Topic: GRRRRRRRRR I HATE LE..........

Forum: Lymphedema — Talk with other about how to lower your risk of lymphedema and how to manage it if you've been diagnosed.

Posted on: Oct 14, 2010 10:56PM

Posted on: Oct 14, 2010 10:56PM

Estepp wrote:

EVERYONE can tell I have it... my arm just looks so fat..... I have been to.... and going back to.... therapy..... with a LE specialist... I wrap... I wear compression garments when flying.. exercising... BLAH BLAH BLAH......

I do it all, and I do it right. As a Stylist..... I was told... My job was a good profession to be in as it will help my lymphatic flow.... well....... MY FREAKIN' body... MY personal LE gets MUCH WORSE when I work........

I have to vent this....this is just such an angry spot... such a bad thing.....

If I change the way I dress..... if I do not work in my field...... if if if......................... my LE is ok.

REALLY????????????????????

I pray for a cure for this... I PRAY we all can get NODE replacement SOON... PLEASE allow science to figure out a way to REPLACE our nodes.. SOON.

I would rather have chemo all over again... than deal with LE.

Just a post.... to vent.... for ALL OF US. I do not need a pat on the back here sisters.. I need you ALL to get mad with me....... Post YOUR pain in this trip we call LE.......

We are the Ta Ta Sisterhood! Her2+ BC is what I had.... and yes sisters.. I had lymph node involvement...Plus Radiation AND Implant only Reconstruction. DX 6/25/08
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Mar 13, 2012 09:40AM ktym wrote:

Congratulations Onward.

 Down LE day for me today. One of my colleagues expresed an opinion about establishing workflow to get around things I'm not doing because of the LE and I totally got my feelings hurt. Can't blame them, just hate the reminder. Down with LE for sure.

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Mar 13, 2012 09:47AM kira wrote:

Kate: You're too kind: I actually DO blame them--get real, we age, we acquire disabilities, you're not shirking your duties, you have physical limitations. 

You are a dedicated, hard worker and it totally ticks me off that you got your feelings hurt. 

LE sucks/stinks/rots--and why the heck does it feel so shameful??? (to me, that is)

You are amazing, and any contribution you make to your workplace enhances them.

Kira

Knowledge is the antidote to fear, Ralph Waldo Emerson Dx 5/10/2008, IDC, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Mar 13, 2012 11:40AM BetsyBuzz wrote:

I occasionally lurk on this thread due to mild LE in my arm and trunk after rads. I got lots of good info re: truncal LE (something I wasn't aware of before the dang dx).  Now I have a different LE issue. I recently had a total hysto due to endometrial cancer dx. and now I have leg LE. I have an appt with my LE therapist on Friday. I was wondering if anyone has any suggestions to assist me on this front until my appt. I had an ultrasound last week to make sure it wasn't a blood clot due to the fact I'm on tamox. and it came on suddenly. TG it was neg. So now I need to learn to manage three spots on my body. It's only on one leg, and thankfully it's on the opposite side as my arm and chest problems. But ....GGRRRR

Any thoughts?

Lumpectomy 2009, Chemo AC/T, Rads, Tamox 3yrs, Endometrial CA 2011,TLH Dx 2/24/2009, IDC, 2cm, Stage IIB, Grade 3, 1/2 nodes, ER+/PR+, HER2-
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Mar 13, 2012 01:22PM ktym wrote:

Aww, thanks Kira. I dont know why it seems so shameful. Maybe because we keep it wrapped and "hidden", sign of weakness, not sure, but totally get that feeling too

Oh Betsy that just sucks. I'm sorry to hear that

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Mar 13, 2012 03:15PM kira wrote:

Kate, great explanation of the shame. Wish it wasn't so, but it is, for me.

Betsy, quite a number of women on this forum have developed leg LE as well--likely some genetic predisposition. I bumped a thread for you, but I think there were posts about it in this thread. I guess you should elevate and consider compression stockings.

And last, but not least: IT'S BINNEY'S BIRTHDAY!!!! 

Happy Birthday Binney--your kindness and generosity have touched all of us. Hope you're doing something very, very chocolate.

Kira

Knowledge is the antidote to fear, Ralph Waldo Emerson Dx 5/10/2008, IDC, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Mar 13, 2012 03:22PM 3jaysmom wrote:

happy birthdayhappy birthday: BINNEY!!!!3jays
3jaysmom Chemotherapy 4/21/2009 Dx DCIS, 2cm, Stage IIB, 1/27 nodes, ER-/PR+, HER2-
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Mar 13, 2012 03:25PM 3jaysmom wrote:

onward:just go to photobucket, sign up. then, there's a part you'll see that says "download from your computer.. it sends you to you puter.. click select, and it'll put in in a folder on photobucket. then, click on the picture, and do "copy" come back to bco and click paste. it'll ask you a couple of times to allow acess, hit that 203 times.. that'll do it!!!

  congratulations, now, we want to see the picture!!!!!3jays

3jaysmom Chemotherapy 4/21/2009 Dx DCIS, 2cm, Stage IIB, 1/27 nodes, ER-/PR+, HER2-
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Mar 13, 2012 03:37PM Christine5 wrote:

Happy Birthday Binney you make a difference in so many people's lives! Thank you!

Dx 11/24/2010, ILC, 1cm, Stage I, Grade 2, 0/13 nodes, ER+/PR+, HER2-
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Mar 13, 2012 03:37PM Christine5 wrote:

203 times! Hysterical!

Dx 11/24/2010, ILC, 1cm, Stage I, Grade 2, 0/13 nodes, ER+/PR+, HER2-
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Mar 13, 2012 04:23PM carol57 wrote:

BINNEY, you've been holding out on us!!!!  It's always wonderful to have a reason to celebrate, and your birthday most surely deserves some balloon launching and confetti tossing!

Carol

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