Topic: Take the Fright Out of Breast Cancer™

Forum: Walks, Runs and Fundraising Events for Breastcancer.org — Discuss and share pictures of the walks, runs or fundraising events for Breastcancer.org. Visit also our Fundraising Forum for suggestions.

Posted on: Sep 5, 2017 03:24PM - edited Sep 22, 2017 04:10PM by moderators

Posted on: Sep 5, 2017 03:24PM - edited Sep 22, 2017 04:10PM by moderators

moderators wrote:

Hello Community!

We started this education and fundraising campaign to address fear as one of the many barriers that may keep people from getting the best care possible. We know we can never remove all of the fears around breast cancer. We know everyone responds to and lives with fear differently. Our goal is to motivate people to courageously and confidently make informed health and life decisions.

GET INVOLVED

Share the facts about breast cancer and breast health found in our toolkit.
Host a fundraising event (make it a Halloween party if you think that will help your friends and loved ones get involved).
Contribute your stories of addressing your own fears of breast cancer (just as no two cancers are alike, there is no one way through it).
Support each other by joining our growing community.

BREASTCANCER.ORG'S MISSION

Breastcancer.org is a nonprofit organization dedicated to informing and empowering people to protect their breast health and overcome the challenges of breast cancer. For more than 18 years, we have provided expert medical information to millions to help reduce the fears and anxieties associated with a diagnosis by providing the most reliable, complete, and up-to-date information about breast cancer, as well as hosting the largest and most active online breast cancer peer community.

YOUR DONATION'S IMPACT

Your support funds Breastcancer.org's educational and support programs. In a moment when many feel overwhelmed by their diagnosis and the critical decisions they have to make about their care, Breastcancer.org is there to answer their most pressing questions about breast cancer and connect them to a supportive peer community when they need it.

To quote Jackie, a Breastcancer.org Community member:

"Whenever I would have a new symptom or a question would pop into my mind, I could always find the answer on Breastcancer.org."

Your generous support is vital because it helps us deliver on our mission. Every gift counts. Give today in support of the millions who rely and depend on Breastcancer.org, not just this October, but every day.

Thank you!

To send a PM to the Mods: community.breastcancer.org/my/...

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Sep 13, 2017 09:34PM - edited Sep 13, 2017 09:35PM by mebmarj

Sent in message to moderators:

"one of you started a thread inviting members to visit the new "campaign" page. It was started on 9/5 and no one has replied to any of the comments or suggestions.

Either you have no response because you misjudged how it would be received or you have been absent and really need to give some thoughtful feedback to members, including myself, who are clearly disappointed in the "campaign" which doesn't seem grassroots given the big name sponsorships listed.

Many await your response."

Sep 13, 2017 09:43PM traveltext wrote:

BCO have the launch party planned for 7 October:

"Join us for a night of dancing, open bar, dinner, and desserts at the first annual Take the Fright Out of Breast Cancer Philadelphia Launch Party. This costumes-encouraged event will kick off the month's national campaign during Breast Cancer Awareness Month. We hope to see you at what promises to be a night of fun and festivities for a great cause"! HERE

That gives us time to turn this big ship around. Any Philly members who might like to picket this event?

The Underbelly people are upset about Pink Halloween as well:

https://www.facebook.com/groups/theunderbellygroup...


NED breast and prostate cancer. Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

Sep 13, 2017 10:42PM Outfield wrote:

Well, I've begun my own personal online backlash.

Sep 14, 2017 10:30AM - edited Sep 14, 2017 10:30AM by poseygirl

Well, it's a free world and if BCO doesn't address any concerns here and reconsider, you can go to Philadelphia media. My guess is they'd cover it.

However, BCO, the goal isn't to embarrass or ruin your campaign. The goal is to get a response from you and for you to consider actions even in spite of your investment. You do good work, but this approach is tacky and sets education back.

JUst realize that if you go forward, there really is a strong risk of you being covered in a manner that isn't becoming of you. Yes, bad PR is still PR, but hopefully that's not what you'd want to be known for

Radiation Therapy 1/11/2016 Whole breast: Breast, Lymph nodes, Chest wall Dx 6/23/2016, IDC, Right, 6cm+, Stage IIIA, Grade 3, ER+/PR+, HER2- Chemotherapy 7/11/2016 AC + T (Taxol) Targeted Therapy 9/15/2016 Herceptin (trastuzumab) Surgery 11/29/2016 Lymph node removal; Lymph node removal (Right); Mastectomy; Mastectomy (Right) Hormonal Therapy 12/21/2016 Femara (letrozole)

Sep 14, 2017 11:17AM lilacblue wrote:

We can post on this thread all we wish. The fact is, this campaign has legs and is up and running. Parties are being formed, tickets sold, it's a done deal regardless of what is posted on BCO by the members of the Community.



Nothing is ever the same as they said it was. It's what I've never seen before that I recognise. - Diane Arbus Dx 4/13/2012, DCIS/IDC, 1cm, Stage IB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 6/12/2012 Lymph node removal; Mastectomy; Mastectomy (Left); Reconstruction (Left): DIEP flap, Nipple reconstruction

Sep 14, 2017 11:54AM SoCalBC wrote:

Revolting

Dx 11/2016, DCIS, Left, 2cm, Stage 0, Grade 3, ER-/PR- Dx 12/2016, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER-/PR-, HER2+, Surgery Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel) Surgery Mastectomy: Left, Right Surgery Lumpectomy: Left

Sep 14, 2017 12:01PM - edited Sep 14, 2017 12:11PM by Outfield

LilacBlue, it may be a done deal but that doesn't mean we don't have a voice. We don't have a voice if we choose not to use it. In my lifetime, I've been a major whistleblower (in NY Times, on national TV) and seen my huge organization - much, much bigger than BCO - flip up its ugly underbelly for the country to see. That was different in that they had no good motivations at all for what they were doing - just greed - but the idea of personal agency is the same. People are sometimes truly powerless, but that's different than giving away the power you do have.

In a twisted way, I am much less offended by this event advertisement than by what the moderators posted, which was directed to us, the BCO community, not potential donors. This is ignorant but probably well-meaning stuff from a golf and tennis club, with a long-retired NFL player's name on it. I don't expect the club, the retired player, or any particular individual in the group photos on the "Jaws Girls Care" website to understand, much less have foreseen, the reaction of the BCO community to this post. Maybe some of them have had breast cancer, but I would be very, very surprised if it were all of them and it's very easy to misstep when attempting to do something good for somebody else if you don't truly understand their situation and how they may feel about it. I do expect BCO to have had a clue this would be offensive, so the moderators' post insults me to a much greater degree than another drop in the bucket of pinkwash.

If a person chooses to approach their cancer by wearing pink, I can't and don't judge that. If a person chooses to approach their cancer by refusing to allow themselves to acknowledge any fear, I can't and don't judge that. If a tennis club runs a benefit that offends a percentage of the people it hopes to benefit, I do judge that, but I don't feel scorn and any "education" would be very gentle. But if BCO chooses to feed us, as a group, a huge line of condescending, innacurate, insulting BS, I don't feel very gentle and I'm not one to put up and shut up.

Sep 14, 2017 12:23PM spookiesmom wrote:

Seems like I read Komen, Am Cancer and other big names cancelled events at Mar a Lago after Charlottville. Supposedly big fund raisers.

So if they can cancel those, why can't this disgusting disgrace be cancelled? None that I can see.

Sep 14, 2017 01:35PM meow13 wrote:

The one scheduled in Boston sounds even worse Miss Pink Boobie or something like that.

Moderator has taken to stage 4 thread.

Sep 14, 2017 01:52PM Mucki1991 wrote:

can't we focus on treatment changes and cures. Oh and how about a like button so we can agree with what others have posted ????

Rebekah Dx 5/5/2017, ILC/IDC/IDC: Papillary, Left, 3cm, Stage IIB, Grade 3, 3/7 nodes, ER+/PR+, HER2-, Surgery 7/14/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/22/2017 AC + T (Taxol) Surgery 2/8/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 2/26/2018 3DCRT: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/20/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/17/2018 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 1/25/2019

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