We are 197,863 members in 81 forums discussing 145,396 topics.

Help with Abbreviations

All TopicsForum: Lymphedema → Topic: Tamoxifen and lymphedema

Topic: Tamoxifen and lymphedema

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Feb 3, 2017 07:03PM

mellee wrote:

I've read that tamoxifen can cause fluid retention. Has anyone with lymphedema noticed that tamoxifen makes it worse?

I've got Stage 1 LE in my upper arm and just started tamoxifen today. Hoping it won't increase my edema!

2.3 cm tumor (Grade 1, Luminal A). 100% ER+, 97% PR+, Her2-, Ki67 6%. Mammaprint: Low risk Dx 10/6/2016, IDC, Right, 2cm, Stage IIB, Grade 1, 2/32 nodes, ER+/PR+, HER2- Surgery 11/8/2016 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/3/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Page 1 of 1 (2 results)

Posts 1 - 2 (2 total)

Log in to post a reply

Feb 6, 2017 09:38AM cliff wrote:

I have been on tamoxifen almost a year now. it is hard to tell if it affects the edema for me, I had 21 nodes removed during the surgery, and have been on lymphedema treatment since. and since both treatments started at the same time, I cant tell.

good luck and there are a lot of compression products on line at lymphedema sites.

Dx 3/16/2016, IDC, Left, 1cm, Stage IV, metastasized to bone, 2/21 nodes, ER+/PR-, HER2- Surgery 3/31/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Feb 6, 2017 03:19PM mellee wrote:

Thanks Cliff! Have you had a lot of trouble with LE? Mine is currently Stage 1. Hoping I can reverse the swelling!

2.3 cm tumor (Grade 1, Luminal A). 100% ER+, 97% PR+, Her2-, Ki67 6%. Mammaprint: Low risk Dx 10/6/2016, IDC, Right, 2cm, Stage IIB, Grade 1, 2/32 nodes, ER+/PR+, HER2- Surgery 11/8/2016 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/3/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

Page 1 of 1 (2 results)