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All TopicsForum: Lymphedema → Topic: Men can get LE too

Topic: Men can get LE too

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Dec 21, 2015 06:31AM - edited Dec 21, 2015 06:32AM by kareenie

kareenie wrote:

We were at the San Diego zoo and there was a man who had a display and was explaining about the foot bones and teeth of elephants. I noticed he was wearing LE sleeve and glove so I just had to say something to him. We see fellow sleeve wearers out in public so seldom. I held up my sleeve arm and said "Lymphedema shout out." He said yes he had BC 2-1/2 years ago. I said yes I know men get BC too. He taught high school and tries to educate young guys about BC.

Just wanted to share ... thought it was interesting.

ILC 1994 & 2009, Endometrial CA 2005, DES dau, Chemo, Rads, Femara, Prolia, MRM L, ALND, PNSMX R, LE, FG
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Dec 21, 2015 07:43AM ksusan wrote:

Thanks. I had a good conversation about my sleeves with a woman at the airport a few days ago. I'd rather talk with people than try to hide that I'm wearing them.

Mutant uprising quashed. Dx 1/2015, IDC, Right, Stage IIA, 1/1 nodes, ER+/PR+, HER2- Dx 1/2015, DCIS, Left, Stage 0, Grade 3, 0/2 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right Radiation Therapy Whole-breast Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Dec 21, 2015 07:07PM Traveltext wrote:

I have male friend with LE. He has stage 4 bc. 

I'm trying t avoid this dreaded condition by being super careful about cuts and bites to my left arm since I've had an axillary clearance 


Have breast & prostate cancer. NED both. More on Male BC

Dx 03/14, IBC, L. 2cm, S IIIB, G 2B, ER+/PR+, HER2- FEC x3, Taxol x3

Mx & 2/23 nodes 07/14

Rads x 33 09/14 and now on Tamox

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Mar 4, 2017 08:18AM kareenie wrote:

I just thought I would bump this old thread to top for Cliff to see.

ILC 1994 & 2009, Endometrial CA 2005, DES dau, Chemo, Rads, Femara, Prolia, MRM L, ALND, PNSMX R, LE, FG
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Mar 4, 2017 10:58AM Traveltext wrote:

And for Fiddleman who is keeping his LE at bay so that he can keep playing his music.


Have breast & prostate cancer. NED both. More on Male BC

Dx 03/14, IBC, L. 2cm, S IIIB, G 2B, ER+/PR+, HER2- FEC x3, Taxol x3

Mx & 2/23 nodes 07/14

Rads x 33 09/14 and now on Tamox

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