Topic: Take the Fright Out of Breast Cancer™

Forum: Walks, Runs and Fundraising Events for Breastcancer.org — Discuss and share pictures of the walks, runs or fundraising events for Breastcancer.org. Visit also our Fundraising Forum for suggestions.

Posted on: Sep 5, 2017 03:24PM - edited Sep 22, 2017 04:10PM by moderators

Posted on: Sep 5, 2017 03:24PM - edited Sep 22, 2017 04:10PM by moderators

moderators wrote:

Hello Community!

We started this education and fundraising campaign to address fear as one of the many barriers that may keep people from getting the best care possible. We know we can never remove all of the fears around breast cancer. We know everyone responds to and lives with fear differently. Our goal is to motivate people to courageously and confidently make informed health and life decisions.

GET INVOLVED

Share the facts about breast cancer and breast health found in our toolkit.
Host a fundraising event (make it a Halloween party if you think that will help your friends and loved ones get involved).
Contribute your stories of addressing your own fears of breast cancer (just as no two cancers are alike, there is no one way through it).
Support each other by joining our growing community.

BREASTCANCER.ORG'S MISSION

Breastcancer.org is a nonprofit organization dedicated to informing and empowering people to protect their breast health and overcome the challenges of breast cancer. For more than 18 years, we have provided expert medical information to millions to help reduce the fears and anxieties associated with a diagnosis by providing the most reliable, complete, and up-to-date information about breast cancer, as well as hosting the largest and most active online breast cancer peer community.

YOUR DONATION'S IMPACT

Your support funds Breastcancer.org's educational and support programs. In a moment when many feel overwhelmed by their diagnosis and the critical decisions they have to make about their care, Breastcancer.org is there to answer their most pressing questions about breast cancer and connect them to a supportive peer community when they need it.

To quote Jackie, a Breastcancer.org Community member:

"Whenever I would have a new symptom or a question would pop into my mind, I could always find the answer on Breastcancer.org."

Your generous support is vital because it helps us deliver on our mission. Every gift counts. Give today in support of the millions who rely and depend on Breastcancer.org, not just this October, but every day.

Thank you!

To send a PM to the Mods: community.breastcancer.org/my/...

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Sep 14, 2017 07:32PM mrszinnz wrote:

They really aren't listening and its disgusting. Nothing in October is sacred anymore. I fully agree with your remarks Tammy!

Dx 10/23/2012, IDC, Right, 6cm+, Stage IIIB, Grade 3, 0/11 nodes, ER+/PR+, HER2-, Chemotherapy 11/2/2012 AC + T (Taxol) Surgery 4/17/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 5/28/2013 Breast, Lymph nodes Hormonal Therapy Arimidex (anastrozole), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)

Sep 14, 2017 08:35PM mbcmermaid wrote:

I am not a fan of this. As it is, I vomit pink for an entire month. Why? Because cancer isn't fun. It isn't a pink party. And it isn't something to merge with Halloween. For those of us dying of MBC, the only breast cancer that kills, we get a constant barrage of pink ribbons shoved in our faces all month long. And we get very little to 0 research dollars. How about making people aware that 113 of us in the US die EVERY DAY from MBC? Our disease is exploited for the almighty dollar. Free the Ta Ta's day, for example. I'm sorry but has ANYONE ever seen a Save the Balls shirts for men with testicular cancer? My breasts don't matter. I do. I think you should be making people more aware of stage 4, which whether they like it or not, at least 30% of early stagers will end up metastatic. There is nothing you can do to prevent it. You say something about early detection...makes not one bit of difference. You're either going to become metastatic or you're not. If early detection stopped breast cancer deaths, then why is the death rate for it still exactly the same as 35 years ago? That proves it means nothing. I am not saying, don't have a mammogram, but that in no way prevents you from being stage 4. Most people believe we have stage 4 because we didn't "detect" it soon enough or didn't treat it correctly. This is 100% false. That isn't the way it works. Let people know the truth. So my hope is, you would bring this to light instead of a silly campaign. We ARE scared. We are the dying, who don't want to die. And we count on organizations like yours to help us. But no one wants to hear about the dying. Problem is, it's a harsh reality to the 6 people I know that have died from it in just 2 weeks. And to the rest of the 113 of us, each day. Here is your opportunity to help us. I hope you will. My friends and I may not HAVE. another Halloween.

Kristi Stone

Sep 14, 2017 08:45PM - edited Sep 14, 2017 08:52PM by Outfield

Mods,

Reading your response, these two things come to mind.

When I was diagnosed, I didn't want help with my "fears," I wanted help with my cancer. It's really belittling to make the problem with breast cancer "fear" rather than dying or living with side effects of treatment.

It's also simply dishonest to imply that better preparation and attention to current available screening should allay our fears.

Sep 14, 2017 09:10PM spookiesmom wrote:

I'm speechless at the mods tone deaf replies

Sep 14, 2017 09:20PM - edited Sep 14, 2017 10:40PM by shepkitty

Dear Everyone,

I just received a very kind and thoughtful response from the Mods. They ARE reading these posts.

I HATE Puketober so, so much. I was as angry as all of us have been over this stupid campaign the Mods have presented us with. I hate the name and all, but now I understand the reasoning behind it.

1. BCO is very much so sticking with their main objectives. As stated above, BCO exists to provide education, helpful links and to post news regarding developing/new treatments. The discussion boards exist to give members various forums to communicate, provide support and share knowledge.

2. Unfortunately, members rarely make donations to help keep the website up and running. We all have been been benefiting from BCO without supporting it. If each us who are able to do so donated, even if only a dollar or two, There would not be a need for BCO to seek outside sources for fund raising.

Think about it; the BCO folks are basically working for us for free. I know I feel like a mooch now.

BCO does have an online store to purchase items to benefit the site, It is not easy to find and most members are unaware of it. Look on the left sidebar of the Shop page to see all the items available..

Shop for Breastcancer.org

BCO is our family. We don' t always agree and that's okay.

The real fight is with the corporate vultures feeding off of our misery to fatten their bank accounts. I wish we could organize together to fight back and let our truths be known.


"Keep passing open windows" Dx 2/2013 Stage IV mets to bones/spine, IDC, Left, 1cm, Grade 3, ER+/PR-, HER2-. Dx 1/23/2017 brain mets. Bone Rads, 2 Kyphoplasty, 1 Craniotomy, 3 Gamma Knife. Xeloda May 2017. DX 11/7/17 DCIS,Left, Ibrance 6/18

Sep 14, 2017 10:28PM traveltext wrote:

Who cares what the kids think as long as a few more dollars for awareness are raised.

I can hear the new products being churned out from half way around the world. Thanks to BCO, this year is going to be a bumper Pinktober.




NED breast and prostate cancer. Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

Sep 15, 2017 06:46AM Beatmon wrote:

I absolutely hate the Boob coming out of the ghost's mouth to scare away cancer! Wish that worked.

What I would like to see is how the money raised to going to be broken down and divided....will more be spent to put on the event than is actually put to good use

Dx 7/27/2012, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ Surgery 8/9/2012 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Surgery 12/1/2013 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/1/2014 Reconstruction (left); Reconstruction (right) Dx 8/9/2014, IDC, Both breasts, Stage IV, metastasized to lungs, Grade 3, ER-/PR-, HER2+ Targeted Therapy 8/27/2014 Herceptin (trastuzumab) Targeted Therapy 8/27/2014 Perjeta (pertuzumab) Chemotherapy 8/27/2014 Taxotere (docetaxel)

Sep 15, 2017 07:14AM marijen wrote:

Looks like they've made a joke of it

Sep 15, 2017 10:13AM poseygirl wrote:

ShepKitty,

Thank you for sharing what you've heard back from BCO. I would hope that they can publish their reply to you in this forum.

Referring back to a previous post I made (or two), I don't question that BCO needs the funds. I don't question the good work they do. I have hopefully never been aggressive in my past comments. I was hoping to be helpful.

It is the approach they are taking that I question; not that they are taking an approach. The marketing approach doesn't sit well and it sends out a message that flies in the face of the true fright that should and does exist. The website content in this campaign DOES fulfill what BCO stands for - education, awareness, support. But it's the packaging that is not appropriate, in my opinion. I feel it is a branding - NOT CONTENT - issue. I believe the branding should be changed to align with a) what BCO does (a Hallowe'en theme doesn't do anything to further what BCO does, so it should be up for debate absolutely. One has to be willing to reconsider their marketing approach), and b) which is progressive and sensitive to all that is going on with respect to proper bc education and the realities tied in. We can't really remove the fright - that's the bottom line. But we CAN acknowledge reality, and acknowledge what BCO does to understand that reality in a campaign branding.

I believe this new 'look' or branding fulfills (a) above, but NOT (b). I contend that both can be properly fulfilled in a well done campaign.

BCO, I'd really like to hear back from you on this, as I'm trying not to be attacking and belittling of your efforts. I understand what you're trying to do, but believe with every marketing instinct that it's off the shot, no matter how cute others outside of this organization find it. It's not really sending out the right message based on realities; any new breast cancer campaigns should leverage off the past and advance efforts, not freeze them or turn them back.

Please try to filter out the emotional aspects of the feedback you're getting and drill down to the bottom line questions:

a) Does our campaign reflect what we do?

b) Does our campaign stand out from the perspective of our 'buying' audience?

c) Does our campaign align with what current messaging around breast cancer should be? IN other words, does it send out an accurate reflection of what BC patients experience? Does it properly reflect breast cancer facts?

All three of the above must be met for a successful marketing campaign. Success is not just dollars in your pocket (which you might get from fulfilling a) and b) above. Success also alludes to the broader and very important directive of being responsible to the cause out there. You may have success in that income generated from this campaign will allow you to provide further features on this site which will absolutely benefit US. Agreed. But given what we're talking about here - cancer - there is a higher order directive which I believe must ethically be delivered based on the efforts made by many other organizations to accurately represent this disease. Proper representation of this disease experience is critical for continued support to drive toward cure.

Thanks so much for your attention to this issue (another small suggestion - it goes a long way for you to respond to people...radio silence is disappointing, even though we 'need' you and are not a paying audience).

Radiation Therapy 1/11/2016 Whole breast: Breast, Lymph nodes, Chest wall Dx 6/23/2016, IDC, Right, 6cm+, Stage IIIA, Grade 3, ER+/PR+, HER2- Chemotherapy 7/11/2016 AC + T (Taxol) Targeted Therapy 9/15/2016 Herceptin (trastuzumab) Surgery 11/29/2016 Lymph node removal; Lymph node removal (Right); Mastectomy; Mastectomy (Right) Hormonal Therapy 12/21/2016 Femara (letrozole)

Sep 15, 2017 12:44PM - edited Sep 15, 2017 01:14PM by moderators

shepkitty, thank you very much for your thoughtful and helpful post.

LilacBlue and Traveltext, just so you are aware, the images you're posting and referencing are not BCO selected images, they are from fellow breast cancer survivors, and BCO users. Everyone expresses their feelings and finds motivation in their own way.

Outfield, we hope that the information on our site was able to help you with your cancer, as well as your fears, by understanding your diagnosis, and seeing that you are not alone.

mbcmermaid, we have a very thriving community of members with metastatic breast cancer Stage IV Forum and content that brings awareness and information about metastatic breast cancer. You may find this section helpful: Metastatic Breast Cancer. We are also preparing some new content for October 13th, Metastatic Breast Cancer Awareness Day, and have been asking for our members to share their thoughts here: community.breastcancer.org/for...

Beatmon, we're raising funds to continue providing community support and health information in addition to raising funds to help Breastcancer.org rebuild our site as a more personalized experience for you, our community members. Our goal is to bring together the community discussion forums and thousands of pages of medically-reviewed content into one seamless experience that helps you benefit from both the expert health content we create and the social support of your peers in our community. Maintaining and rebuilding the site is complex, time consuming and also costly. It requires extensive fundraising to make sure that Breastcancer.org is here for you.

Thank you for your ongoing, and honest feedback.

To send a PM to the Mods: community.breastcancer.org/my/...

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