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All TopicsForum: Lymphedema → Topic: Pregnancy

Topic: Pregnancy

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Aug 28, 2013 10:55AM

alrz1980 wrote:

Does anyone know how pregnancy affects lymohedema? If you don't have LE, but had a lymph node removed, would pregnancy increase the chances of triggering it? I can't find any info/statistics on this online. Thanks in advance!

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Aug 28, 2013 05:14PM carol57 wrote:

alrz, that's an interesting question!  I've never seen anything that comments on that either. Those of us looking here but not posting, let's bump every so often to make sure the question stays in view for a while. There may be some who check in infrequently, who have some thoughts on this.

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Aug 28, 2013 06:10PM Musical wrote:

alrz - yes lets hope someone will chime in on this for you. There's some pretty knowledgeable ladies here!

Psa 119:105 NUN. Thy word is a lamp unto my feet, and a light unto my path. (KJV)
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Aug 29, 2013 06:03AM BeckySharp wrote:

Bump

Becky Dx 1/20/2011, DCIS, 2cm, Stage 0, Grade 3, 0/2 nodes, ER+/PR+, HER2-
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Aug 29, 2013 05:44PM - edited Aug 29, 2013 05:46PM by Binney4

alrz, I'd bet there are no studies of pregnancy and upper extremity LE. There's more information about women with leg LE and pregnancy, but those are usually women with primary LE. They do have a bit of a bumpy road with pregnancy, but staying alert to it and on top of self-care makes it possible to manage the nine months with good control.

If it's any comfort, there have been many women on the bc.org boards over the years who have had babies after breast cancer treatment (many were pregnant when diagnosed, in fact, and since they were young their bc was treated agressively), and not one of them has ever shown up here on the LE board. If they had, we'd have welcomed them warmly, empathized with their diagnosis, and then helped them find their way back to mothering with joy. LE is a bummer, but it's not a deal breaker.

If you are concerned about developing LE with pregnancy, I'd suggest finding a really well-trained, experienced LE therapist and working with her/him to make that very special time both successful and comfortable. LE caught early is much less of an issue than when there's a delay in diagnosis or treatment, so it's win-win. Here's how to find one near you:
http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htm

Be well!
Binney

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Aug 30, 2013 05:45PM alrz1980 wrote:

Thanks! Maybe others will also chime in with opinions. I appreciate all of them! Meeting with a CLT next week to talk about the risks.

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Sep 3, 2013 12:09AM Cuculi wrote:

Hi!
The following thread
Coming off tamoxifen earlier to have a baby has been quite useful for me. It is about tamoxifen but the were some posts regarding lymphedema. Maybe other threads in that forum. Is something I will need to research as well. Had 24 nodes removed and 4 "infected". I actually use homeopathy. Anything I find I will post it!

community.breastcancer.org/for...

Cyber hugs!

Dx 5/17/2013, IDC, Right, 2cm, 4/24 nodes, ER+/PR+, HER2- (IHC) Surgery 5/20/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/20/2013 AC + T (Taxol) Radiation Therapy 12/8/2013 Breast, Lymph nodes Hormonal Therapy 4/1/2014
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Sep 25, 2017 07:39PM clarrn wrote:

Hi! I was searching for something similar. I have mild LE in my right arm. I don't wear my sleeve and gauntlet except when I am doing something physical or flying, but I am 4 months pregnant and wondering if I should be wearing it more. No issues so far, and will definitely wear during labor, but wondering if anyone has been in my shoes? Any tips?

30 years old at dx, Implant lost due to infection. Open wound packing for 108 days :( Dx 12/4/2013, DCIS, 6cm+, Grade 3, ER+/PR+ Dx 1/29/2014, IDC, 1cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+ Surgery 2/27/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/8/2014 AC + T (Taxol) Radiation Therapy 10/15/2014 Breast, Lymph nodes Surgery 2/27/2015 Reconstruction (right): Silicone implant Surgery 3/23/2015 Reconstruction (right): Silicone implant
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Sep 26, 2017 03:20AM hugz4u wrote:

Yeah a cute baby coming. Congrats! And welcome here.

If you are diagnosed and told toward a sleeve and hand garments then I would even if it's mild because it can progress if not looked after. Especially if your not use to holding something all day long like a heavy baby with LE arm. Lifting something your not use to can put stress on the le arm and send le fluid to your arm in defense causing swelling and we don't have normal lymph system to drain it outeasily. But don't be discouraged!

Now is the time to build up slowly (yes slowly)by weight training your le arm so your able to load car seats,heavy formula grocery bags and Baby equipment without ill effects. As baby grows you will be increasing your ability to sustain the new weight which will be good and your le arm will get use to the gradual weight change.

If your in top physical condition and le arm is use to hauling heavy stuff then you will do fine.

We are here to help and of course we want baby updates.

Hey all we're having a baby on the le threads! Yeah hoo!

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Sep 26, 2017 11:25PM clarrn wrote:

Thanks for the advice hugz. I will start weights slowly again to get ready! :)

30 years old at dx, Implant lost due to infection. Open wound packing for 108 days :( Dx 12/4/2013, DCIS, 6cm+, Grade 3, ER+/PR+ Dx 1/29/2014, IDC, 1cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+ Surgery 2/27/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/8/2014 AC + T (Taxol) Radiation Therapy 10/15/2014 Breast, Lymph nodes Surgery 2/27/2015 Reconstruction (right): Silicone implant Surgery 3/23/2015 Reconstruction (right): Silicone implant

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