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Apr 19, 2015 08:18PM
Apr 19, 2015 08:20PM
Hi there UCFMOM... my heart feels for you. Walking the path to find answers, and knocking on doctors doors saying please help me feel better is just a wee bit frustrating. Getting yourself to an LE specialist will be helpful. If your arm is painful, but not too swollen there are also some other things you can do - "for self-help":
- no more potatoe chips (a.k.a. reduce your salt content as much as you can), read all labels for salt content - even "pop"
- eat lower histamine foods, try taking Quercetin
- alcohol makes it worse (for me light beer I can drink, wine makes it hurt really bad)
- carry a cross over purse and when you are walking elevate your bad arm (hold onto the cross over strap with your bad hand/arm on the strap like you are protecting yourself)
-sit in chairs with an arm rest and keep your hand up and elbow rested on the arm
- do not sunburn that arm/nor bug bites, be very careful even with paper cuts (do not lick a cut, it can make your lymphedema worse)
Basically try any trick you can to get your arm as pain free as possible. Then keep it in that state for as long as you can to give it a chance to get better. Slowly reintroduce things that may cause it to flare up... and this can take a long while. Mine flares only a couple times a year, and it is always one of the above items that trigger it.
I have been able to get myself to a comfort state. I seldom wear "normal bras", but have found other beautiful things to wear, and in truth I actually like them much better.
Good luck to you my friend, I will be thinking of you and sending you wellness wishes. t9jorda
5/12/2006, IDC, <1cm, Stage IIA, Grade 3, 1/10 nodes, ER-/PR-, HER2-