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Topic: clinical trial on measuring tool

Forum: Lymphedema —

Talk with other about how to lower your risk of lymphedema and how to manage it if you've been diagnosed.

Posted on: Jun 8, 2006 02:12AM

andys wrote:

This message is for anyone in the Washington, DC area. A clinician at the NIH is in the prototype phase of a study of measuring for lymphedema using electrodes to measure impedance. She still needs 2 or 3 volunteers. The test itself is non-invasive. They use a different measuring tool as a baseline (a perometer), then do the test 3 times using the electrodes. It's completely painless/non-invasive. The purpose of the test is to see if this new device will help to diagnose lymphedema earlier. The device isn't FDA approved for this purpose yet, so you won't find it at most hospitals, but they are beginning to experiment with it at NIH, Stanford and about 1/2 dozen other places. This prototype test is just to see if there's any value in continuing on with the testing process. It takes a time commitment of about 2 1/2 hours total, most of that time is getting through security and "admissions" at the NIH.

She is looking for breast cancer survivors who have completed their treatment, are NED, and have been diagnosed with lymphedema at some point. If you think you meet this criteria and could spend 1/2 a day at NIH, please get in touch with her.

Minal S. Jain, MS, PT, PCS
> >
> > National Institutes of Health
> >
> > Rehabilitation Medicine Dept.
> >
> > Building 10 CRC 1-1469
> >
> > Bethesda, MD 20892
> >
> > Ph: 301-451-7551
> >
> > Fax: 301-480-0669
> >
> > Email:

I did the test yesterday and the hardest part was sitting in admissions for 45 minutes. They even had valet parking. Log in to post a reply

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Jun 8, 2006 07:49AM Binney4 wrote:

Thanks, andy, for taking the day to do this -- for all of us, really. It'd be wonderful if there were a way to measure early stage LE so those likely to be affected can get prompt treatment (and the insurance companies can be held to new standards -- yes!)

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