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Help with Abbreviations

Topic: Has anyone tried ketoprofen

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Dec 26, 2015 07:44PM

shaz101 wrote:

Hi I was doing some research on Le and I came across ketoprofen. Apparently there is a trail. I was wondering if anyone was on the trail or using the drug and what they thought.


sharon. i will not die an unlived life 😊 Dx 12/13/2014, IDC, 2cm, Stage IIB, Grade 1, 1/10 nodes, ER+/PR+, HER2- Surgery 1/12/2015 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 1/26/2015 Lymph node removal: Left, Underarm/Axillary Chemotherapy 3/2/2015 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 7/12/2015 Whole-breast: Breast Hormonal Therapy 8/28/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 27, 2016 05:34AM Sannoliver1 wrote:

Bump

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Oct 23, 2018 02:13PM herb wrote:

I am going to ask my onco about this on Thursday. https://scopeblog.stanford.edu/2018/10/22/new-hope...


Dx 4/21/2015, IDC, Right, 1cm, Stage IA, Grade 3, ER+/PR+, HER2- (FISH) Surgery 5/6/2015 Lumpectomy: Right Chemotherapy 5/28/2015 Radiation Therapy 10/2/2015 Hormonal Therapy 12/14/2015 Arimidex (anastrozole)
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Nov 3, 2018 11:26AM anna4969 wrote:

I sure have and have been on it now for about 18 months. I read about Stanford's trial a a year and a half or so back and asked my onc if we could try it. He said yes. He had the hospital pharmacist call Stanford to try find out what dose they were using for the trial and they would not release that information, so we just kind of winged it. I have actually been doing quite, quite well on it. Prior had constant discomfort, very frequent flares and more infections than I care to remember for 6 plus years. It has really made a big difference. The only very upsetting issue is that Ketoprofen, in certain milligrams, was discontinued so my pharmacist has been searching high and low all the nearby pharmacies to continue getting the drug for me. So far, so good but she has told me the quantities are really diminishing so much that this last fill was only 1/2 the prescription. I was going to then go the mail order way thinking I might have more success and, I got a letter that Orudis is no longer available. Like with all NSAIDs there are some risks but I have found it to be, by far, the easiest of NSAIDs to tolerate and I have prescription Ibuprofen and prescription Naproxen.

This is a recent article about the trial:

http://med.stanford.edu/news/all-news/2018/10/anti...

and the article published in JCI Insight

https://insight.jci.org/articles/view/123775

Please let me know if you have more questions, happy to answer.


Dx 1/13/2010, IDC, 6cm+, Stage IIIA, Grade 2, 9/18 nodes, ER-/PR-, HER2+
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Nov 3, 2018 01:37PM Zillsnot4me wrote:

what dosage worked for you?

Liver 1/ 2016, Xgeva 9/2015, Bones 4/2015, Lungs 4/2013 Dx 4/2013, 4cm, mets, ER+/PR+, HER2- Surgery 4/29/2013 Lymph node removal: Right; Mastectomy: Right; Prophylactic mastectomy: Left Chemotherapy 5/22/2013 AC Hormonal Therapy 10/2/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 11/5/2013 Breast, Lymph nodes Surgery 9/25/2015 Prophylactic ovary removal Hormonal Therapy 1/6/2016 Femara (letrozole) Targeted Therapy 1/7/2016 Ibrance (palbociclib) Hormonal Therapy 2/3/2016 Arimidex (anastrozole) Hormonal Therapy 4/23/2017 Faslodex (fulvestrant) Chemotherapy 11/15/2017 Xeloda (capecitabine)
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Nov 4, 2018 08:56AM anna4969 wrote:

The prescription is written for 50mg 4x a day. I generally only take a total of 100mg however.

Dx 1/13/2010, IDC, 6cm+, Stage IIIA, Grade 2, 9/18 nodes, ER-/PR-, HER2+
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Nov 7, 2018 04:42AM hugz4u wrote:

Anna thanks for educating us. If you have time please drop in every so often to give us a progress report as you are paving the way for us. Much appreciated.

I read the link and below it is another article on using nanofibers to reroute lymph vessels. So interesting. Stanley Rockson is very dedicated to lymphedema. I heard him at a conference and he’s brilliant.

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