Lymphedema is swelling that can develop in the arm, hand, breast, or torso as a side effect of breast cancer surgery and/or radiation therapy. Lymphedema can appear in some people during the months or even years after treatment ends.
Lymphedema usually develops slowly, and you may feel an unusual sensation — such as tingling or numbness — that comes and goes before any visible swelling occurs. Other symptoms include achiness, feelings of fullness or heaviness, puffiness or swelling, and decreased flexibility in the hand, arm, chest, breast, or underarm areas. Tell your doctor if you experience any of these symptoms. Early treatment of lymphedema is important.
Intro medically reviewed by: Brian Wojciechowski, M.D.
Last review date: November 22, 2020
Posted on:
Oct 14, 2010 10:56PM
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Estepp
wrote:
EVERYONE can tell I have it... my arm just looks so fat..... I have been to.... and going back to.... therapy..... with a LE specialist... I wrap... I wear compression garments when flying.. exercising... BLAH BLAH BLAH......
I do it all, and I do it right. As a Stylist..... I was told... My job was a good profession to be in as it will help my lymphatic flow.... well....... MY FREAKIN' body... MY personal LE gets MUCH WORSE when I work........
I have to vent this....this is just such an angry spot... such a bad thing.....
If I change the way I dress..... if I do not work in my field...... if if if......................... my LE is ok.
REALLY????????????????????
I pray for a cure for this... I PRAY we all can get NODE replacement SOON... PLEASE allow science to figure out a way to REPLACE our nodes.. SOON.
I would rather have chemo all over again... than deal with LE.
Just a post.... to vent.... for ALL OF US. I do not need a pat on the back here sisters.. I need you ALL to get mad with me....... Post YOUR pain in this trip we call LE.......
We are the Ta Ta Sisterhood! Her2+ BC is what I had.... and yes sisters.. I had lymph node involvement...Plus Radiation AND Implant only Reconstruction. DX 6/25/08
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edj3
Leawood, Kansas
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Sep 9, 2019 01:10PM
- edited
Sep 9, 2019 01:12PM
by
edj3
Oh that's pretty!
Here's the one I wore today:

Tried the tamoxifen, no thanks.
Dx
4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC)
Dx
5/6/2019, LCIS, Left, <1cm, 0/1 nodes
Surgery
5/6/2019 Lumpectomy; Lymph node removal: Sentinel
Radiation Therapy
6/3/2019 Whole-breast: Breast
Hormonal Therapy
9/23/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Vargadoll
NC
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Sep 9, 2019 06:14PM
- edited
Sep 9, 2019 07:44PM
by
Vargadoll
Edj3- that's beautiful!! Is it a Lymphedivas? I check the website everyday for the discount seconds. Ya never know what you will find! The sleeves aren't compromised in structure it's just a dye lot issue or possibly a slip in the pattern. So far all of mine have been unnoticeable! And they are $32.50- $44.00 a nice saving!
"She is clothed with strength and dignity; she can laugh at the days to come" Proverbs 31:25
Dx
12/23/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2-
Surgery
2/7/2017 Lumpectomy: Right
Radiation Therapy
4/13/2017 Breast
Radiation Therapy
Whole-breast: Breast, Lymph nodes, Chest wall
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Hormonal Therapy
edj3
Leawood, Kansas
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Sep 9, 2019 07:10PM
edj3
wrote:
No, it's Juzo. I liked the Lympediva ones a lot but they don't come in the size I need (super small, long length). I was bummed :(
Tried the tamoxifen, no thanks.
Dx
4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC)
Dx
5/6/2019, LCIS, Left, <1cm, 0/1 nodes
Surgery
5/6/2019 Lumpectomy; Lymph node removal: Sentinel
Radiation Therapy
6/3/2019 Whole-breast: Breast
Hormonal Therapy
9/23/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Vargadoll
NC
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Sep 9, 2019 07:46PM
Vargadoll
wrote:
Juzo is the one in should be wearing with all the lifting I do. I only wear the lymphedivas when I'm not pushing my girl or lifting her. 😜
"She is clothed with strength and dignity; she can laugh at the days to come" Proverbs 31:25
Dx
12/23/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2-
Surgery
2/7/2017 Lumpectomy: Right
Radiation Therapy
4/13/2017 Breast
Radiation Therapy
Whole-breast: Breast, Lymph nodes, Chest wall
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Hormonal Therapy
mammalou
CA
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Sep 9, 2019 10:03PM
mammalou
wrote:
I like your sleeve! I am going to have to get more brave. I’ve contemplated wearing a sleeve on each arm so it just looks like a long sleeve shirt. Lol!
DX 12/2018 ADH right breast
Dx
1/11/2011, IDC, Left, 3cm, Stage IIIB, Grade 2, 1/9 nodes, ER+/PR-, HER2- (FISH)
Surgery
1/11/2011 Lumpectomy: Left
Chemotherapy
3/2/2011 AC
Surgery
5/13/2011 Mastectomy: Left; Reconstruction (left): Tissue expander placement
Radiation Therapy
6/16/2011 Whole-breast: Breast, Lymph nodes, Chest wall
Hormonal Therapy
7/29/2011 Arimidex (anastrozole), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
6/13/2012 Reconstruction (left): Silicone implant
Surgery
6/26/2013 Reconstruction (left): DIEP flap
mammalou
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Sep 13, 2019 08:15PM
mammalou
wrote:
I just received my sleeve in the mail. How tight should this be? Is it ok to see indentions where the band is
DX 12/2018 ADH right breast
Dx
1/11/2011, IDC, Left, 3cm, Stage IIIB, Grade 2, 1/9 nodes, ER+/PR-, HER2- (FISH)
Surgery
1/11/2011 Lumpectomy: Left
Chemotherapy
3/2/2011 AC
Surgery
5/13/2011 Mastectomy: Left; Reconstruction (left): Tissue expander placement
Radiation Therapy
6/16/2011 Whole-breast: Breast, Lymph nodes, Chest wall
Hormonal Therapy
7/29/2011 Arimidex (anastrozole), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
6/13/2012 Reconstruction (left): Silicone implant
Surgery
6/26/2013 Reconstruction (left): DIEP flap
HersheyKiss…
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359
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Sep 14, 2019 09:30AM
HersheyKiss
wrote:
Lou, the sleeve should be a snug fit.
My Juzo sleeve has a wristband construction. It sometimes leaves a slight depression in the skin there. My LympheDIVA sleeve has no wristband, so there is not a depression.
Dx
3/1/2017, ILC, Left, 2cm, Grade 1, 3/16 nodes, ER+/PR+, HER2-
MinusTwo
Houston, TX
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Sep 14, 2019 02:04PM
MinusTwo
wrote:
But ... it's a good questions. I don't think a sleeve should leave an indentation ?????
My Juzos have a band at the top & none at the wrist. Occasionally I'll have a depression on my thumb from the gauntlets if I use my hand too much.
2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
mammalou
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Oct 10, 2019 10:17PM
mammalou
wrote:
I wore my nighttime garment for the first time last night. It was difficult to get on! I woke up with what looked like protruding veins running up and down my arm. Is that how it should look
DX 12/2018 ADH right breast
Dx
1/11/2011, IDC, Left, 3cm, Stage IIIB, Grade 2, 1/9 nodes, ER+/PR-, HER2- (FISH)
Surgery
1/11/2011 Lumpectomy: Left
Chemotherapy
3/2/2011 AC
Surgery
5/13/2011 Mastectomy: Left; Reconstruction (left): Tissue expander placement
Radiation Therapy
6/16/2011 Whole-breast: Breast, Lymph nodes, Chest wall
Hormonal Therapy
7/29/2011 Arimidex (anastrozole), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
6/13/2012 Reconstruction (left): Silicone implant
Surgery
6/26/2013 Reconstruction (left): DIEP flap
HersheyKiss…
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359
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Feb 24, 2021
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Oct 13, 2019 10:22AM
HersheyKiss
wrote:
Lou, I've not experienced something like you describe. My nighttime garment is snug, but not nearly as snug as a daytime sleeve.
Perhaps snap a picture or two and send to your LE specialist for his/her advice.
Dx
3/1/2017, ILC, Left, 2cm, Grade 1, 3/16 nodes, ER+/PR+, HER2-
cwins1218
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Feb 17, 2021
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Oct 13, 2019 09:51PM
cwins1218
wrote:
Hi everyone,
I'm so emotional..I never knew about lymphedema. I had a crap BS. My plastics team has been great but they didn't take the nodes, my BS did. She seemed to be upset that I decided to have a bmx with a DCIS stage 0 diagnosis. But I decided it after 6 months of taking tamoxifen, doing a ton of tests and wanting the most absolute assurance I could get to be cancer free. She really focused on telling me how bad a bmx would be over a lumpectomy. All the while I could have had lymphedema either way and she never once explained this possibility to me. and now I believe I do have it! I thank you all..reading these posts have helped me. She took close to 10 on one side and 3 on the other. I chose to have the DIEP surgery and now after my second phase, I'm noticing my arms swelling, my stomach swelling. ripples and tightness. I go to PT tomorrow to talk about a LE treatment. But it was my plastics team that referred me not my BS!😡😡😡
If anyone has any suggestions, I'm taking them all. I have a vacation to fly on Novembet 13th. Should I start researching compression garments again?
Thank you in advance,
Crystal
Dx
2/27/2019, DCIS, Right, 5cm, Stage 0, Grade 2, 0/12 nodes, ER+/PR-
Targeted Therapy
3/3/2019
Surgery
6/3/2019 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
Surgery
Mastectomy: Left, Right; Reconstruction (left): DIEP flap
MinusTwo
Houston, TX
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Oct 13, 2019 11:39PM
MinusTwo
wrote:
cwins: You're not the lone ranger. Most docs get only 15 minutes of education in med school about LE. I can't think of one person I've "met" on these threads who was informed or warned ahead of time.
My BS, my PS & my MO all said pooh pooh - seldom happens, very rare couldn't be, not to worry. The one who understood and get me to a competent, trained LE therapist was my radiation oncologist.
I never fly without sleeves and gauntlets and a Belisse Compression Bra. At home I wear a WearEase Sydney Bra 24/7. It's my goal that the LE doesn't spread any further. So far it's working.
If you haven't seen the thread below, it's great information & has good tips.
Good luck at PT.
https://stepup-speakout.org/
2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
cwins1218
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Oct 14, 2019 12:07AM
cwins1218
wrote:
Thank you MinusTwo, this is crazy to think that this isnt something told to a patient the minute they start talking about removing the lymph nodes. Which they immediately told me I had to do regardless of my elected surgery. Some, a few or all can result in this. But moving on....
Thank you for the link and I'm reading it now! I will be getting those items. which I'm sure the PT LE specialist will suggest. Then my doctor may figure out it is why I am so uncomfortable.
Crystal
Dx
2/27/2019, DCIS, Right, 5cm, Stage 0, Grade 2, 0/12 nodes, ER+/PR-
Targeted Therapy
3/3/2019
Surgery
6/3/2019 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
Surgery
Mastectomy: Left, Right; Reconstruction (left): DIEP flap
JO-5
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Oct 14, 2019 09:10AM
JO-5
wrote:
Minus,
Can you tell me what you know about the sizing for the Wearease Sydney? I don't like the plunge because I have a deep divot in that area with a thin skingraft . (UGLY!) but would trade off on that for a bra that had back and high underarm compression.
I go to a state of the art bra fitter and nothing covers this loaf under my right arm and no compression on the back.
I am unable to wear the regular compression bras. I have 2 and cannot stand them.)
Would the wearease accommodate my prosthesis on the right? Is this bra a slip on? I have a hard time with slip ons.
Thanks for any info you can guve. I have bags full of bras that I can't wear and tired of buying more.
Thanks
Joanne
IDC 04 Stage 1 Grd 3 no nodes Lumpectomy rads plus boosts ER+PR+HER- AI 5 yr 2014 secondary angiosarcoma from rads lumpectomy recurrence 1 yr Mastectomy with lat flap 1/2 flap went necrotic skin graft to center of chest.
MinusTwo
Houston, TX
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Oct 14, 2019 11:50AM
MinusTwo
wrote:
JO-5 - Well to start, yes the Sydney bra is a 'pull on', but you can step into it and pull up. I did that when I wasn't supposed to move my arms up over my shoulders. This site has a video about donning garments. https://www.wearease.com/
There is a 'pocket' for a prosthesis, but since I have implants I've never tried them. My PT therapist was particularly pleased with the high back & under arms.
The company representatives are great about answering questions and their return policy is very generous. Give them a call 866-251-0076 and discuss your particular needs. They might suggest other styles that might work for you. Disclaimer - I have no connections with the company.
That said, I wear a Belisse Bra when I fly because that's what I started out with in the beginning. It's heavy & confining with zippers & hooks & velcro, and I can hardly wait to pull it off when the hour post touch down is over. I'm sure there are others out there that work as well (maybe even a WearEase model), but I tend to be a creature of habit.
2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
JO-5
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Oct 14, 2019 03:07PM
JO-5
wrote:
Thank you. I will have to look at it some more.
My big problem is what we ladies on the Lat flap thread call the "loaf" under the arm where they tunneled the back muscle. Mine never went all the way down and is painful. Once in a while the LE bothers that as well.
I did not have reconstruction....just the muscle lump from my back. It is a very difficult situation to work with. No one understands it unless they see it.
Joanne
IDC 04 Stage 1 Grd 3 no nodes Lumpectomy rads plus boosts ER+PR+HER- AI 5 yr 2014 secondary angiosarcoma from rads lumpectomy recurrence 1 yr Mastectomy with lat flap 1/2 flap went necrotic skin graft to center of chest.
MinusTwo
Houston, TX
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Oct 14, 2019 07:38PM
MinusTwo
wrote:
Jo - I can imagine your frustration. Hope you find something that helps.
2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
mammalou
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Oct 29, 2019 12:56AM
mammalou
wrote:
This night time padded garment is ucomfortable! I'm feeling very overwhelmed that I have to wear all this stuff for the rest of my life.
DX 12/2018 ADH right breast
Dx
1/11/2011, IDC, Left, 3cm, Stage IIIB, Grade 2, 1/9 nodes, ER+/PR-, HER2- (FISH)
Surgery
1/11/2011 Lumpectomy: Left
Chemotherapy
3/2/2011 AC
Surgery
5/13/2011 Mastectomy: Left; Reconstruction (left): Tissue expander placement
Radiation Therapy
6/16/2011 Whole-breast: Breast, Lymph nodes, Chest wall
Hormonal Therapy
7/29/2011 Arimidex (anastrozole), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
6/13/2012 Reconstruction (left): Silicone implant
Surgery
6/26/2013 Reconstruction (left): DIEP flap
InnaB2018
NJ
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May 2018
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Feb 24, 2021
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Oct 29, 2019 07:42AM
InnaB2018
wrote:
mammalou, I totally empathize with you! I hate it so much, that go next week for lymphedema surgery consultation. Even if there’s 50/50 chance to get rid of this nightmare, I’ll take it.
Dx
3/26/2018, IDC, Right, 3cm, Stage IIA, Grade 3, 1/18 nodes, ER+/PR+, HER2-
Surgery
4/24/2018 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
Chemotherapy
6/1/2018 AC + T (Taxol)
Radiation Therapy
10/7/2018 3DCRT: Breast, Lymph nodes, Chest wall
Surgery
5/21/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
Surgery
5/22/2019 Prophylactic ovary removal
Hormonal Therapy
Arimidex (anastrozole)
mammalou
CA
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Jun 2011
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Feb 24, 2021
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Oct 29, 2019 10:10PM
mammalou
wrote:
innaB2018 I’ve wondered how bad do you have to be before they will consider that. It would be worth it.
DX 12/2018 ADH right breast
Dx
1/11/2011, IDC, Left, 3cm, Stage IIIB, Grade 2, 1/9 nodes, ER+/PR-, HER2- (FISH)
Surgery
1/11/2011 Lumpectomy: Left
Chemotherapy
3/2/2011 AC
Surgery
5/13/2011 Mastectomy: Left; Reconstruction (left): Tissue expander placement
Radiation Therapy
6/16/2011 Whole-breast: Breast, Lymph nodes, Chest wall
Hormonal Therapy
7/29/2011 Arimidex (anastrozole), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
6/13/2012 Reconstruction (left): Silicone implant
Surgery
6/26/2013 Reconstruction (left): DIEP flap
Vargadoll
NC
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Dec 2016
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Oct 16, 2020
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Nov 7, 2019 09:35PM
Vargadoll
wrote:
would live to hear the outcome of the appointments! I'm in compression 24/7. I've gotten used to the night garment the cover that goes with it does not stay closed good witch gets a little annoying. And until I figured out where something over top of it it was wearing holes in my sheets!
"She is clothed with strength and dignity; she can laugh at the days to come" Proverbs 31:25
Dx
12/23/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2-
Surgery
2/7/2017 Lumpectomy: Right
Radiation Therapy
4/13/2017 Breast
Radiation Therapy
Whole-breast: Breast, Lymph nodes, Chest wall
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Hormonal Therapy
VLH
Joined:
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Nov 16, 2019 03:03AM
VLH
wrote:
Vargadoll, I found your note when I did a search on the lymphedema pump and Velcro. My chest garment is fine, but I've had to resort to flinging myself into bed with my arm down and my legs as straight as possible to keep my leg garment in place. Lymphedema is no laughing matter, but my sometimes dark sense of humor has me envisioning a huge, brown penguin flopping about.
Do you recall how long you'd had your pump when Tactile agreed to replace your garment? I recall the pump proper having a 5 year warranty, but no mention was made about Velcro failure issues. Thanks!
Lyn
Dx
5/20/2016, IDC, 2cm, Stage IIB, Grade 3, 0/3 nodes, ER-/PR-, HER2- (FISH)
Surgery
7/14/2016 Lumpectomy: Left
Dx
7/18/2016, DCIS, Left, Stage 0, Grade 3, 0/3 nodes
Surgery
7/25/2016 Lumpectomy: Left
Chemotherapy
10/9/2016 AC + T (Taxol)
Radiation Therapy
9/4/2017 Whole-breast: Breast
Vargadoll
NC
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Nov 17, 2019 08:26AM
Vargadoll
wrote:
Lynn, I had it about a year and half. My LE therapist told me to call that they would replace it and it my surprise they did! They just wanted me to mail my old pieces back to them. They provided the postage to!
"She is clothed with strength and dignity; she can laugh at the days to come" Proverbs 31:25
Dx
12/23/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2-
Surgery
2/7/2017 Lumpectomy: Right
Radiation Therapy
4/13/2017 Breast
Radiation Therapy
Whole-breast: Breast, Lymph nodes, Chest wall
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Hormonal Therapy
VLH
Joined:
May 2016
Posts:
1,232
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Feb 5, 2021
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Nov 19, 2019 10:41PM
VLH
wrote:
That's great, Vargadoll! Thanks for the information.
Lyn
Dx
5/20/2016, IDC, 2cm, Stage IIB, Grade 3, 0/3 nodes, ER-/PR-, HER2- (FISH)
Surgery
7/14/2016 Lumpectomy: Left
Dx
7/18/2016, DCIS, Left, Stage 0, Grade 3, 0/3 nodes
Surgery
7/25/2016 Lumpectomy: Left
Chemotherapy
10/9/2016 AC + T (Taxol)
Radiation Therapy
9/4/2017 Whole-breast: Breast
mammalou
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Nov 20, 2019 10:42AM
- edited
Nov 20, 2019 10:42AM
by
mammalou
I have left arm and trunk lymphedema. I just got cellulitis in my face. Ugggggg. Do you think there's a relationship between lymphedema and cellulitis somewhere else in your body?
DX 12/2018 ADH right breast
Dx
1/11/2011, IDC, Left, 3cm, Stage IIIB, Grade 2, 1/9 nodes, ER+/PR-, HER2- (FISH)
Surgery
1/11/2011 Lumpectomy: Left
Chemotherapy
3/2/2011 AC
Surgery
5/13/2011 Mastectomy: Left; Reconstruction (left): Tissue expander placement
Radiation Therapy
6/16/2011 Whole-breast: Breast, Lymph nodes, Chest wall
Hormonal Therapy
7/29/2011 Arimidex (anastrozole), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
6/13/2012 Reconstruction (left): Silicone implant
Surgery
6/26/2013 Reconstruction (left): DIEP flap
Vargadoll
NC
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Dec 2016
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Oct 16, 2020
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Nov 21, 2019 08:55PM
- edited
Nov 21, 2019 08:56PM
by
Vargadoll
Oh no! My PT would tell me that the back of my neck would be swollen sometimes from lymphedema. I was told it was pretty much anything in the upper right quadrant including my head and neck. So it wouldn't surprise me if it was connected! Take care of yourself I know those's antibiotics suck I've had to take them before.
"She is clothed with strength and dignity; she can laugh at the days to come" Proverbs 31:25
Dx
12/23/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2-
Surgery
2/7/2017 Lumpectomy: Right
Radiation Therapy
4/13/2017 Breast
Radiation Therapy
Whole-breast: Breast, Lymph nodes, Chest wall
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Hormonal Therapy
JO-5
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Feb 10, 2021
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Nov 21, 2019 09:20PM
JO-5
wrote:
Somewhere ...waaay back in this thread someone, (I think it was Binnie) posted a site for head and neck massage.
I printed it out and do it when I feel my neck is swelling. I've had a bad sinus headache for a week and decided to do the head and neck massage and it actually helped.
When I do the head and neck I go ahead and do the upper trunk and arm. It takes a while but worth it.
Some say no massage if you have cellulitis but it might be a good idea to try it after the cellulitis is over.
I will look for that site....but perhaps Binnie (if it was you) will post it again. It is the best one I've found for the head and neck.
Joanne
IDC 04 Stage 1 Grd 3 no nodes Lumpectomy rads plus boosts ER+PR+HER- AI 5 yr 2014 secondary angiosarcoma from rads lumpectomy recurrence 1 yr Mastectomy with lat flap 1/2 flap went necrotic skin graft to center of chest.
mammalou
CA
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Jun 2011
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Feb 24, 2021
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Nov 22, 2019 12:46AM
mammalou
wrote:
I definitely have swelling in my neck, but I haven’t learned how to deal with that. I am getting an education every time something happens to me. I will be ever so vigilant after experiencing this. It was very scary how fast it cameand how sick I felt.
DX 12/2018 ADH right breast
Dx
1/11/2011, IDC, Left, 3cm, Stage IIIB, Grade 2, 1/9 nodes, ER+/PR-, HER2- (FISH)
Surgery
1/11/2011 Lumpectomy: Left
Chemotherapy
3/2/2011 AC
Surgery
5/13/2011 Mastectomy: Left; Reconstruction (left): Tissue expander placement
Radiation Therapy
6/16/2011 Whole-breast: Breast, Lymph nodes, Chest wall
Hormonal Therapy
7/29/2011 Arimidex (anastrozole), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
6/13/2012 Reconstruction (left): Silicone implant
Surgery
6/26/2013 Reconstruction (left): DIEP flap
JO-5
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Nov 22, 2019 07:52AM
JO-5
wrote:
These are the face neck and head massage that I do. Maybe you can enlarge and print. It is from Aurora Health....and you can find it if you Google (Self Massage for Face and Head). It is a PDF.



Joanne
IDC 04 Stage 1 Grd 3 no nodes Lumpectomy rads plus boosts ER+PR+HER- AI 5 yr 2014 secondary angiosarcoma from rads lumpectomy recurrence 1 yr Mastectomy with lat flap 1/2 flap went necrotic skin graft to center of chest.
Vargadoll
NC
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Nov 22, 2019 08:51AM
Vargadoll
wrote:
Thanks Jo!!! I havent been on here to much. Life has been so busy! Hope everyone is thriving!
"She is clothed with strength and dignity; she can laugh at the days to come" Proverbs 31:25
Dx
12/23/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2-
Surgery
2/7/2017 Lumpectomy: Right
Radiation Therapy
4/13/2017 Breast
Radiation Therapy
Whole-breast: Breast, Lymph nodes, Chest wall
Hormonal Therapy
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Hormonal Therapy