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Topic: Darleen could use some encouragement!

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Jun 13, 2006 08:46AM

Binney4 wrote:

DARLEEN HAS ANOTHER INFECTION IN HER ARM

Remember in April when Darleen (in Arizona) returned from a trip to CA she'd developed an infection in her arm, which moved rapidly into her bloodstream? She was hospitalized for 4 days at the time. (Her veins made the nurses crazy and they had to call in their specialized Vein Swat Team to manage her IVs. She says it's a bad sign when you get to know the Swat Team by their first names!)

The arm never did get back into control, and lately her hand would turn red when lowered and get better when she raised it. Her PCP sent her with a STAT referral to a vascular surgeon, and she had her appointment yesterday.

Except when she awoke yesterday her forearm had a rash all over it. And while waiting for the v.s. she started to get chills. So when she finally got in she showed her arm to the specialist, who looked at it and said, "Why aren't you wearing your sleeve and glove?" She explained they didn't fit her now that it was so swollen. "Then get fitted for new ones," he says. She explained that she'd been seeing a therapist, wrapping, massaging -- and he told her to quit all that because it "doesn't work for LE." The ONLY thing she should do for LE is wear a sleeve and glove. He's had a total of 4 patients with LE in his career, and all of them wore gloves and sleeves for awhile and it went away. (This is the vascular surgeon, mind you.) In the end, he told her to go see her breast surgeon about the LE, because "she's the one who caused it."

(Do I hear any nominations out there for "Muddleheaded Med Professional of the Year"?!)

She got a prescription from her PCP for Augmentin, is in close touch with her therapist, and has a bag packed and ready for an ER run should it be necessary. So prayers, words of encouragement, and commisseration would all be appreciated. She's still reading here, but obviously can't type at the moment.

Thanks!
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Jun 13, 2006 09:25AM JulieP wrote:

Oh Binney!

Darleen,

Sending you lots of healing vibes and prayers being said that you can push past this latest episode. I am so sorry you are having to deal with LE and a butt (the doc that is).

Peace and Blessings sweetie!
Dx 12/23/2004, DCIS, 2cm, Stage IIIA, 4/26 nodes, ER-/PR-, HER2-
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Jun 13, 2006 09:44AM susanmcm wrote:

Darleen,
I'm so sorry to hear about this. Stupid surgeon. They don't have any common sense classes in medical school, do they. Glad you have your bag packed but I sure hope you don't need it. Praying for the augmentin to do it's job and for you to start feeling better soon. I wish I was there so I could give you a gentle hug.

Susan
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Jun 13, 2006 09:45AM DoreenF wrote:

Darleen - sending gentle hugs and postive healing energy your way ... I cannot believe the Vascular surgeon ... boy oh boy - we need to send Binney or NPat to him and Educate him ... nothing to do but wear your sleeve and glove ... and it will go away.... don't we all wish ...

Darleen - I hope your swelling gets back under control and that you are comfortable soon...

That Vascular Surgeon definitely deserves some type of "award" and not one to be proud of....

Darlene - Hang in there ... So sorry you are having trouble... you're in good hands with your LE therapist ... this condition is sooooo frustrating ...
Gentle Hugs,
Doreen
"Cancer May Leave Your Body, but It Never Leaves Your Life" - Lance Armstrong Foundation Manifesto. Dx 4/18/2005, IDC, <1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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Jun 13, 2006 07:46PM Binney4 wrote:

I talked to Darleen this afternoon and she's still at home, keeping her arm elevated. Yes! The fever is down (though the arm is still warm), the redness which had spread up her arm is receding a little, and she can bend her fingers a bit again (for a moment there her knuckles had clean disappeared!)

Hang in there, Darleen!

Be well, all,
Binney
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Jun 14, 2006 04:16AM jinky wrote:

Darlene we love you and we will get you through this difficult time.Big hugs jinky

age 2, grade 1, 4 chemo, 5 yrs tamoxifen, femara 48mts, preventative mastectomy 2005 Dx 4/30/2002, ILC, 2cm, Stage II, Grade 1, 1/11 nodes, ER+/PR+, HER2-
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Jun 14, 2006 05:09AM inspiewriter wrote:

Sending warm fuzzy thoughts and prayers your way.

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Jun 14, 2006 08:17AM azdarleen wrote:

Hi everyone, I want to thank everyone for they prays and encouragement. I'm doing better, arm and hand are not as red but still pretty swollen, but I have gone 24 hours without a temp, so this is good.It will just take time again. I pray non of my LE sisters ever get an infection. We have no idea how I got this one.
Again thank you all
Lots of LE hugs
Darleen
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Jun 14, 2006 09:01AM DoreenF wrote:

Hi Darleen!! I'm so glad to read that you're doing better - and the infection is responding to the antibiotics. Hope that continues and that you can get the swelling down quickly. Sending lots of healing energy your way ...
LE Hugs,
Doreen
"Cancer May Leave Your Body, but It Never Leaves Your Life" - Lance Armstrong Foundation Manifesto. Dx 4/18/2005, IDC, <1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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Jun 15, 2006 05:32PM roxiesmom wrote:

Darleen, so sorry you are going thru this. That doctor is an idiot. Hang in there, I'm sending prayers for a recovery from the infection. These people simply MUST learn about lymphadema--it's just too hard for us to deal with everything we have to deal with and fight for the correct treatment for the lymphadema, too! susan

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Jun 16, 2006 03:39AM NPat wrote:

I am sooo sorry that you are going through this. I am praying that someone with LE expertise arises in your area. Healing prayers...
Pat
NPat
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Jun 16, 2006 09:21AM AmryAnn47 wrote:

Oh Darlene,
I am so sorry that you have had to experience this but it sounds like you may be "over the hump" now which is wonderful!
Lots of prayers & cyber (((((hugs))))) headed your way!
Mary Ann Dx 4/11/2011, ILC, 1cm, Stage IV, Grade 3, 5/10 nodes, mets, ER+/PR-, HER2-

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