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Mar 9, 2012 04:13PM
Julee, A while back, I did a google search to see if I might find LE garment resources around the country. I found about thirty, and just by googling. I just checked my list, and unfortunately none are funds specifically in Oregon, but that does not mean this does not exist. One strategy is to call your regional Susan G. Komen for the Cure chapter and ask them if they have funded any lymphedema clinics or hospitals for compression items and LE treatment. When I was searching, I found quite a few press releases announcing these awards. One LE clinic in my area has been funded to help 30 or so women each year.
Also check out the NLN's garment fund, which has a 'catch' to it, but still worth investigating. The catch is that you need to apply for garment assistance through a clinic or therapist who is a NLN member, so that's the first question to ask of your therapist.
And here's a long shot: in Washington, MultiCare Health Foundation has a Breast Health Assistance Fund. By any chance is this a multi-state organization that might also be affiliated with a hospital or LE clinic in your area?
I really was surprised to find evidence of garment and LE help in 21 states, plus several resources in Canada and in Australia. I did not verify any of it by calling or emailing, just made a list of what I found. As you learned, some resources may be out of funding. But I think that hospitals and other providers may have resources they do not generally advertise--worth making a lot of phone calls, no?
I posted my garment-fund list online, through Google Docs. It is visible to anyone with this link:
If you find a resource in Oregon, (and I hope that you do!!), post it here and I'll add it to the list I'm keeping. Also, anyone looking at this who checks out the list--if you find a source does not exist or is out of funding, post or PM me with the info and I will update the list.
Good luck, Julee...it really is mortifying how expensive the sleeves and all the other LE claptrap are.