Posted on: Aug 25, 2012 10:46PM
I bought a sleeve for each arm. Hate them but whatever. My BS said I should wear a bracelet too. 12 nodes out of left arm and 4 out of right. Wear a bracelet on the right arm and take chances on my left? Anyone found a bracelet that is pretty? I searched this topic but nothing came up. Many thanks for helping me out.
Posts 1 - 22 (22 total)
Aug 25, 2012 11:02PM camillegal wrote:
Grt42 I never thought of a bracelet---and it should say how many nodes were taken out of each arm.?or how many positive nodes were taken? No one has ever mentioned bracelets before--I have a card that says I have a port, but that's as far as I go. I've never even see anything like thst except for medic alert bracelets, I guesd that would do, engraving sll the nodes---but they are ugly.
Aug 25, 2012 11:14PM ALittleBitBritish wrote:
The engraving should specify NO BPs or IVs on which arm, plus emergency contact. Samples can be found online.
The number of nodes removed is irrelevant - any number puts you at risk from LE.
We need to avoid the needles and BP being taken from the arm involved.
Aug 26, 2012 01:08AM , edited Aug 26, 2012 01:08AM by ALittleBitBritish
I would have engraved the word 'both' or 'either' depending on character number spaces allowed - you don't get much room on these bracelets for too much detail, but they tell you how much text can be added.
Or you can take it to be engraved somewhere else if you buy it without engraving.
Aug 26, 2012 04:18AM , edited Aug 26, 2012 04:19AM by OneBadBoob
Aug 26, 2012 10:33AM Blessings2011 wrote:
During my entire diagnosis and surgical treatment for IDC last fall and winter, none of my medical team really stressed the importance of taking LE precautions. In fact, they MINIMIZED the possibility, as I'd only had an SNB on the left side. Later, when I met with the LE specialist at the hospital (at my request) I learned so much more.
The morning after my BMX, a nurse came into my room to take my vitals. We chatted; she shared with me that she had also had a BMX the previous year. Then before I knew it, she had that BP cuff wrapped around my left arm, and was inflating it.
At the same time, we looked at each other and yelled "NOOOO!" She immediately took the cuff off, then got angry because there wasn't a sign posted above my bed prohibiting BPs, blood draws, etc, on the left side. I told her that wasn't my responsibility.
I asked at Kaiser if there could be something in my chart, or on the computer, that would flag my file to reflect the need for LE precautions. I was told that I'd just need to tell everyone myself.
Several months ago, I read in a post here on BCO about free Lymphedema Alert Bands.
I decided what the heck, and sent away for some. They were free, hot pink, and reusable.
I took them with me on Wednesday, when I had my Exchange Surgery. I asked again about the need for LE precautions, and again, was told that I just needed to mention it to everyone.
Well, I discovered that Kaiser has NO warning band for LE, nor do they write anything special on a different bracelet. It all comes down to the scribbled notes by the Pre-OP Nurse, the Plastic Surgeon, the Anesthesiologist, and the OR Nurse.
I whipped out my LE Alert Band, and asked if I could put one on. The nurses thought they were great, and that they should have something like that in stock.
I am hoping I am done with surgery now, but I'm going to order several more bands, just in case. You can get them from
As for permanent bracelets, there is also a company called RoadID that makes medical alert bracelets for runners and bicyclists. http://www.roadid.com/Common/default.aspx
I'm going to check out all the places I've seen so far, and get something permanent.
(But I was SO glad I had my Alert Bands with me during my Exchange Surgery! Sheesh!)
Aug 26, 2012 10:50AM SpecialK wrote:
If hospitalized insist on a paper sign taped above the bed with LE precautions and also find out at pre-op, if staying in the hospital, if they have the bracelets. If they don't, get your own. As far as the bracelet goes, before I got mine I called my son who is a fireman and asked him if he knew what lymphedema was, or if his fellow fireman did. He said no, so I put NO BP/IV/NEEDLES on my bracelet - did not put the work "lymphedema" on it. In an emergency they are not going to stop and look it up.
I have a regular gold ID bracelet and also have a Road ID one. Here is a link for an alert sleeve:
Aug 26, 2012 12:37PM nibbana wrote:
I got a dog tag styled necklace from American Medical ID. It says on the front, lymphedema risk, arms. Back says no BP cuff or IV in right or left arm.
Aug 26, 2012 01:03PM Galsal wrote:
That may well be a good idea SpecialK, since not all know the word. Thanks for sharing.
Aug 26, 2012 01:46PM New-girl wrote:
Thanks everyone. Lots of good information. I wish it was something written clearly on my medical information when I go to the drs but each time I have to remind them no needle sticks and bp on my right arm. Although left arm had 4 nodes removed, I was told that unless I wanted to get a port, I had to risk the needle stick in that arm. Any ideas of why after my bmx I woke up with iv's in both arms when that should have been considered risky after removing so many nodes?
Aug 26, 2012 03:05PM Binney4 wrote:
Because I'm bilateral I use a necklace. The TLC catelog has a nice one (well, maybe it's a bit sweet, but hopefully it does the job):
When you use those free alert bands and hospital staff comment on them, be sure to tell them how they can order them for their patients. I order them by the box for bc events and nurses' in-service classes--very helpful! For myself, I have two rubber-banded to my insurance ID so anytime I'm at a doctor's office I can put the on. A couple in the glove compartment, in assorted tote bags, and in my "in case of emergency" bag (which also contains a set of arm bandages, my medical history and contacts for doctors, and a couple of packets of hot cocoa mix--all the essentials for an unplanned hospital stay.) Those bracelets are a real gift! If you order some, do send them back a note of thanks--it's ReidSleeve company employees who volunteer to fill those orders. Nice people!
Aug 26, 2012 03:50PM Laural wrote:
If you carry a cell phone on your person, you can add ICE (In case of emergency) #s. It also allows you to add a few lines of medical info, such as Use only right/left arm for BP and IV's. Just one more option and way to communicate info to medical personnel if you are unable to talk.
The hospital I had surgery at used a bracelet to identify arm not to use, but I still had to remind nurses at times (granted I was on a neuro floor where they were not used to mastectomy patients due to anesthesia/seizure issues, but you have to be your own advocate).
Aug 26, 2012 03:59PM ruthbru wrote:
Beautiful medical ID bracelets at http://www.creativemedicalid.com/ (I frequently get compliments on mine as a piece of jewelry!)
They give you information on how to measure & inscription suggestions for various conditions, mine says: "No IV, BP, needles in left arm"
Feb 14, 2014 06:11AM Mommyathome wrote:
I am in the process of purchasing a medical alert bracelet due to the fact that I was diagnosed with breadt cancer and had nodes taken out. My question is: if the bracelet is not surgical stainless steel will the bracelet rust, tarnish, etc with contact with water? I have seen some beautiful ones with beads etc and I contacted the company and he suggested not wearing it in the shower or swimming pool but washing your hands with it on should be fine.. I was hoping to get one that I could leave on regardless of what activity I'm doing. Any thoughts, suggestions, comments about experiences you've had are welcome!!! Thanks!
Feb 14, 2014 06:16AM ruthbru wrote:
I don't wear mine in the shower, pool etc. I never thought of leaving in on when in water, and I don't think it would hold up. I would be interested in what others have to say too.
Feb 15, 2014 01:00AM , edited Feb 15, 2014 03:25AM by 2nd_time_around
I had a stainless steel one for several years that was indestructible, only took it off when necessary. Not a fashion statement, but served the purpose. Don't know what happened to it, it disappeared about my 2nd mx. I should probably go back to wearing one. Thinking of checking into this again.
It was also my LE detector: I could usually put a couple fingers between wrist and bracelet, when LE flared it was a big snug.
Feb 15, 2014 01:42AM sherry67 wrote:
I bought my medical alert bracelet through Lauren's Hope on there web site ...they beautiful ones that are for women only and you would never no it was a medical alert bracket. You can wear it in the shower except for pools and jacuzzis ...I get a lot of complements about the one I have...on this particular site you are able to choose and make the bracelet you want..I have given many of my patients this site for different issues and they were very appreciated ...sherry
Feb 15, 2014 06:59AM Binney4 wrote:
sherry, have any of the patients who wear these needed them (as in a medical emergency)? Did they work for them? The advice is that a more medical-looking bracelet is more likely to be noticed by emergency personnel. I really don't know how EMTs and ER personnel are taught to look for medical jewelry, or if it is overlooked even when it looks "medical," so I'd love some anecdotal stories about whether these things help or not in an emergency.
On the other hand, when I had LE in only one arm (I'm now bilateral) I wore a bracelet to remind MYSELF not to let them use that arm!
Feb 15, 2014 12:50PM sherry67 wrote:
Mine looks like a bracelet until you turn it around and it has the medical alert shield and I had my name/BMX-R-Limb restrictions plus my allergies inscribed. So god forbid something happens to me just anything they would be aware... If you go to the site you will be impressed...