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All TopicsForum: Lymphedema → Topic: GRRRRRRRRR I HATE LE..........

Topic: GRRRRRRRRR I HATE LE..........

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Oct 15, 2010 04:56AM

Estepp wrote:

EVERYONE can tell I have it... my arm just looks so fat..... I have been to.... and going back to.... therapy..... with a LE specialist... I wrap... I wear compression garments when flying.. exercising... BLAH BLAH BLAH......

I do it all, and I do it right. As a Stylist..... I was told... My job was a good profession to be in as it will help my lymphatic flow.... well....... MY FREAKIN' body... MY personal LE gets MUCH WORSE when I work........

I have to vent this....this is just such an angry spot... such a bad thing.....

If I change the way I dress..... if I do not work in my field...... if if if......................... my LE is ok.

REALLY????????????????????

I pray for a cure for this... I PRAY we all can get NODE replacement SOON... PLEASE allow science to figure out a way to REPLACE our nodes.. SOON.

I would rather have chemo all over again... than deal with LE.

Just a post.... to vent.... for ALL OF US. I do not need a pat on the back here sisters.. I need you ALL to get mad with me....... Post YOUR pain in this trip we call LE.......

We are the Ta Ta Sisterhood! Her2+ BC is what I had.... and yes sisters.. I had lymph node involvement...Plus Radiation AND Implant only Reconstruction. DX 6/25/08
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Feb 23, 2018 01:59AM PVM wrote:

Ladies wanted to ask for your opinion/advice on something. I have not been diagnosed with LE & am doing everything possible to not end up with it even though we don't know whom will or will not develop it regardless of how many nodes are taken. Its bad enough having to worry about the dreaded C reoccurring but also have to worry about developing LE can add a bit of stress. I have been going to the pool to help with my lymph flow as well as doing daily stretches & drinking lots of water & i have my sleeves/glove to use when i exercise, or fly (which i have not yet as im too darn scared to fly but that's another story ) but wanted to ask if getting a PT massage every month is beneficial. I found a wonderful lymphatic clinic & have already booked my 2nd appointment but wanted to know your thoughts on this. Should i just do the self massage myself or am i overdoing it? Im just trying to be proactive but don't want to overdo things if they are not needed. Thanks so much ladies for you advice/opinion

Chemo - FEC D / Tamoxifen / Stage III Dx 3/1/2017, Right, 6cm+, 8/14 nodes, ER+/PR-, HER2- Chemotherapy 4/3/2017 FAC Surgery 10/2/2017 Lymph node removal: Right, Underarm/Axillary Radiation Therapy 11/26/2017 Whole-breast: Breast, Lymph nodes
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Feb 23, 2018 03:05AM MinusTwo wrote:

I wish I had I could have my LEPT do a massage every month or two. Unfortunately she's connected with MD Anderson so every visit has to be approved by the RO. I'll be interested in the answers.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Feb 24, 2018 12:05AM Pamela23 wrote:

PVM--I have slight LE in my arm--only I would know unless I put my arms together and show people the difference. It was bad last year at this time when I started radiation and i was able to have 8 weeks, 2x/week. of lymph drainage massage. It helped tremendously with the cording issue i had but was never completely gone. I do 6-8 minutes of self drainage massage in the morning before I get up. I also make sure I stay hydrated, stay away from junk food (it gets worse when I eat poorly), and wear a sleeve when I exercise 5 days/week. Sometimes, like today, I keep the sleeve on all day. It has definitely gotten better below the elbow. But now I feel like it's accumulated more from the elbow to the shoulder. I just bought a mini trampoline and have used it for about 15 min the past couple nights. My point is, a massage now and then isn't going to cure it (but if your insurance pays for it, the PT can show you how to properly do it on your own). It's a continual process of the body ridding the day's toxins through the lymph system. I think looking up some self massage videos on reputable medical websites would be helpful to do daily. I have also used a dry brush which helped as well as a mini fascia blaster after I shower or bathe.

9/15/2016, IDC, Left, 5mm, Stage IA, Grade 3, ER+/PR+, HER2- Dx 9/15/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 10/6/2016 Lumpectomy: Left Chemotherapy 11/15/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/20/2017
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Feb 24, 2018 03:29PM PVM wrote:

thanks so much for the advise Pamela, i currently do not have LE & like i said am hoping to do whatever possible not to get it. I know unfortunately we have no clue whom will develop it or not so i am trying to be proactive. I am trying to stay hydrated as much as possible as well as doing my stretching but will put in my self drainage massage daily. Its a few minutes of our lives that can help with future issues.

Chemo - FEC D / Tamoxifen / Stage III Dx 3/1/2017, Right, 6cm+, 8/14 nodes, ER+/PR-, HER2- Chemotherapy 4/3/2017 FAC Surgery 10/2/2017 Lymph node removal: Right, Underarm/Axillary Radiation Therapy 11/26/2017 Whole-breast: Breast, Lymph nodes
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Feb 28, 2018 12:19AM Gemini_girl wrote:

I just got the last two of my drainage tubes out today. They were in for three weeks and one was still draining 40-50 mLs about every six hours. All along I was thinking the tube went up into my armpit creating a hotdog shaped lump. Well today I found out that wasn't the case! My PS said to massage it frequently and asked if I wanted to go to PT. I said yes and she wrote me a script. Is this gross disfigurement LE? She acted truly surprised when she saw it? How many more hidden things are there for us to worry about?

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Mar 13, 2018 01:30PM - edited Mar 13, 2018 01:31PM by GmaFoley

Learn from my error in my ways ladies. I hadn't had any swell in years so I got lax wearing my sleeves and gauntlet. Started exercising and gardening without them. I went into the doctor for my yearly check up yesterday, and noticed my elbows were swollen. Doc looked at it and told me, that looks like lymphedema swell - dang, dang, dang. Back in sleeves this morning Shocked

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Mar 13, 2018 04:45PM karentwriter wrote:

Does this sound like lymphedema? I'm starting to freak out a bit. My chemo was stopped early about 2 weeks ago as the possibility of neuropathy was there. I was so excited to be done. I only had three left and this week I start the rads. But my right arm where I had the lumpectomy is starting to bother me and my feet keep swelling if I sit or stand too long. I would get these arm pains throughout chemo but it would eventually go away. It's been about 5 days and it's not getting better. Most tenderness and tightness pain from bicep down to top of hand. And the feet swelling started a couple of days after this. Is this normal? I'm just so scared about what is happening. Has anyone else experienced this?

Dx 9/28/2017, DCIS/IDC, Right, 2cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2- (IHC) Surgery 10/11/2017 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 11/6/2017 AC + T (Taxol) Radiation Therapy 3/15/2018 Breast
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Mar 14, 2018 12:01AM Vargadoll wrote:

Karentwriter- my LE makes my arm feel heavy, tingly and tight at times. The majority of my LE is in my chest/trunk area. I have no swelling in my legs or feet. I didn't have chemo just lumpectomy and 5 weeks of radiation.

Gemini- I had a lump of fluid in my arm pit for MONTHS! After 10 months of PT and OT I feel my armpit in ok shape. I felt like I had a golf ball in there! I also have the flexitouch pump and it has made a huge difference!

"She is clothed with strength and dignity; she can laugh at the days to come" Proverbs 31:25 Dx 12/23/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 2/7/2017 Lumpectomy: Right Radiation Therapy 4/13/2017 Breast Hormonal Therapy Hormonal Therapy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Mar 14, 2018 12:18AM MinusTwo wrote:

Karen: The best thing to do is get to a trained, certified LE physical therapist for an evaluation as soon as possible. The swelling could be LE in your arm and it's not worth waiting. Below is a link with lots of info about LE and how to find a trained therapist that was written with the input from several BCO ladies.

Do you start radiation this week? My RO was the one who caught my LE and sent me to a therapist?

As for your feet, it doesn't seem likely to me if you didn't have any surgery below the waist unless there is some other cause - but it is certainly measure for concern. Are you keeping your feet raised? Have you cut out salt? Could it be from the Taxol still in your system? I'd call the MO and talk about those symptoms. Or run it past your RO if you're in active treatment every day with that doc.

https://www.stepup-speakout.org/

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Apr 6, 2018 09:25PM HomeMom wrote:

Didn't someone mention the Under Armor men's compression t-shirts? I have been looking for them, but I'm not sure what size I should get or if what I'm looking at is the right thing. Has anyone tried these?

Dx 3/31/2014, IDC, 2cm, Stage IIB, Grade 1, 3/29 nodes, ER+/PR+, HER2- Surgery 4/15/2014 Lumpectomy: Left Surgery 5/6/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 5/30/2014 AC Chemotherapy 7/25/2014 Taxol (paclitaxel) Radiation Therapy 10/16/2014 Hormonal Therapy 12/15/2014 Arimidex (anastrozole)
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Apr 7, 2018 08:06AM - edited Apr 7, 2018 01:48PM by hugz4u

homemom. Yes men's not women's due to cut of sleeve. It's called their men’s heatgear tactical compression tee online. It should have no net like insets,some of theirs do. Just four way stretch. just ask for compression. They are about 30 dollars.

Try two sizes smaller and if your tiny buy the boys size. The tightness of holding you in and compression should be able to help you manage swelling if mild. It takes my pain away often. I'm a bigger gal so I look like a stuffed sausage but wear under my cloths when trunk bothers me. If seams bother you wear it inside out.

Edited. I see they have some on sale in their website but limited sizes.

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Apr 7, 2018 03:15PM - edited Apr 7, 2018 03:20PM by HomeMom

Hugs - Thanks! I wear a woman's medium, but I think Men's clothing run larger than women. If I get a small, it might not be tight enough?

Dx 3/31/2014, IDC, 2cm, Stage IIB, Grade 1, 3/29 nodes, ER+/PR+, HER2- Surgery 4/15/2014 Lumpectomy: Left Surgery 5/6/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 5/30/2014 AC Chemotherapy 7/25/2014 Taxol (paclitaxel) Radiation Therapy 10/16/2014 Hormonal Therapy 12/15/2014 Arimidex (anastrozole)
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Apr 8, 2018 12:13AM hugz4u wrote:

Home. See if you can get into the boys size.

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Apr 13, 2018 09:40PM Vargadoll wrote:

I HATE LE! That's all I got!

"She is clothed with strength and dignity; she can laugh at the days to come" Proverbs 31:25 Dx 12/23/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 2/7/2017 Lumpectomy: Right Radiation Therapy 4/13/2017 Breast Hormonal Therapy Hormonal Therapy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Apr 14, 2018 01:22AM tsoebbin wrote:

Ugggghh... It's hard to stay positive but dammit I'm going to! 😎

I am 52 and Love Travel, My Family and Friends, and Life in General! Dx 4/4/2016, DCIS, Left, Stage 0, Grade 2, ER+/PR+ Surgery 5/10/2016 Lumpectomy: Left Dx 5/11/2016, IDC, Left, 1cm, Grade 2, ER+/PR+, HER2- Surgery 6/27/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Right
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Apr 14, 2018 03:41AM ohio4me wrote:

81 today. First really warm day since winter started months ago. Yup, LE reared it's ugly head. It's April and I'm struggling with LE already.

I think I need to move to one of the attic regions.

Dx 3/29/2011, ILC, 5cm, Stage IIIC, Grade 2, 14/15 nodes, ER+/PR+, HER2- Surgery 7/10/2011 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 8/28/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/22/2012 Surgery 7/22/2012 Prophylactic mastectomy: Left
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Apr 14, 2018 09:34PM - edited Apr 14, 2018 09:35PM by hugz4u

ohio. Yes hot days take a toll on me too. I just want to rip my sleeve off in frustration as it's so uncomfortable. Have a spray bottle of water ready and spray that sleeve when it's real hot.It really cools it. Just don't keep it damp all day cause that's not good either. Oh BTW I really hate LE. I’ve accepted it but it doesn’t mean I have to love it. Grrrrrr le.

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Apr 15, 2018 03:36AM Scottiemom11 wrote:

I really hate LE at the moment. I have been fighting constant nerve pain which gets worse when I swell and while I have sleeves and gaultlets that I wear as needed, the worst of the pain is truncal. I do not have a good chest compression garment. Today I was on a one hour flight up north and have been suffering truncal nerve pain since a couple of hours after we landed, despite wearing my sleeves. This is soooo frustrating and I fly back tomorrow so I'm afraid it will just get worse.

I'm going to have to make this trip every few months to visit my mother who has Alzheimers. What can I do?

Scottie

Diagnosed at age 48. Oncotype DX 11. BRCA Neg. Additional Therapy: Lupron & Gabapentin 2/5/15. . .Truncal Lymphedema 9/2/16. . .Capsular Contracture 2/10/17. . .Writer, photographer, mother of two autistic children. Vegetarian and Gluten-Free Dx 10/10/2014, ILC, Right, <1cm, Grade 2, ER+/PR+, HER2- (FISH) Dx 12/3/2014, ILC, Right, 1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2- (FISH) Dx 12/3/2014, LCIS, Both breasts, 0/4 nodes, ER+/PR+, HER2- (FISH) Surgery 12/3/2014 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 12/30/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 7/26/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 3/19/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Apr 15, 2018 04:32AM Vargadoll wrote:

I'm new at the LE game. My truncal LE is the worst. What helps me most is the chip bag or swell spot whatever you want to call it and the bellisse bra. I wear them everyday.

"She is clothed with strength and dignity; she can laugh at the days to come" Proverbs 31:25 Dx 12/23/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 2/7/2017 Lumpectomy: Right Radiation Therapy 4/13/2017 Breast Hormonal Therapy Hormonal Therapy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Apr 15, 2018 04:54AM MinusTwo wrote:

I'm fortunate that my LE has not extended to my arms - only breast & truncal. I wear a Belisse bra whenever I fly - in addition to sleeves & gauntlets. The other 24 hours a day I wear a Wear Ease Sydney compression bra - Style 970. Literally, I only take if off when I shower or to change to a clean one. I even wear one underneath my bathing suit for water aerobics. And yes, I too use chip bags & swell spots.

Others may chime in about compression shirts. Look back to 4/7 to see Hugz comments about Under Armor. Wear Ease has some. There is also a shirt that was created with input from BCO members but I can't recall the name or link just now.

Good luck finding compression that works for you.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Apr 15, 2018 05:02AM MinusTwo wrote:

Here is the link for the other shirt. A number of women have raved about it.

http://www.gotravelwear.com/shop/womens-compressio...

And here is the Wear Ease link

https://www.wearease.com/



2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Apr 15, 2018 02:42PM Scottiemom11 wrote:

minustwo

Thanks for reposting the shirt link. I ordering one when I get home and will fly with it next time. Hopefully that will help the nerve pain.

Scottie

Diagnosed at age 48. Oncotype DX 11. BRCA Neg. Additional Therapy: Lupron & Gabapentin 2/5/15. . .Truncal Lymphedema 9/2/16. . .Capsular Contracture 2/10/17. . .Writer, photographer, mother of two autistic children. Vegetarian and Gluten-Free Dx 10/10/2014, ILC, Right, <1cm, Grade 2, ER+/PR+, HER2- (FISH) Dx 12/3/2014, ILC, Right, 1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2- (FISH) Dx 12/3/2014, LCIS, Both breasts, 0/4 nodes, ER+/PR+, HER2- (FISH) Surgery 12/3/2014 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 12/30/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 7/26/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 3/19/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Apr 15, 2018 05:46PM Vargadoll wrote:

MinusTwo- I like my Wear Ease for the day time to. If I am going to be really active (running, walking or zumba) I wear the bellisse. It just keeps the girls from moving at all. My DH put a pool in at our house last summer but due to installation issues it had to be drained 3 times and refilled. The water never got warm enough for me to put my LE self in it. I did one time when the water was barely 70 and my LE blew up! This year I hope to get to enjoy it as much as the grandkids did! I was wondering what to do with the LE boob! When we have guest I can not wear the bra but when it's just us I might steal you idea! Thanks-

Teresa

"She is clothed with strength and dignity; she can laugh at the days to come" Proverbs 31:25 Dx 12/23/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 2/7/2017 Lumpectomy: Right Radiation Therapy 4/13/2017 Breast Hormonal Therapy Hormonal Therapy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Apr 15, 2018 07:26PM MinusTwo wrote:

Vargadoll - I bought the fushia Sydney bra and found a black bathing suit that just happened to have fushia trim. No one even looks twice!!!

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Apr 16, 2018 11:25PM Vargadoll wrote:

I love the Sydney bra! I have been looking at it for a month!

Hugz and Minustwo- what is your opinion on popping cords? I am getting some cording in my arm pit again. I wonder of it has anything to do with me not wearing my night garment. My night garment was sent off to be taken up. It' always "rode up" at night and my PT had me refitted.

"She is clothed with strength and dignity; she can laugh at the days to come" Proverbs 31:25 Dx 12/23/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 2/7/2017 Lumpectomy: Right Radiation Therapy 4/13/2017 Breast Hormonal Therapy Hormonal Therapy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Apr 16, 2018 11:45PM MinusTwo wrote:

Varga - my LEPT massaged away/popped my cords when I first started PT. Luckily I haven't had them return & I don't know the answer. Sorry you're having to deal with this.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Apr 17, 2018 01:09AM ohio4me wrote:

Hugs. Its been 7 years. I still hate LE. I call my LE arm Little Martha. She deserves a name cuz she has life her own and impacts mine way too much!

Oh well. I can still hug family so all is well.

Dx 3/29/2011, ILC, 5cm, Stage IIIC, Grade 2, 14/15 nodes, ER+/PR+, HER2- Surgery 7/10/2011 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 8/28/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/22/2012 Surgery 7/22/2012 Prophylactic mastectomy: Left
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Apr 17, 2018 02:56AM Vargadoll wrote:

MinusTwo - my OT said popping them was a bad. PT always popped the ones I couldn't get. I can do pop them or my DH can...I taught him how. The cording hasn't been an issue for months. The only change had been the missing night garment. I wish now I had asked the OT why it wasn't a good idea. I'm a little embarrassed to admit that I'm actually a COTA. I never dreamed I'd be dealing with lymphedema! I probably would have taken some CEUs on LE! My strong area is early intervention and Peds.

"She is clothed with strength and dignity; she can laugh at the days to come" Proverbs 31:25 Dx 12/23/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 2/7/2017 Lumpectomy: Right Radiation Therapy 4/13/2017 Breast Hormonal Therapy Hormonal Therapy Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Apr 17, 2018 07:18AM Binney4 wrote:

Vargadoll, the concern with "popping" the cords is that some research has shown them to be thrombosed lymph vessels, and popping them might damage them, whereas massaging them gently into submission is less likely to cause damage and will allow them to get back to work without having to heal. The point being that the less damage we do to our lymphatics, the better.

Please don't be embarrassed about what you were never taught--you are hardly alone in having learned little or nothing about LE treatment. It is a specialized field and quite different from other forms of therapy. In fact, in some ways it's even counter-intuitive! Congrats to you on the COTA training you've already had. Now the LE will be of special interest to you, and you'll be a huge help to the OTs you come in contact with, who also learned little or nothing about it. You're in a great position to make a positive difference for all of us!

Hugs,
Binney

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Apr 17, 2018 11:29AM vampeyes wrote:

Hey all,

I didn't get LE, but I did have this huge seroma (collection of lymph fluid) that developed at the incision site. I had the doctor drain it 3 times and it would instantly fill back up with a horrid smell. Anyway a friend gave me a bottle of her homemade Peri Spray, you can google some recipes or talk to her about it on Facebook (Healthy Nut Natural). So I sprayed the spot and continued to do so everyday and within days it was gone and thankfully has not returned. I don't know if it will help with LE, but it's worth a try.

Cheryl

Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/17/2017 Lumpectomy: Left Surgery 11/14/2017 Lumpectomy: Left Radiation Therapy 1/28/2018 Whole-breast: Breast Hormonal Therapy 2/28/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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