Mar 9, 2012 12:12AM Estel wrote:

Thank you all for your comments on the pressure issue.  I just now had the opportunity to watch the video that Binney4 posted on the last page.  It wouldn't work on my Mac.  All I can say is "Wow."  I need to watch it a couple of more times to comprehend everything (didn't get the best grades in Physics! ) But I found it really, really helpful.  I had no idea that pressure was that big of a deal.  

I've since learned that while the big tornado was about 20 miles east ... about 5 miles south we had an EF2 tornado.  So the pressure change had to be crazy.  One of the things that I didn't understand in the video was if the pressure is less the further up you go in elevation ... does less pressure make us swell more?  So we need tighter compression the higher in elevation ... ??? Sorry for the stupid questions ....

The last frontier in my LE world is flyiing.  I am so, so scared to fly.  My arm so badly the night of the storm ...If I was that affected pain-wise in severe storms what would it be like if I flew?  Once I can get back to a therapist and learn to wrap I'll feel better about it.  Until then I've grounded myself.    It's not worth it to me.  

Thanks again, Binney for posting that video.  It was really, really helpful.   

And thank you to all of you who took the time to respond.  You all are my LE lifeline.   

Mar 9, 2012 07:18AM julee_stayin_strong wrote:

I have punched myself probably 10 times!!! LMAO I feel like an idiot!!!

Mar 9, 2012 04:13PM carol57 wrote:

Julee, A while back, I did a google search to see if I might find LE garment resources around the country.  I found about thirty, and just by googling. I just checked my list, and unfortunately none are funds specifically in Oregon, but that does not mean this does not exist.  One strategy is to call your regional Susan G. Komen for the Cure chapter and ask them if they have funded any lymphedema clinics or hospitals for compression items and LE treatment.  When I was searching, I found quite a few press releases announcing these awards.  One LE clinic in my area has been funded to help 30 or so women each year.

Also check out the NLN's garment fund, which has a 'catch' to it, but still worth investigating. The catch is that you need to apply for garment assistance through a clinic or therapist who is a NLN member, so that's the first question to ask of your therapist.

And here's a long shot: in Washington, MultiCare Health Foundation has a Breast Health Assistance Fund.  By any chance is this a multi-state organization that might also be affiliated with a hospital or LE clinic in your area?

I really was surprised to find evidence of garment and LE help in 21 states, plus several resources in Canada and in Australia.  I did not verify any of it by calling or emailing, just made a list of what I found.  As you learned, some resources may be out of funding.  But I think that hospitals and other providers may have resources they do not generally advertise--worth making a lot of phone calls, no?

I posted my garment-fund list online, through Google Docs.  It is visible to anyone with this link:

https://docs.google.com/spreadsheet/ccc?key=0AtSa_oHjzz_8dE02eTZUV3Y3ZVVBR2JaRVJGT3BCNFE#gid=0

If you find a resource in Oregon, (and I hope that you do!!), post it here and I'll add it to the list I'm keeping. Also, anyone looking at this who checks out the list--if you find a source does not exist or is out of funding, post or PM me with the info and I will update the list.

Good luck, Julee...it really is mortifying how expensive the sleeves and all the other LE claptrap are.

Carol

Mar 12, 2012 07:43AM onward wrote:

Good Morning All. Yesterday my oldest son Max asked his girlfriend to marry him and she said YES! Now how can I post a picture of her?????

Mar 12, 2012 09:35AM carol57 wrote:

Onward, Wow, what a wonderful report!  Isn't it fabulous when such great life events focus our attention on a wonderful future, instead of the crappy past that brings us all together here?  Bask in it!

Carol