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All TopicsForum: Lymphedema → Topic: ALL THINGS Gloves and sleeves

Topic: ALL THINGS Gloves and sleeves

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Nov 17, 2012 09:23AM - edited May 26, 2014 09:24AM by purple32

purple32 wrote:

Can't stand the idea of continually hi-jacking threads so here I go ...

Pls. list your best bets with gloves/ sleeves/ ins challenges , things that go awry - you name it. How do you wash yours ? Which ones last longest etc etc etc ...

I know we are all different, but hoping perhaps we can help each other with tips for the good, the bad and the ugly.

I know the stepupspeakout site has a great page SHOWING how these things are supposed to fit, btw.(thanks for that )   http://www.stepup-speakout.org/

Josh from Lymphedivas is quite helpful, and I have  his email  -if anyone needs to know just PM me.

*edited to delete broken link on tommie copper OTC gloves.

Lymphedema on LEFT. NO radiation. 2 clean nodes. purple32. Hope is our light ... in the night. Dx 3/2012, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 4/30/2012 Lumpectomy: Left
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Sep 13, 2016 06:44PM tsoebbin wrote:

should there be any red lines are indents at all on my skin when I take my new sleeves off? I'm wondering if my custom sleeves are either made in correctly or I'm putting the wrong wrong.

I am 52 and Love Travel, My Family and Friends, and Life in General! Dx 4/4/2016, DCIS, Left, Stage 0, Grade 2, ER+/PR+ Surgery 5/10/2016 Lumpectomy: Left Dx 5/11/2016, IDC, Left, 1cm, Grade 2, ER+/PR+, HER2- Surgery 6/27/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Right
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Sep 13, 2016 11:23PM ChiSandy wrote:

Are you pulling them on all the way and fully smoothing them out? “Donning" gloves and a “slippie” help me immensely, and I don’t get indents. If you haven’t fully smoothed the sleeves out, they could bunch up at the elbow crease

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/22/2015 Lumpectomy: Right Radiation Therapy 11/1/2015 3DCRT: Breast Hormonal Therapy 12/30/2015 Femara (letrozole)
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Sep 14, 2016 07:06AM - edited Sep 14, 2016 07:22AM by tsoebbin

thanks Sandy. I'm using a rubber glove to try to smooth it out after I get them in place. Maybe I need to keep working at it. Some of the red marks are done at my wrist so maybe I'm leaving too much of the sleeve in that area?

I am 52 and Love Travel, My Family and Friends, and Life in General! Dx 4/4/2016, DCIS, Left, Stage 0, Grade 2, ER+/PR+ Surgery 5/10/2016 Lumpectomy: Left Dx 5/11/2016, IDC, Left, 1cm, Grade 2, ER+/PR+, HER2- Surgery 6/27/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Right
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Sep 14, 2016 11:49AM ChiSandy wrote:

Are you wearing a gauntlet or glove along with the sleeve? My therapist and LE doc both warned me never to wear a sleeve without one lest I get swollen hands & fingers. You might be leaving too much of the sleeve at your wrist; especially if you’re also wearing hand compression (you might be getting a “double compression” effect, which can be like a mild tourniquet). Some brands of glove or gauntlet compress all the way down to the wrist; others, like LympheDivas, have a small band of no compression in the same spot in order to prevent double compression.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/22/2015 Lumpectomy: Right Radiation Therapy 11/1/2015 3DCRT: Breast Hormonal Therapy 12/30/2015 Femara (letrozole)
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Sep 14, 2016 11:59AM Binney4 wrote:

Some women here wear the sleeve OVER the glove/gauntlet, instead of the other way around to avoid the indentations in the wrist area. Might be worth a try, though it's then not as easy to remove the glove/gauntlet to wash your hands or whatever.

None of this is easy!
Binney

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Sep 15, 2016 11:48PM tsoebbin wrote:

Day 3 was a bit better. Fitter told me to give them a wash a couple times. Hope.that will help even more.

Work them.4.5 hours Today! Making progress.

Thanks for your replies. It's is a challenge.f or sure!


I am 52 and Love Travel, My Family and Friends, and Life in General! Dx 4/4/2016, DCIS, Left, Stage 0, Grade 2, ER+/PR+ Surgery 5/10/2016 Lumpectomy: Left Dx 5/11/2016, IDC, Left, 1cm, Grade 2, ER+/PR+, HER2- Surgery 6/27/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Right
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Sep 16, 2016 04:33AM GmaFoley wrote:

Baby steps Tsoebbin. I just tried to add an hour a day. Pretty soon its old hat and no problem. Even though I hate wearing them all the time, it gets better.

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Sep 16, 2016 07:41AM tsoebbin wrote:

Day 3 was a bit better. Fitter told me to give them a wash a couple times. Hope.that will help even more.

Work them.4.5 hours Today! Making progress.

Thanks for your replies. It's is a challenge.f or sure!


I am 52 and Love Travel, My Family and Friends, and Life in General! Dx 4/4/2016, DCIS, Left, Stage 0, Grade 2, ER+/PR+ Surgery 5/10/2016 Lumpectomy: Left Dx 5/11/2016, IDC, Left, 1cm, Grade 2, ER+/PR+, HER2- Surgery 6/27/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Right
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Oct 9, 2016 08:25PM tsoebbin wrote:

Are Lymphedema sleeves as soft as the juzo soft sleeve? Anyone tried them both and able to compare for me?

One more question... Do you all wear your sleeves every day, or only when you're doing repetitive tasks or heavy you work?

I am 52 and Love Travel, My Family and Friends, and Life in General! Dx 4/4/2016, DCIS, Left, Stage 0, Grade 2, ER+/PR+ Surgery 5/10/2016 Lumpectomy: Left Dx 5/11/2016, IDC, Left, 1cm, Grade 2, ER+/PR+, HER2- Surgery 6/27/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Right
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Oct 9, 2016 08:43PM SusanRachel wrote:

I am short and find the juzo sleeves, even the regular size, are too long. It takes a long time to get all the excess fabric distributed. I find the medi harmony is a much better length. The other plus to the harmony is that it is designed to protect the elbow crease more.

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Oct 9, 2016 09:00PM ChiSandy wrote:

LympheDivas are a tad softer than Juzo. If you’re having trouble getting the excess fabric distributed, try a “donning glove,” warn on the other hand. It has rubber grippers on the palm which help smooth out the fabric, even better than rubber dishwashing gloves. I also found the lightweight white taffeta Juzo “Slippie” donning aid (hooks over a doorknob or coat-hook) works a lot better for me than the crinkly plastic-impregnated ones they use at the PT center. (The Slippie and glove fit in a pocket on my guitar case too). In a pinch, you could use one of those plastic umbrella bags that hotels & hospitals give out in their lobbies—but I found that the “handle” loop on those tears too easily.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/22/2015 Lumpectomy: Right Radiation Therapy 11/1/2015 3DCRT: Breast Hormonal Therapy 12/30/2015 Femara (letrozole)
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Oct 9, 2016 09:05PM tsoebbin wrote:

I like my new juzo... I think it fits well. I love the colors and patterns of the lymphdiva sleeves but wondered if they are as nice. I understand they aren't custom fit so that may be an issue for me but I hope my swelling goes down and they fit me soon.


I am 52 and Love Travel, My Family and Friends, and Life in General! Dx 4/4/2016, DCIS, Left, Stage 0, Grade 2, ER+/PR+ Surgery 5/10/2016 Lumpectomy: Left Dx 5/11/2016, IDC, Left, 1cm, Grade 2, ER+/PR+, HER2- Surgery 6/27/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Right
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Oct 10, 2016 09:18AM lago wrote:

Juzo is the only off the shelf sleeve I can wear because of my long arms BUT it's possible that lymphdiva might fit too. I hear they run long. They just don't seem to compress as much IMO

DONE!! goo.gl/IoaN6U • Tattoos 2.7.2012 • Nipples 10.6.2011 • Exchange 6.24.2011 • Chemo 1.18. 2011 • BMX 8.31.2010 Dx 7/13/2010, IDC, 5cm, Stage IIB, Grade 3, 0/14 nodes, ER+/PR+, HER2+
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Oct 10, 2016 09:27AM GmaFoley wrote:

Lago, they now have a long length(regular) and a short length. I haven't tried them since they added the short length. They were nice but didn't work for me. I use juzo and Solidea Advanced Micro Massage Bilateral Compression Arm Sleeve.

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Oct 11, 2016 09:35PM lago wrote:

Good to know. I miss my old Medi sleeve. With they hadn't discontinued them

DONE!! goo.gl/IoaN6U • Tattoos 2.7.2012 • Nipples 10.6.2011 • Exchange 6.24.2011 • Chemo 1.18. 2011 • BMX 8.31.2010 Dx 7/13/2010, IDC, 5cm, Stage IIB, Grade 3, 0/14 nodes, ER+/PR+, HER2+
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Oct 16, 2016 02:48PM Lucky60 wrote:

Hi: I have a pair of leather gardening gloves for lymphedema prevention that I'd like to donate to someone. Got them in 2010 and only worn once. They are for someone with breast cancer on the left side only--the left glove goes up to the bicep (with elastic at top) the right just up to the wrist. They are not real tight, just custom fit leather to my arm and a little stretchy. They're to protect you from getting poked by roses and things. There is one small nick but it doesn't go all the way thru. They are plain light grey leather (soft inside) and were expensive at the time, so I'd like them to go to someone who can use them. I'll cover shipping in the U.S. also. For sizing, my hands are medium, I would say, 5'4" tall and while I'm not overweight, my arms are a little muscular. Please send me a private message if you would like them.

Dx 7/24/2010, IDC, <1cm, Stage IB, Grade 2, 0/7 nodes, ER+/PR+, HER2-
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Oct 16, 2016 04:40PM Lucky60 wrote:

As a followup to my prior post, the gloves have now been spoken for. Thanks.

Dx 7/24/2010, IDC, <1cm, Stage IB, Grade 2, 0/7 nodes, ER+/PR+, HER2-
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Mar 9, 2017 07:26AM purple32 wrote:

IMHO, 2 custom made gloves turned my hand blue, and fast.

I ended up with a lightweight FARROW!
Everyone is different, but..

Lymphedema on LEFT. NO radiation. 2 clean nodes. purple32. Hope is our light ... in the night. Dx 3/2012, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 4/30/2012 Lumpectomy: Left
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Mar 11, 2017 12:25PM purple32 wrote:

Hi all

Who has tried the lymphediva gloves/ I am a BIG fan, but have not tried the gloves.

Comments, please ?
THX!

Lymphedema on LEFT. NO radiation. 2 clean nodes. purple32. Hope is our light ... in the night. Dx 3/2012, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 4/30/2012 Lumpectomy: Left
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Mar 13, 2017 09:15AM purple32 wrote:

Josh Levin reached out to me just as soon as I posted about the loss of my husband as well as the bilateral LE.

He gave me the site

http://rememberbetty.com/grant-application/

All I did was EMAIL the person and got a very generous Gift Cert. for use at lymphevias.com

Josh was very approving of me posting this.

Hope it helps!
Laurie

Lymphedema on LEFT. NO radiation. 2 clean nodes. purple32. Hope is our light ... in the night. Dx 3/2012, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 4/30/2012 Lumpectomy: Left
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Mar 19, 2017 07:58PM floaton wrote:

purple, I usually wear custom (because that's the only way my hand doesn't back up), but was in a pinch between custom sleeves a while ago and tried the lymphedivas gloves. They're good. For me, the fingertips required some stretching because they were a little tight. The wrist is good because they've made it so there's really no double compression at all. The fabric is nice (if a little thick) and the no seam thing is cool, but I'm guessing because of that I found I had to fiddle with the glove at regular intervals because it kinda twisted/worked its way up my hand so I had folds at the base of my little finger that were uncomfortable. I guess I'm personally still a farrow fan for ots gloves.
One day you're waiting for the sky to fall; the next you're dazzled by the beauty of it all - Bruce Cockburn Dx 9/2013, IDC, 2cm, Stage IIA, Grade 3, 0/8 nodes, ER+/PR+, HER2- Surgery 9/14/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 10/14/2013 AC + T (Taxol) Hormonal Therapy 2/14/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 19, 2017 09:49PM ChiSandy wrote:

I was prescribed a Mediven Harmony glove, and typing with it was impossible—it was stiff and tight. The Juzo Soft was a bit better. I’d have loved the LympheDivas gloves—ordered one and found the fingers were way too long (extending past the tips of my fingernails). They said they had no plans to offer a shorter size for people with smaller hands and shorter fingers. So I use their gauntlets, which do fit me.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/22/2015 Lumpectomy: Right Radiation Therapy 11/1/2015 3DCRT: Breast Hormonal Therapy 12/30/2015 Femara (letrozole)
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Mar 20, 2017 09:26AM purple32 wrote:

The wrist is good because they've made it so there's really no double compression at all.

THX. I like that because my wrist is a problem area for me .

I just wish their gloves were thinner. I too love the Farrow ( for that reason) Wonder if they will come out with compression tanks !

Lymphedema on LEFT. NO radiation. 2 clean nodes. purple32. Hope is our light ... in the night. Dx 3/2012, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 4/30/2012 Lumpectomy: Left
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Mar 20, 2017 09:27AM purple32 wrote:

Thanks very much ChiSandy...nice you can use a gauntlet. I'd love to.

I suspect my hand issue occurred when I was made not one but 2 'custom ' gloves that turned my hand blue!

Lymphedema on LEFT. NO radiation. 2 clean nodes. purple32. Hope is our light ... in the night. Dx 3/2012, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 4/30/2012 Lumpectomy: Left
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Mar 20, 2017 01:18PM hugz4u wrote:

purple: frustrating when you pay good dollars for custom. I call my custom gear my new car, because that's what I would be driving if I didn't have to pay thru the nose for this stupid le stuff. Dang!!!!!

Purple. I pm you. Look under the dog pic for more instructions on what you required from me.

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Mar 21, 2017 06:40AM purple32 wrote:

Purple. I pm you. Look under the dog pic


Got it! It worked (of course) Thx very much. You are TOO funny!

Bawling Really love the dog.

Lymphedema on LEFT. NO radiation. 2 clean nodes. purple32. Hope is our light ... in the night. Dx 3/2012, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 4/30/2012 Lumpectomy: Left
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Mar 21, 2017 08:21AM purple32 wrote:

*UPDATE on Lymphediva gloves:

Regarding the finger length, they HAVE made them shorter now! They don't offer multiple lengths, but the new gloves have made improvements on the lengths and the bunching on the pinky finger.

As for the issue with fingers being too tight, theirs are actually the least compressive on the market .

Hope this helps someone.


Lymphedema on LEFT. NO radiation. 2 clean nodes. purple32. Hope is our light ... in the night. Dx 3/2012, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 4/30/2012 Lumpectomy: Left
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Mar 21, 2017 07:10PM floaton wrote:

purple, thanks for the update! It's good to know they fixed the bunching issue, it really was annoying and uncomfortable! I'm with you on the possible farrow tanks/vests -have you asked them about it? I asked lymphedivas about whether they had any plans to make tanksrecently and they said no.

One day you're waiting for the sky to fall; the next you're dazzled by the beauty of it all - Bruce Cockburn Dx 9/2013, IDC, 2cm, Stage IIA, Grade 3, 0/8 nodes, ER+/PR+, HER2- Surgery 9/14/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 10/14/2013 AC + T (Taxol) Hormonal Therapy 2/14/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 22, 2017 05:25AM purple32 wrote:

yw floaton

I do not know. If you asked, I would guess it is on hold. They never said farrow. I said I like farrow gloves.

I love sassybax for tanks and will try to see if they can get any funding.

Lymphedema on LEFT. NO radiation. 2 clean nodes. purple32. Hope is our light ... in the night. Dx 3/2012, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 4/30/2012 Lumpectomy: Left
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Mar 22, 2017 05:27AM purple32 wrote:

lago Lymphediva has more than 1 class of compression.

Just an FYI.

Lymphedema on LEFT. NO radiation. 2 clean nodes. purple32. Hope is our light ... in the night. Dx 3/2012, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 4/30/2012 Lumpectomy: Left

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