Topic: ALL THINGS Gloves and sleeves

Forum: Lymphedema — Talk with other about how to lower your risk of lymphedema and how to manage it if you've been diagnosed.

Posted on: Nov 17, 2012 12:23PM - edited May 26, 2014 12:24PM by purple32

Posted on: Nov 17, 2012 12:23PM - edited May 26, 2014 12:24PM by purple32

purple32 wrote:

Can't stand the idea of continually hi-jacking threads so here I go ...

Pls. list your best bets with gloves/ sleeves/ ins challenges , things that go awry - you name it. How do you wash yours ? Which ones last longest etc etc etc ...

I know we are all different, but hoping perhaps we can help each other with tips for the good, the bad and the ugly.

I know the stepupspeakout site has a great page SHOWING how these things are supposed to fit, btw.(thanks for that )   http://www.stepup-speakout.org/

Josh from Lymphedivas is quite helpful, and I have  his email  -if anyone needs to know just PM me.

*edited to delete broken link on tommie copper OTC gloves.

BILAT LE! from 5.12.12.LX DX 3/2012 IDC <1 cm stage 1 GR 1 ( 0/2 nodes) ER PR pos HER2- RECURRENCE same breast Jan 2020 LX FEB 2020 . NO rads or hormones. Dx 3/2012, IDC, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 5/1/2012 Lumpectomy; Lumpectomy (Left)
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Apr 10, 2022 09:41AM ruthato wrote:

I have the custom flat-knit sleeves that I wear from the time I get up to bedtime and wash them every time I wear them. It takes less than 5 minutes - wash with soap, then 2 rinses or until water is clear. Roll in a towel then hang to dry. The first water is filthy but I'm not sure whether that is from skin oils or the fabric itself.

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Apr 25, 2022 10:00PM runnergirl26 wrote:

I have a question. I have had lymphedema for about eight years and since Christmas I have had a flare. I have tried massage by a certified PT in lymphedema: I tried a week of wrapping with no change. I saw Dr Wei Chen this last week for a consult and he said I should be wearing class 3 day time garmets. When I told the women who I have gotten measured and ordered my compression garmets from she said she had NEVER (she bolted in the message to me) ever seen anyone with upper arm lymphedema need class 3.

I’m just looking for input!!

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Apr 26, 2022 05:41AM rah2464 wrote:

Runner is it possible your doctor is trying to aggressively slow your flare? Perhaps you could send a message to their office for clarification. Sorry I cannot be of more help - hopefully someone else who has had this experience can add in. I would say if you are concerned with the class 3 level, you could always try a lower level first and see if you respond.

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 6/27/2018 Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant Hormonal Therapy 7/27/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 26, 2022 07:23AM runnergirl26 wrote:

hi there. I have been in a class 2 and it seems like it just won’t contain it. I think he was trying to say maybe based on the fact I can’t seem to get it reduced I should be in class 3. I guess I’m just curious if anyone with upper arm lymphedema has used class three since my fitter was acting like what he said was never done.

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May 11, 2022 02:44PM homemom wrote:

I never had a conversation with my PT about class 2 or class 3, just the size 30-40 for example. What is the class size?

Dx 3/31/2014, IDC, 2cm, Stage IIB, Grade 1, 3/29 nodes, ER+/PR+, HER2- Surgery 4/15/2014 Lumpectomy; Lumpectomy (Left) Surgery 5/6/2014 Lymph node removal; Lymph node removal (Left): Underarm/Axillary; Mastectomy; Mastectomy (Left); Reconstruction (Left): Tissue Expander Chemotherapy 5/30/2014 AC Chemotherapy 7/25/2014 Taxol (paclitaxel) Radiation Therapy 10/16/2014 Hormonal Therapy 12/15/2014 Arimidex (anastrozole)

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