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Topic: Flying cause lymphedema?

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Mar 7, 2014 06:34PM - edited Apr 3, 2015 03:40PM by peacestrength

peacestrength wrote:

This Post was deleted by peacestrength.
2013, IDC Stage 3a
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Mar 7, 2014 07:28PM carol57 wrote:

One tactic lots of us use is to wear a compression T shirt, short sleeved, so its sleeve meets the top of the compression sleeve or overlaps slightly without constricting.  I wear this without a bra, and I like the T shirt because it applies compression to the axilla, which isn't possible with a cami or a bra.  At this time of year, it's easy enough to wear something over the T shirt so you're not parading through TSA security in a skin-tight compression shirt--you'd be using it as an undergarment.  Choose one that's a size smaller than your usual size, so it's really compressive, and wear it inside out so the seams don't chafe.  Many of us wear UnderArmour men's sizes, because the women's sizes have cap sleeves that cut into the axilla.  Be sure to look for 'compression fit.'  You should be able to find these and try them on at many sporting goods stores.  UA also has outlet stores, if you are near an outlet mall.

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Mar 7, 2014 07:44PM peacestrength wrote:

Carol- this is brilliant! Thank you very much!

2013, IDC Stage 3a
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Mar 7, 2014 08:34PM carol57 wrote:

I wish I could take credit for the idea, but no...this forum is the source of so much helpful information, and I'm just passing along what I learned here!  Good luck with your flying!

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Mar 8, 2014 02:11PM - edited May 21, 2018 12:13PM by hugz4u

Drink tons of water, no salt, (there will be plenty in your meal,) skip salty snacks, get up and move a lot, stick arms straight up in the air and pump fists slowly 25 times, do a few times. If embarrassed just do it in the bathroom or back of plane.With all that water you will make many trips. I wouldn't suggest alcohol on your ride because it dehydrates which in not good. This is what people do with LE when they fly.

You need a glove or gauntlet or the fluid will get pushed into your hand if you do swell. Be fitted for one and practice wearing your garments well before the trip. Start off with one hour and increase to get use to garments.

Don't take off until a hour or two after landing if you must.

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Mar 9, 2014 01:10PM peacestrength wrote:

Hugz - Thanks! Where can I purchase a glove quickly?

2013, IDC Stage 3a
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Mar 9, 2014 02:22PM carol57 wrote:

peacestrength, a good source is brightlifedirect.  Here's a link, and in case it doesn't work, find brightlifedirect.com, then lymphedema products, then gloves and gauntlets.  

http://www.brightlifedirect.com/lymphedema-product...

The gloves are horribly expensive. Gauntlets are what most people use when wearing them preventatively while flying and they are a lot less expensive.  If you need it truly asap, call Brightlife and ask for help on that.  They'll give expedited shipping rates to you.  Be sure to check the measurement charts available on their site.  If you're not sure, call and ask them for sizing help, and/or to order in two sizes, knowing that you'll return one.  Brightlife is amazingly accommodating on their return policy, and I think if you are uncertain of your measures but don't have time before your flight to buy one, try it and then exchange for a different size, they will understand.  

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Mar 9, 2014 03:59PM peacestrength wrote:

I just ordered - I really appreciate all your help.

2013, IDC Stage 3a
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Mar 9, 2014 05:41PM carol57 wrote:

Are you wearing the sleeves for any reason other than flying?  Because if not, I hope you have some time before the flights, to wear the sleeves a few hours at a time for several days (including gauntlets). That will give you time to get used to them.  Lots of us have problems with the thumbs on the gauntlets being a bit too tight, and making the thumb go tingly.  If you have to wear it permanently, that often means ordering a custom fit.  But for periodic ware, another strategy is to get the thumb wet and let it dry over a marker or something similar that will make it stay a bit bigger than its knit size.  You'd need to have worn your gauntlets a few times for a while to know if you need to make that adjustment.  

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Mar 10, 2014 03:08AM LymphActivist wrote:

There is very much controversy and very little hard data on this subject, so I will make some suggestions based on my knowledge of lymphedema pathology and my wife Pearl's experiences over the last 20 years. We favor non-elastic containment over elastic for flying. In plain language that means that short-stretch bandaging or non- or low- elastic garments (e.g. Solaris Tribute, JoviPac, MedAssist, etc) are more effective than circular-knit elastic sleeves. Flat-knit custom sleeves are in between. This is for the same reason that you do not usually sleep in an elastic sleeve (too high a resting pressure, too low a working pressure) when your arm/leg is inactive for many hours. If you MUST wear an elastic sleeve when flying, then take along a stress ball, a sponge rubber ball that you squeeze periodically, to use your arm muscle pump to keep the lymph flowing.

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Mar 10, 2014 12:10PM - edited Mar 10, 2014 12:11PM by victoriasecret

I had 25 nodes removed ...I have been flying extensively for 5 years ...long flights short flights ,no sign of Lymphedema .

I remember I freaked after surgery for about a year maybe less lifting etc.

I am still cautious don't try to haul extra heavy loads ...but think it is a crap shoot as to who will develop Lymph.

I excercised a lot after surgery using my arms ...still numb though on my affected side not as bad ...do not think I will ever regain full sensation under the arm and upper arm inside !

I have never worn a sleeve thought about it at first...

Love n light

Cheryl

Hormonal Therapy 1/1/2009 Arimidex (anastrozole) Dx 6/15/2009, ILC, 6cm+, Stage IIIC, Grade 2, 11/25 nodes, ER+/PR-, HER2- Surgery 7/31/2009 Lymph node removal: Left; Mastectomy: Left, Right; Prophylactic mastectomy: Right Chemotherapy 8/31/2009 AC + T (Taxol) Radiation Therapy 1/1/2010 Breast, Lymph nodes
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Mar 10, 2014 12:51PM peacestrength wrote:

Each of you have been very helpful.  Thanks for sharing your experiences and suggestions.

2013, IDC Stage 3a
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Mar 10, 2014 04:55PM carol57 wrote:

cheryl, it is indeed a crapshoot.  My mother had all her nodes removed 40 years ago, with more rads to the axilla than would ever be given today, and she never got LE.  I had 5 nodes out and no rads, and here I am. That's why the decision on whether and what kinds of precautions to take after BC treatment is so controversial, and so hard for the individual.  We just don't know. It's so hard to plan a strategy against a threat that's so hard to quantify. 

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Mar 11, 2014 12:58PM vlnrph wrote:

Cheryl/Victoriasecret & Carol's mom might have been blessed with an especially "robust" lymph system: able to manage challenges like flying without any problem. Perhaps OP peacestrength will find herself in that group. BON VOYAGE!

We just returned from another trip and again, walking around the airport, I'm surprised that I don't see more women in compression garments. I always have my wrapping supplies & Solaris Tribute with me (never in a checked bag) in case of a flare but have been OK with sleeve/glove even at higher altitudes.

IDC too! Rt MX+DIEP 4-2011; ALND 5-2011 d/t micromets; TC X 4; tamoxifen; lymphedema as of 9-18-11; switch to letrozole 3-15-14; Discovery made during chemo=I'm a human BEING, not a human DOING Dx 3/7/2011, ILC, 2cm, Stage IIA, Grade 2, 1/25 nodes, ER+/PR+, HER2-
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Mar 24, 2014 11:37AM peacestrength wrote:

Well, I made it to my destination with few LE problems.  Thank you for the t-shirt and glove recommendations.  I wore a t-shirt, 2 sleeves and 2 gloves - my small patch near arm pit flared some but not too bad.

Thanks again everyone!

2013, IDC Stage 3a
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Mar 24, 2014 05:34PM juneping wrote:

peace, how many hours was your flight?

I am flying next week 16 hour flight. I am bit scared....

juneping.wordpress.com/ Dx 11/15/2013, DCIS Dx 11/15/2013, IDC, 6cm+, Stage IIIA, Grade 2, 2/35 nodes, ER+/PR+, HER2-
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Mar 24, 2014 08:23PM - edited Mar 24, 2014 08:24PM by peacestrength

Juneping -  Mine was a 3 hour flight.  I should mention I used a compression t-shirt - I only mention t-shirt above.

2013, IDC Stage 3a
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Mar 24, 2014 09:08PM juneping wrote:

peace - thanks....i'll try to get the T-shirt this week...

juneping.wordpress.com/ Dx 11/15/2013, DCIS Dx 11/15/2013, IDC, 6cm+, Stage IIIA, Grade 2, 2/35 nodes, ER+/PR+, HER2-
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Apr 6, 2014 08:12AM - edited Apr 6, 2014 08:13AM by juneping

hi. Just want to throw the info out there in case ppl are looking for flying and LE. 

I don't have LE and wear sleeve for preventative purpose. I ran out of time couldnt find a compression tshirt. The flight was 16 hours and I had the sleeve and the gauntlet on and I was okay. Side note, bc of flight delay and cancellation I had the sleeve on for over 12 hour before flying. Not sure that helped or not. My sis did some research for me that wearing it longer before and after long flight is crucial but I am sure not 12 hours long like I did. I was very relieved no swelling after the long flight.

juneping.wordpress.com/ Dx 11/15/2013, DCIS Dx 11/15/2013, IDC, 6cm+, Stage IIIA, Grade 2, 2/35 nodes, ER+/PR+, HER2-
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May 21, 2018 12:07PM - edited May 21, 2018 12:08PM by hugz4u

bumping flying thread. It's travel season and we are all wondering about preparing for flights with LE!

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