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Topic: GRRRRRRRRR I HATE LE..........

Forum: Lymphedema —

Lymphedema is swelling that can develop in the arm, hand, breast, or torso as a side effect of breast cancer surgery and/or radiation therapy. Lymphedema can appear in some people during the months or even years after treatment ends.

Lymphedema usually develops slowly, and you may feel an unusual sensation — such as tingling or numbness — that comes and goes before any visible swelling occurs. Other symptoms include achiness, feelings of fullness or heaviness, puffiness or swelling, and decreased flexibility in the hand, arm, chest, breast, or underarm areas. Tell your doctor if you experience any of these symptoms. Early treatment of lymphedema is important.

Learn more about how to lower your risk of lymphedema and how to manage it if you've been diagnosed.

Intro medically reviewed by: Brian Wojciechowski, M.D.
Last review date: November 22, 2020

Posted on: Oct 14, 2010 10:56PM

Estepp wrote:

EVERYONE can tell I have it... my arm just looks so fat..... I have been to.... and going back to.... therapy..... with a LE specialist... I wrap... I wear compression garments when flying.. exercising... BLAH BLAH BLAH......

I do it all, and I do it right. As a Stylist..... I was told... My job was a good profession to be in as it will help my lymphatic flow.... well....... MY FREAKIN' body... MY personal LE gets MUCH WORSE when I work........

I have to vent this....this is just such an angry spot... such a bad thing.....

If I change the way I dress..... if I do not work in my field...... if if if......................... my LE is ok.

REALLY????????????????????

I pray for a cure for this... I PRAY we all can get NODE replacement SOON... PLEASE allow science to figure out a way to REPLACE our nodes.. SOON.

I would rather have chemo all over again... than deal with LE.

Just a post.... to vent.... for ALL OF US. I do not need a pat on the back here sisters.. I need you ALL to get mad with me....... Post YOUR pain in this trip we call LE.......

We are the Ta Ta Sisterhood! Her2+ BC is what I had.... and yes sisters.. I had lymph node involvement...Plus Radiation AND Implant only Reconstruction. DX 6/25/08
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May 31, 2020 07:05PM SerenitySTAT wrote:

Their site doesn't show the nubby interior. It is bulky so I wear it at home. It's very comfortable for sleeping.


"Do not overlook the little joys!" (Hesse, 1905) 🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC Left IIIC 10/11 nodes ER+PR+HER2-, 12/2015 Left Mast, 2/2016 4 AC+12 Taxol, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Jun 22, 2020 02:29PM Valstim52 wrote:

Hello All

I hope this thread is still 'alive". I have one arm and truncal LE. REcently due to missing using my flext touch machine, my arm is too swollen for my regular garment, i've been using my night time garment. Our PT's are not yet open to take patients unless its an emergency and I think I'm an emergency. Better now before I get celullitis.

The glass is half full. Do not live life looking in the rear view mirror. Can't go forward that way Dx 11/24/2015, IDC/IBC, Left, 6cm+, Stage IIIB, Grade 1, 2/19 nodes, ER-/PR-, HER2- Chemotherapy 1/11/2016 AC + T (Taxol) Surgery 5/24/2016 Mastectomy: Left, Right Radiation Therapy 6/21/2016 Whole-breast: Breast, Lymph nodes, Chest wall Surgery Mastectomy: Left, Right
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Jun 22, 2020 05:21PM MinusTwo wrote:

Val - good to see you but sorry about the swelling. I think I've seen on the threads where a night garment shouldn't be worn during the day. But yes, I agree this counts as an emergency. Hope they'll work you in.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jun 22, 2020 05:28PM Vargadoll wrote:

Minustwo-I think I saw the same thing!

Val-can you at least get a phone consultation

"She is clothed with strength and dignity; she can laugh at the days to come" Proverbs 31:25 Dx 12/23/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 2/7/2017 Lumpectomy: Right Radiation Therapy 4/13/2017 Breast Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy
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Jun 23, 2020 02:37AM LindaKR wrote:

I was told by my LE therapist that a night garment can be worn during the day, but a day garment should not be worn at night. I was considered at risk during this covid thing, so my therapist was able to see me. I had severe cellulitis last fall, and my swelling was not under control. Call your therapist!

Modified Radical MX w/axillary dissection; 6xTCH, Hercpetin for a year, Rads, trying 3rd AI Aromasin. No Reconstruction. Lymphedema. Dx 3/19/2010, IDC, 4cm, Stage IIIA, Grade 2, 5/18 nodes, ER+/PR+, HER2+ Surgery 4/2/2010 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Targeted Therapy 5/15/2010 Herceptin (trastuzumab) Chemotherapy 5/15/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy 9/15/2010 Arimidex (anastrozole), Aromasin (exemestane), Femara (letrozole) Radiation Therapy 9/25/2010 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Jun 23, 2020 01:41PM LindaKR wrote:

As long as you aren't showing signs of cellulitis, you can get back to using your flexitouch too.

Modified Radical MX w/axillary dissection; 6xTCH, Hercpetin for a year, Rads, trying 3rd AI Aromasin. No Reconstruction. Lymphedema. Dx 3/19/2010, IDC, 4cm, Stage IIIA, Grade 2, 5/18 nodes, ER+/PR+, HER2+ Surgery 4/2/2010 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Targeted Therapy 5/15/2010 Herceptin (trastuzumab) Chemotherapy 5/15/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy 9/15/2010 Arimidex (anastrozole), Aromasin (exemestane), Femara (letrozole) Radiation Therapy 9/25/2010 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Jun 25, 2020 11:28AM MinusTwo wrote:

LE in the summer - Great article from CURE reprinted courtesy of WearEase

https://www.curetoday.com/community/bonnie-annis/2...


2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jun 25, 2020 02:25PM BlueGirlRedState wrote:

Thank you for the post minus2. Good reminders. Is anyone else experiencing problems with veins, blood draws, IVs? I chose not to use a port 4 years ago for 4 rounds of chemo, maybe that was a mistake. Initially no problems with veins. A year ago I developed lymphedema in the R arm. Bad luck for me, turned out to be a new cancer in the R-axilla. Since then I have sacrificed the left arm for veins., even though 4 nodes had been removed for 2 episodes of cancer. I'm thinking about getting opinions about trying the R-arm for vein work and giving the left a break. Both arms are compromised. Swelling goes up if I do not stay on top of things with self massage, garments, pumping.

2009 ER+ left breast. 52 yrs. Lumpectomy, Sentinel node removal, negative. Radiation 6 weeks, tamoxifen 5 years. Dense lumpy left breast, normal right.

2016 ER+ left breast. 4 rounds TC Aug-Oct 2016, no port,. Bi-lateral (my choice) Nov 2016, no reconstruction. 2 sentinel nodes remove, negative. Initially anastrozole, switch to Tamoxifen.

2019 ER+ R-axilla. PET indicated no metastasis. Started Ibrance and Arimidex. Tumor has shrunk from 2.5 cm to 7mm over 7 months. Next CT due July/Aug.

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Jun 30, 2020 11:57AM activern wrote:

Same here. I love the comments and can relate. My lymph node dissection [left arm only] was in 1997. Bilateral reconstruction occurred around 2014. I started having pain in my left humeral area about 2 years post reconstruction. The pain woke me up at night. Then the edema earlier this year bilaterally! Go figure ..... bilateral lower and upper lymphedema. I saw an OT but i am not if she is trained. I wear sleeves, exercises but it lasts for a couple of weeks, walking is very difficult, it stays away for 2 weekS and recurs. The pain!!


😭😭😭

Vilma Gordon Dx 5/1997, DCIS, Left, 1cm, Stage 0, 0/19 nodes, ER+/PR+, HER2- Surgery 6/9/1997 Lumpectomy: Left; Mastectomy: Left, Right; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Radiation Therapy 9/30/1997 Breast Hormonal Therapy 1/5/2009 Dx 6/24/2009, IBC, Left, Stage IV, metastasized to bone/liver, ER+/PR+, HER2- Chemotherapy 9/14/2009 AC Surgery 3/9/2010 Mastectomy: Left, Right Surgery 10/17/2013 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/23/2014 Reconstruction (left); Reconstruction (right)
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Jun 30, 2020 04:23PM BlueGirlRedState wrote:

Has anyone found a "user friendly" measuring tape to help with self-monitoring? I find perception unreliable. My left hand is just too clumsy to measure the right arm. I see some tapes measures on amazon geared towards body builders that let you snap the end into a lock. They are cheap, but maybe an answer. Probably won't see the therapist as often since she thinks I am am managing it well, even though it goes up and down. Any experience out there with laser therapy or surgical node transfer? Are they just temporary relief? I think there is more than one forum for lymphedema, so might post this on those as well.

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Aug 17, 2020 12:04AM Eigna wrote:

Hi ! Does anyone in this forum have or have had breast Lymphedema? I’m experiencing since Friday some Lymphedema symptoms: erethyma, heaviness, swelling and part of my breast is pitted. I’m hoping it is Lymphedema and not IBC. Tomorrow I will try to get an appointment as soon as possible with my breast surgeon. If anyone has experienced these symptoms and was diagnosed please let me know. Does it get better with treatment? Th

Diagnosed at 43. Weakly ER+ Dx 8/20/2019, Left, 1cm, Stage IB, Grade 3, 0/2 nodes, ER+/PR-, HER2- (FISH) Surgery 10/10/2019 Lumpectomy: Left Chemotherapy 12/16/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 3/30/2020 Whole-breast: Breast
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Aug 17, 2020 08:41AM Kimmh012 wrote:

Eigna, I have left breast lymphedema.... it has not been fun.. i noticed an indent and hardness mass, scared the ship out of me as I thought it was another lump, just on the other side of my breast. I got right in for MRI and ultrasound and they told me it was from Radiation... I wear a swell spot and cleavage swell spot with a compression wrap, it seems to help temporarily, but if I don't do it every night, I swell back up. Left breast size F, right breast size D... I do the arm exercises as well... I went to a LE Specialist and she massaged my breast, chest, and arm to try and tech new lymph drainage, didn't help much, and my left lower breast is hard as a rock some days. I follow up with RADS the 28th.

I asked my surgeon and LE Therapist if I have DMX would it go away, both answered IDK.

I follow Dr. Perry Nickleston, Stop Chasing Pain, on FB, IG, FB, blogs and have learned more about lymph drainage from him and follow his excerises when I can, especially his Lymph MOJO.

https://www.stopchasingpain.com/about/

https://instagram.com/stopchasingpain?igshid=o7tvj...

https://www.facebook.com/StopChasingPain/

Good Luck!


~ALWAYS AN ADVENTURE~ Dx 3/22/2019, IDC, Left, 2cm, Stage IIA, Grade 3, 1/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 4/2/2019 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 4/30/2019 Lumpectomy: Left Dx 5/1/2019, DCIS, Left, 1cm, Stage 0, Grade 3, 1/1 nodes, ER+/PR+, HER2+ (FISH) Chemotherapy 5/12/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 6/23/2019 AC Targeted Therapy 9/17/2019 Herceptin (trastuzumab) Surgery 11/5/2019 Lumpectomy Radiation Therapy 1/12/2020 Whole-breast: Breast, Lymph nodes Hormonal Therapy 4/27/2020 Arimidex (anastrozole), Aromasin (exemestane) Hormonal Therapy 10/14/2020 Arimidex (anastrozole)
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Aug 17, 2020 05:27PM - edited Aug 17, 2020 05:28PM by MinusTwo

Eigna - there are 340 pages just on this ONE thread of women who have posted about their lymphadema. All you have to do is start reading. Many are still active on these boards and you can read their stories & trials.

No - it doesn't ever go away, but it can be manageable. Please be aware that the majority of docs aren't up to speed on LE, and may even pooh-pooh your questions & symptoms. You need to be evaluated & measured by a trained, certified lymphadema physical therapist. I would hesitate to self treat from You Tube w/o some hands on training - although after you've learned the proper techniques, like MLD, most of the treatment & compliance will be up to you. The link below may help you find someone who is trained and will certainly answer some of your questions.

https://www.stepup-speakout.org/


2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Aug 17, 2020 05:43PM SerenitySTAT wrote:

Eigna - Since you're in Montreal, you can get a referral from your surgeon to your hospital's lymphedema clinic.

"Do not overlook the little joys!" (Hesse, 1905) 🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC Left IIIC 10/11 nodes ER+PR+HER2-, 12/2015 Left Mast, 2/2016 4 AC+12 Taxol, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Aug 17, 2020 11:41PM Eigna wrote:

Thank you all for your replies. I don’t feel alone in this journey with all of you right beside me. Well I was able to get in touch with my breast surgeon today via the breast nurse. I sent her a few pics of my breast to her and she sent them to my doctor. Doctor diagnosed me with breast cellulitis and prescribed me antibiotics for 10 days. I hope she is right. Time will tell. I should see some improvement in a couple of days. 🙏🤞.

Diagnosed at 43. Weakly ER+ Dx 8/20/2019, Left, 1cm, Stage IB, Grade 3, 0/2 nodes, ER+/PR-, HER2- (FISH) Surgery 10/10/2019 Lumpectomy: Left Chemotherapy 12/16/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 3/30/2020 Whole-breast: Breast
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Aug 18, 2020 12:13AM SerenitySTAT wrote:

I've had cellulitis in my arm. The redness started to go away after a few days of the antibiotics, but the pain lasted longer. I recommend that you still ask for a referral to the lymphedema clinic. My LE therapist helped me manage the fibrotic tissue caused by the cellulitis.

"Do not overlook the little joys!" (Hesse, 1905) 🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC Left IIIC 10/11 nodes ER+PR+HER2-, 12/2015 Left Mast, 2/2016 4 AC+12 Taxol, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Aug 18, 2020 07:12AM Eigna wrote:

Thanks SerenityStat. I will ask about LE clinic. I know I have to be patient. It’s not even 24 hours that I’m taking the medication. Rash is a tiny bit better but feel some kind of itchiness under my armpit....sigh !

Diagnosed at 43. Weakly ER+ Dx 8/20/2019, Left, 1cm, Stage IB, Grade 3, 0/2 nodes, ER+/PR-, HER2- (FISH) Surgery 10/10/2019 Lumpectomy: Left Chemotherapy 12/16/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 3/30/2020 Whole-breast: Breast
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Aug 18, 2020 10:43AM MinusTwo wrote:

Eigna - I couldn't possibly send a stronger recommendation to second Serenity. You should not be patient. You need to be seen NOW by a trained, certified LE therapist. Cellulitis is a dangerous adjunct of LE. It's best if they see you now with the rash & the swelling before the antibiotics clear it up - this time.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Aug 18, 2020 11:52AM Eigna wrote:

I’m kinda concerned that they misdiagnosed me and I have IBC instead. Small Part of my breast is pitted I told the nurse but she said it might be from the swelling.

Diagnosed at 43. Weakly ER+ Dx 8/20/2019, Left, 1cm, Stage IB, Grade 3, 0/2 nodes, ER+/PR-, HER2- (FISH) Surgery 10/10/2019 Lumpectomy: Left Chemotherapy 12/16/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 3/30/2020 Whole-breast: Breast
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Aug 18, 2020 05:59PM MinusTwo wrote:

Eigna - don't go there first. IBC is rare and lymphadema is not. If you hear hoof beats - think horses not zebras.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Aug 18, 2020 07:14PM Eigna wrote:

Thanks minus two! Yes horses not zebras. Now I have shoulder pain which I think it’s unrelated to my cellulitis. I don’t know what I did at work to deserve this pain.

Diagnosed at 43. Weakly ER+ Dx 8/20/2019, Left, 1cm, Stage IB, Grade 3, 0/2 nodes, ER+/PR-, HER2- (FISH) Surgery 10/10/2019 Lumpectomy: Left Chemotherapy 12/16/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 3/30/2020 Whole-breast: Breast
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Aug 18, 2020 08:31PM SerenitySTAT wrote:

The LE therapists I see are all kinesiologists. I don't know if that's the case at your hospital, but I'm sure they can help with the shoulder pain.

Try to get the referral soon because it may take time until there's an opening. Before the pandemic I was going every few months, but now they're only taking serious cases.

"Do not overlook the little joys!" (Hesse, 1905) 🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC Left IIIC 10/11 nodes ER+PR+HER2-, 12/2015 Left Mast, 2/2016 4 AC+12 Taxol, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Sep 28, 2020 12:02PM BlueGirlRedState wrote:

I posted this on the LVA surgery thread as well. I am contemplating surgery, but it is not available where I live, and none of the specialists I see for cancer or lymphedema see to know much about it. I have been using an arm pump for a few months and it seems to help. Recently an arm/chest/abdomen pump was suggested as being more like a lymphedema massage. Does anyone have exerience with both/either. Thoughts? I was doing self massage prior to the pump, and should probably resume that. Self massage also helped. Is LVA surgery a better option? Looking for a tape measure that my very clumsy left hand could use to measure the right arm, having trouble finding one that I think I cold use.

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Dec 1, 2020 01:42PM HomeMom wrote:

I don't typically have much issues with my arm, just some swelling above the elbow. On Thanksgiving my oldest son made us a couple of cocktails that were really good. I didn't drink a bunch, just two, but it was enough! The next morning I noticed my wrist was swollen, so I put on my sleeve and gauntlet to take down some Christmas decorations. When I went to take it off later, I noticed my hand was puffy too. I've worn my night sleeve every night since, and have been afraid to put on the sleeve and gauntlet again because I'm thinking I put it on wrong last time?

Does alcohol affect your lymphedema? I typically just drink wine in moderation. I'm thinking now about getting one of those light touch machines. Does anyone have one? How much are they?


My hand is still retaining fluid, so I'm thinking about going to a therapist.

Dx 3/31/2014, IDC, 2cm, Stage IIB, Grade 1, 3/29 nodes, ER+/PR+, HER2- Surgery 4/15/2014 Lumpectomy: Left Surgery 5/6/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 5/30/2014 AC Chemotherapy 7/25/2014 Taxol (paclitaxel) Radiation Therapy 10/16/2014 Hormonal Therapy 12/15/2014 Arimidex (anastrozole)
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Dec 1, 2020 09:42PM MinusTwo wrote:

HomeMom - I've never heard of alcohol affecting LE. I generally have one gin & tonic a day in addition to one glass of wine with dinner. Or sometimes two of one or the other.

Sorry - don't know about the light touch machine.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Dec 1, 2020 10:00PM - edited Dec 1, 2020 10:02PM by JO-5

HomeMom

Google Alcohol and Lymphedema.

I found this among many other articles. Everyone is different, because many women never get lymphedema so maybe some can have a drink and not have a problem. I have lymphedema but I don't drink so I don't know from personal experience. This makes sense to me just like taking a water pill does not help lymphedema, but can make it worse.

...............................................................................................................................................................................................

Alcohol has a diuretic effect. This means that it stimulates the kidneys and causes them to excrete more fluid from the body. This has a negative effect on tissues affected by lymphedema.

JO-5

IDC 04 Stage 1 Grd 3 no nodes Lumpectomy rads plus boosts ER+PR+HER- AI 5 yr 2014 secondary angiosarcoma from rads lumpectomy recurrence 1 yr Mastectomy with lat flap 1/2 flap went necrotic skin graft to center of chest.
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Dec 2, 2020 10:49AM MinusTwo wrote:

Interesting Jo. Sounds counter-intuitive that more fluid excreted wouldn't also pull more fluid from LE sites, but like so many things - worth more research. Thanks for posting.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Dec 3, 2020 04:25PM BlueGirlRedState wrote:

Homemom - I wish I knew more about alcohol/cancer/lymphedema. It seems like my lymphedema goes up/down, but never goes away. Staying hydrated, active (including stretching), eating healthy help alot. For about a year I did not have any alcohol and I do not think the LE changed much day to day. I have just recently started having wine again, and sometimes a beer and seems like I am just a little more swollen. But I also changed the type of device from just a sleeve to the Tactile sleeve and "core". The Tactile feels a lot more gentle so I'm wondering if the pressure is lower. Also rereading the pamphlet, it sounds like I may need to snug it tighter and wear something slinkier than a Tee and Sweatpants. (But it is cold). I am also exercising less, basically cut out the gym with covid. Definitley have put on a few pounds since summer, but damn it, cream tastes pretty good in the coffee.

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Dec 9, 2020 09:36AM HomeMom wrote:

Thanks for the responses guys. I think I am going to go to the Eden spa here where they have lymphedema therapists. They can wrap my arm so it forces it down. Whenever it has gone into my wrist and hand, it has gone away after a couple days, but now it comes back even after I wear my night sleeve. My arm almost went down to normal when I lost weight. I drank about 80 ounces of water a day as part of the diet, but didn't exercise. Now I walk 4 miles a day (no sleeve) and don't drink that much water. It's hard to figure out a winning combination.

I don't normally drink much - weekends and then just some wine. It was the only thing I did differently on Thanksgiving.

Dx 3/31/2014, IDC, 2cm, Stage IIB, Grade 1, 3/29 nodes, ER+/PR+, HER2- Surgery 4/15/2014 Lumpectomy: Left Surgery 5/6/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 5/30/2014 AC Chemotherapy 7/25/2014 Taxol (paclitaxel) Radiation Therapy 10/16/2014 Hormonal Therapy 12/15/2014 Arimidex (anastrozole)
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Dec 23, 2020 03:05PM HomeMom wrote:

What is a tactile sleeve? I can't seem to find it. I have a quilted sleeve to wear at night, I'm not sure if that is what you're talking about?

Dx 3/31/2014, IDC, 2cm, Stage IIB, Grade 1, 3/29 nodes, ER+/PR+, HER2- Surgery 4/15/2014 Lumpectomy: Left Surgery 5/6/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 5/30/2014 AC Chemotherapy 7/25/2014 Taxol (paclitaxel) Radiation Therapy 10/16/2014 Hormonal Therapy 12/15/2014 Arimidex (anastrozole)

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