Topic: GRRRRRRRRR I HATE LE..........

Forum: Lymphedema — Talk with other about how to lower your risk of lymphedema and how to manage it if you've been diagnosed.

Posted on: Oct 14, 2010 07:56PM

Posted on: Oct 14, 2010 07:56PM

Estepp wrote:

EVERYONE can tell I have it... my arm just looks so fat..... I have been to.... and going back to.... therapy..... with a LE specialist... I wrap... I wear compression garments when flying.. exercising... BLAH BLAH BLAH......

I do it all, and I do it right. As a Stylist..... I was told... My job was a good profession to be in as it will help my lymphatic flow.... well....... MY FREAKIN' body... MY personal LE gets MUCH WORSE when I work........

I have to vent this....this is just such an angry spot... such a bad thing.....

If I change the way I dress..... if I do not work in my field...... if if if......................... my LE is ok.

REALLY????????????????????

I pray for a cure for this... I PRAY we all can get NODE replacement SOON... PLEASE allow science to figure out a way to REPLACE our nodes.. SOON.

I would rather have chemo all over again... than deal with LE.

Just a post.... to vent.... for ALL OF US. I do not need a pat on the back here sisters.. I need you ALL to get mad with me....... Post YOUR pain in this trip we call LE.......

We are the Ta Ta Sisterhood! Her2+ BC is what I had.... and yes sisters.. I had lymph node involvement...Plus Radiation AND Implant only Reconstruction. DX 6/25/08
Log in to post a reply

Page 331 of 993 (9,928 results)

Log in to post a reply

Mar 13, 2012 07:26PM garnet131 wrote:

Best Birthday Wishes, Binney.  Hope it's been a lovely day for you!

Garnet Dx 3/7/1995, Left, 2cm, Stage IIA, 19/23 nodes, ER+, HER2+ Surgery 3/18/1995 Lymph node removal: Left; Mastectomy: Left; Reconstruction (left): Free TRAM flap Chemotherapy 5/6/1995 AC + T (Taxol) Hormonal Therapy 10/14/1995 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 10/3/2017, Stage IV, metastasized to bone/lungs, ER+/PR+ Hormonal Therapy 10/5/2017 Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
Log in to post a reply

Mar 13, 2012 07:30PM Estel wrote:

Happy, happy birthday, Binney!

You're such a gift and blessing to so many of us here!

Hope your day was filled with joy and yes, lots and lots of chocolate!

Blessings and love, dh.

BMX 2/2010 with immediate reconstruction. Exchanged with silicone implants 7/2010. Diagnosed with LE 9/2010 Dx 9/2009, DCIS, Stage 0, Grade 2, 0/2 nodes, ER+/PR+, HER2-
Log in to post a reply

Mar 13, 2012 07:32PM - edited Mar 13, 2012 07:33PM by olearca

Happiest of birthdays and batches of brownies to YOU!!!!

Happy happy day of celebration and a wonderful year ahead.

~Catherine

Multifocal DCIS and LCIS, both breasts.
~Catherine: Multi-focal high grade DCIS, LCIS.Micromets 1 node, NSBMx 6/2/11, Lymphedema 8/11, Reconstruction/Exchange 10/27/11
Log in to post a reply

Mar 13, 2012 07:36PM ktym wrote:

Happy Birthday Binney!

Log in to post a reply

Mar 13, 2012 07:51PM KittyDog wrote:

Happy Birthday Benny!

4 rounds of AC, 3 rounds of Taxol, UMX 3-29-10, 34 rounds of radiation.finished 7-2-10, ooph & hysterectomy 10-25-10, tamoxifen, femara now on to arimidex, Lymphedema arm, trunk, legs and now my neck...grrr Dx 11/24/2009, IDC, 6cm+, Stage IIIB, Grade 2, 1/5 nodes, ER+/PR+, HER2-
Log in to post a reply

Mar 13, 2012 07:58PM KittyDog wrote:

Betsy Buzz...I developed LE in my legs after my hysterectomy.  I just started treatment in Jan. While you wait elevated those legs.  I  did two weeks of LE treatment and almost four weeks of it being wrapped before my compression socks came in.  It was overwhelming having to learn more stuff but I think I finally have it down.  Now to get the exercise part down.

 My leg is a wee bit puffy today along with the top of my arm.  Tomorrow I see the ortho Dr. finally about my trigger fingers.  I have hit the point and ready to take that risk.  Praying for shots tomorrow but if he says surgery...my answer is ASP.  I can no longer pick up anything with out pain.  The thumbs are staying locked in weird positions to the point it wakes me up at night.  Fingers crossed no added swelling for whatever he does tomorrow.

4 rounds of AC, 3 rounds of Taxol, UMX 3-29-10, 34 rounds of radiation.finished 7-2-10, ooph & hysterectomy 10-25-10, tamoxifen, femara now on to arimidex, Lymphedema arm, trunk, legs and now my neck...grrr Dx 11/24/2009, IDC, 6cm+, Stage IIIB, Grade 2, 1/5 nodes, ER+/PR+, HER2-
Log in to post a reply

Mar 14, 2012 08:32AM KittyDog wrote:

Okay any help is graciously appreciated.  I will be having surgery in about two weeks on my LE side.  He want do both hands at one time and since my right hand is the hand I use the most I want to do it first.  I want be able to use my hand for a week and then another two weeks at less than 10 pounds.  Which means I can't do my MLD nor put my compression socks on.  What do I do in the mean time?  I feel sure I can manage to get my sleeve on since I don't use that hand anyway.  It will all depend on any swelling though with having to stretch the small part of the lower arm and wrist area of the sleeve over the hand.  Did that make any sense.  lol 

Oh and of course the thumb that was locked up all last week and had my thumb swollen was unlocked this morning and wouldn't lock for him...and yes as soon as I got in the car and cranked it up it locked up.  

4 rounds of AC, 3 rounds of Taxol, UMX 3-29-10, 34 rounds of radiation.finished 7-2-10, ooph & hysterectomy 10-25-10, tamoxifen, femara now on to arimidex, Lymphedema arm, trunk, legs and now my neck...grrr Dx 11/24/2009, IDC, 6cm+, Stage IIIB, Grade 2, 1/5 nodes, ER+/PR+, HER2-
Log in to post a reply

Mar 14, 2012 12:07PM KS1 wrote:

A silver lining of being a member of this Swell club ... no need for plastic surgery for saggy, wrinkly hand skin.

The New York TImes had a piece on the newest craze in plastic surgery ...

http://www.nytimes.com/2012/03/15/fashion/Skin-Deep-Treating-Hands-for-Signs-of-Aging.html?_r=1&ref=health

Comparing the before and after pictures, I'd say the woman should cut down on the doritos and do some MLD :) KS

Log in to post a reply

Mar 14, 2012 01:18PM carol57 wrote:

KS, what a hoot. Thanks for posting, especially your doritos diagnosis.

Log in to post a reply

Mar 14, 2012 07:10PM - edited Mar 14, 2012 07:11PM by BetsyBuzz

KittyDog,

So sorry to hear your story but I can finally relate to someone else. Surgery scares the begebes out of me these days. Seams like every time I go under the knife I develop another SE. Do you know if the LE was caused because during your ooph & hysto they removed more lymph-nodes? I asked my GYN onc prior to surgery if he takes more nodes please focus on the opposite side as my LE arm and trunk. He said he did, now I have LE on the leg he focused on but I know he took nodes on both sides and it scares me about my other leg too.Only two days before my LE assessment, I can hardly wait. I've been elevating it, I don't have anything with salt in it and drinking lots of fluids. I'm hesitant to get compression until I know exactly what I need. Thank you so much for writing.

I'm sorry that you are facing more surgery. My mom had issue with her legs (diabetes) and she had a tool that helped her put her socks on but I'm not sure if it would help with compression garments. You might call your LE specialist to see if there are any tricks that you could use or if there are any occupational therapists that might be able to help you. Sending you positive thoughts, hugs and strength.

Betsy 

Lumpectomy 2009, Chemo AC/T, Rads, Tamox 3yrs, Endometrial CA 2011,TLH Dx 2/24/2009, IDC, 2cm, Stage IIB, Grade 3, 1/2 nodes, ER+/PR+, HER2-

Page 331 of 993 (9,928 results)

Scroll to top button