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Topic: Kicking LE's butt!! Exercise & Self Care Log

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Mar 7, 2012 04:32PM

Tina337 wrote:

Let's use this thread to post the exercise and methods of self care we are practicing each day to keep our bodies strong and our LE at bay. After experiencing a flare in my arm when I hadn't been as diligent in caring for my truncal LE, I am motivated to begin exercising regularly, performing MLD daily, and wearing prescribed compression garments. Rather than fall down on the job and become overwhelmed by this chronic condition, I want to challenge myself to kick LE's butt into a small, manageable corner! I started today. Here's what I did.

I still have my arm and hand wrapped, and I am also wearing my compression tank with round swell spots on each side in the underarm area 24/7 as per my LE therapist's instruction. This afternoon I did the entire Lebed DVD. Woohoo! It's a start. Yes, that DVD is still creepy! I'll have you know I continued with the exercises even when my husband unexpectedly walked into the room. I started making fun of the DVD, which was kind of fun, so I continued for the rest of the program taunting and making fun of the weird instructions, cheers, and "dancing!", etc. It actually made me feel more powerful and in control, and I liked that!
"Life isn't about finding yourself, life is about creating yourself." ~ George Bernard Shaw Dx 11/13/2007, DCIS, <1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Jun 14, 2019 04:16PM Vargadoll wrote:

Minus- that's excellent news!!!

"She is clothed with strength and dignity; she can laugh at the days to come" Proverbs 31:25 Dx 12/23/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 2/7/2017 Lumpectomy: Right Radiation Therapy 4/13/2017 Breast Hormonal Therapy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Jul 20, 2019 07:36PM ShockedAt48 wrote:

I haven't been active on this thread lately, but I wanted to let you guys know about truncal lymphedema. I started experiencing pain on my rib cage right after I started radiation and questioned my radiation oncologist, but he said it was nothing. The pain seemed to come and go and after a year from my treatment I noticed a definite bulge on the treated side below my bra line on my side. The pain still came and went. It felt like a large bruise, very tender to pressure but nothing agonizing. I went to my oncology check up and asked if this could be lymphedema and she said no, it was just fat. I felt embarrassed and dismissed it but still felt like something was wrong. The area in question seemed to grow in size and the skin was discolored with redness. I went to the nurse practitioner oncologist and showed her and told her I thought it was lymphedema, but she said it was not. Just my body being asymmetrical. I asked if I could have a consultation with a LE therapist and she said no. I then went to my primary care physician and she said there was a tenderness between the lining of my ribs and took X-rays. Luckily nothing showed up on the X-rays. I then had another appoint for my regular checkup with my oncologist and again showed her. She said it was nothing. Perhaps the redness was from an allergic reaction. I said no to her recommendation of Benadryl and other medicines. She looked again and said, "Yeah. I guess I can see what you are talking about. I'll give you a referral to the LE therapist." At last! Well I just had my appointment and the LE therapist said that I most likely have Stage 2 lymphedema! It could possibly be stage 1 but she will have to see how I respond to therapy. Stage 2 does not reduce in size but Stage 1 can possibly. There are 4 stages (0, 1, 2, 3). I am so angry that my doctors did not listen to me for an entire year. I knew there was something wrong but because I am overweight, they did not listen to me and insisted that it was fat. Each time I talked about it I was so embarrassed because they disregarded my concerns and basically told me that I was lopsidedly fat. Time is of the essence to treat lymphedema before it progresses. I could have potentially not been as advanced in my stage of lymphedema if they had listened to me. I just want other women out there to push for their referral if they have similar symptoms. I will be talking to them at my next appointment about the difficulty in diagnosing truncal lymphedema and that they need to listen to their patients. I believe that they are at fault for my advanced stage of lymphedema. It is completely unacceptable to be dismissed. I have my compression garments on order and hopefully things will go down.

Dx 6/7/2017, IDC, Right, 3cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 6/22/2017 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 8/3/2017 Whole-breast: Breast Hormonal Therapy 9/7/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 20, 2019 08:33PM Vargadoll wrote:

Shocked- our stories are similar! I'm stage 2 as well...truncal LE also...

"She is clothed with strength and dignity; she can laugh at the days to come" Proverbs 31:25 Dx 12/23/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 2/7/2017 Lumpectomy: Right Radiation Therapy 4/13/2017 Breast Hormonal Therapy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Jul 20, 2019 09:26PM MinusTwo wrote:

Shocked - it is such a shame that docs aren't educated about LE. We shouldn't have to, but glad you kept pushing. This link below has several things you can print and take to your docs to help them learn.

https://stepup-speakout.org/



2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jul 22, 2019 09:00AM hugz4u wrote:

hi all, didn’t meet June challenge but almost. Walked more irregardless. certainly am pumped up for July.

13 hours in Garden yesterday. Had sunshirt on 90 percent of the time but a weird little rash on my le arm developed. Will show mld girl today. Maybe dirt got thru my sleeve and rashed it out. Taking good care of it. Also bashed my finger between concrete landscaping blocks a week ago. It’s coming along fine so far. I’m accident prone for sure

Looks like we have all had stumbling blocks out in front of us. Varga and minus you’ve had tough times. Varga,We had to put down our dog couple weeks ago so I know what your going thru. It’s a heartbreaker. Not sure if I can get a dog again, certainly not ready emotionally. Let’s not let life get in the way of exercise. I know that’s hard to do but it’s so important.

Minus congrats on heart checkup. Way to go!

Varga I have to stretch my rad and surgery scar area every day or I get Charlie horses. I feel my scar does contribute to breast le. Ugh le stinks!

Good job glennie! Your encouragement is helping me! Weights and walk tomorrow as today stiff and sore and exhausted from gardening.

Just going to lay flat out on that mld bed and soak up the mld today. Self care today and Rhuematology results today. Yup osteo arthritis with bone spurs here we come. Have great day. I’ll pop in to see how all are exercising.

Big win for me. Increased my weights for triceps to 8.1/2 pounds last week!!Took me a year to get in that extra pound. Slow and steady wins the race.

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22 hours ago Vargadoll wrote:

Hugz- sorry to hear about your dog. We aren't ready for another pet just yet either. I still tear up thinking about our boys..I went to my MLD girl today to! We have so much in common it's like we are soul sisters and BC brought us together. That's awesome on the weight increase...I'm still struggling! I can do 10 pounds easy but I can't! I her cording if I even try to do 5. Maybe I'm moving up to fast or doing to many reps...I have been trying to find a personal trainer that knows about LE.

I have been doing pretty good with my exercise. In the pool almost everyday doing laps. Plus going to the gym at my church and exercising there. It's set up like a curves and has treadmills, a bike and 2 Elliptical.

Have a great day ladies!

"She is clothed with strength and dignity; she can laugh at the days to come" Proverbs 31:25 Dx 12/23/2016, IDC, Right, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 2/7/2017 Lumpectomy: Right Radiation Therapy 4/13/2017 Breast Hormonal Therapy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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13 hours ago MinusTwo wrote:

Hugz - so glad to hear from you. WOW - 13 hours in the garden? We've been at 100 degrees for days so I'm trying NOT to go in the garden. I have no problems with my mastectomy scars, but the scars from the later ALND and rads are just like yours. Have to stretch every day.

Varga - you're way ahead of me. Can I whine that I'm older??? Will that excuse me? Hmmm, not so much.

I go to Chair Yoga on Monday afternoons. Silver Sneakers on Tuesday & Wednesday mornings. And water aerobics on Monday & Wednesday nights. Yes, I know I should be walking on the tread mill in addition, but just can't seem to make it happen. Even with all this activity, only one meal a day and rarely any bread or pasta or potatoes - I can't seem to lose weight this summer. I did lose every past year on this same regime, but.... Sigh.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014

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