmom wrote:

if it isn't already.

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