Jun 24, 2006 05:45PM Binney4 wrote:Hi, Fumi,
I hear your frustration, and I'm so sorry. Unfortunately, lymphedema (LE) is something you have to make room for in your life (just like you did for breast cancer), or else it will take more out of your life than you can afford to give. The problem with even a little swelling is that it indicates your lymph system has broken down, and the lymph system is part of the immune system. Any swelling in your arm invites infection, which can quickly become systemic and require time off from your life while you recover in hospital. So basically, you need help.
I think most of us, if we asked our doctors here in the U.S., would not be told what we can do, or how to find a therapist. Our doctors don't know, and apparently yours doesn't either. With LE we have to do a lot of advocating for ourselves. I say that because, no matter what you may have heard, there are many highly-qualified therapists in your country. Here's a web site to help you find them:
When the page comes up, click on the "Therapist Locator" in the center. It will take you to a list of lymphedema therapist schools. Click on the one called "Dr. Vodder School North America." The page that opens will list many countries. Japan is one of them. It lists therapists in the following areas: Aichi-ken, Chiba, Fukyuoka, Hyoga, Hyogo, Kanagawa, Kikuchigun, Nagasaki, Niigata, Oitakea, Okinawa,Saitama, Shizuoka, Tokyo, and Yamagata. I'm not sure where you live, but I sure hope one of those is close to you. Even if it's not, call them or email them and tell them what you need. They should be able to help you.
If not, we sure will do what we can from here, but it's best to see someone with experience and training.
Beyond that, we're all here to help one another with the disappointment and discouragement of LE. Please keep us posted.
Hugs and prayers,