We are 197,867 members in 81 forums discussing 145,397 topics.

Help with Abbreviations

All TopicsForum: Lymphedema → Topic: Lymphedma and EMG test and carpal tunnel surgery question

Topic: Lymphedma and EMG test and carpal tunnel surgery question

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Feb 12, 2017 08:38AM

Tyge48 wrote:

I do not have lymphedema and would like to keep it that way but have carpal tunnel in my right arm and scheduled for surgery on the 17th they say I will need blood pressure cuff on my affected arm (the one I had lymph nodes removed from during my lumpectomy) and I need the EMG done on my affected arm and poissible surgery on it as well, the symptoms are worse on that side. What can I do to prevent getting lymphedema afterwards?

Log in to post a reply

Page 1 of 1 (23 results)

Posts 1 - 23 (23 total)

Log in to post a reply

Feb 12, 2017 12:06PM Moderators wrote:

Hi Tyge48-

Welcome to BCO! We have some information on steps you can take to prevent lymphedema on our main site: http://www.breastcancer.org/treatment/lymphedema/r.... Hopefully you're able to have your surgery without any issues!

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
Log in to post a reply

Feb 12, 2017 12:16PM Tyge48 wrote:

Thank you

Log in to post a reply

Feb 12, 2017 12:46PM cliff wrote:

my surgeon said if I let anyone do as much as a bp cuff on my lymph arm, she would sew the old boob back on.

Dx 3/16/2016, IDC, Left, 1cm, Stage IV, metastasized to bone, 2/21 nodes, ER+/PR-, HER2- Surgery 3/31/2016 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Feb 12, 2017 08:29PM MinusTwo wrote:

I don't know about an EMG, but you can definitely have the cuff on one of your legs. And you should make sure they are drawing blood from your foot - and doing the line for the anesthesia through your foot. Don't take a chance.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
Log in to post a reply

Feb 12, 2017 08:35PM RobinLK wrote:

I declined the EMG for precisely this reason. I do have active lymphedema and my PT said it was the correct decision in my case. I do not have carpal tunnel, and I was proven correct when the tingling and other sensations disappeared when I stopped taking an AI.

You have to do what is correct for you. Is it possible to get a second opinion, or check in with your medical oncology team? They should be able to help you make an informed decision.

Mixed BC: PILC with a little IDC thrown in to make things interesting. Extra nodal extension and LVI. Dx 10/11/2013, ILC/IDC, Right, 2cm, Stage IIIA, Grade 3, 9/9 nodes, ER+/PR+, HER2+ (FISH) Surgery 10/28/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Surgery 11/13/2013 Mastectomy: Right Chemotherapy 12/3/2013 AC Targeted Therapy 1/29/2014 Herceptin (trastuzumab) Chemotherapy 1/29/2014 Taxol (paclitaxel) Hormonal Therapy 5/1/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/26/2014 Breast, Lymph nodes Surgery 10/4/2015 Prophylactic ovary removal Hormonal Therapy 8/7/2016 Femara (letrozole) Hormonal Therapy 9/19/2016 Aromasin (exemestane) Hormonal Therapy 10/22/2016 Arimidex (anastrozole)
Log in to post a reply

Feb 12, 2017 08:47PM Tyge48 wrote:

Thank you, I no longer have an oncology team my lumpectomy was done back in 2010 and I have been cancer free since and Ivdo not have lymphedema so the only thing I am still doing is mammograms.

Log in to post a reply

Feb 12, 2017 08:51PM Tyge48 wrote:

Thank you, I never thought about the foot but won't that hurt?

Log in to post a reply

Feb 12, 2017 08:55PM Tyge48 wrote:

The Drs. In my Dr. Office that did my surgery says it's ok to do the EMG and bp on the arm they took the nodes from, I currently do not have lymphedema.

Log in to post a reply

Feb 13, 2017 06:31AM RobinLK wrote:

My breast surgeon was the person who explained my risk to me. My first bout was about 1.5 years after my surgery. Zumba class caused my right index finger to swell. Another 1.5 years later and i now have swelling up through the shoulder and into my torso. All still minimal swelling, but it is uncomfortable. I am still able to manage it with compression wear and MLD massage. The next time it advances, I will be learning how to wrap the bandages.

Everyone is different. Some women never get it, some experience it right away and others get it many years down the road. I guess, it all comes down to risk vs. benefit and ultimately that is your choice. Maybe you could find a certified LE therapist to consult, in your area. Since you do not have LE maybe one would be willing to discuss risk vs benefit over the phone with you.

Good luck.

Mixed BC: PILC with a little IDC thrown in to make things interesting. Extra nodal extension and LVI. Dx 10/11/2013, ILC/IDC, Right, 2cm, Stage IIIA, Grade 3, 9/9 nodes, ER+/PR+, HER2+ (FISH) Surgery 10/28/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Surgery 11/13/2013 Mastectomy: Right Chemotherapy 12/3/2013 AC Targeted Therapy 1/29/2014 Herceptin (trastuzumab) Chemotherapy 1/29/2014 Taxol (paclitaxel) Hormonal Therapy 5/1/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/26/2014 Breast, Lymph nodes Surgery 10/4/2015 Prophylactic ovary removal Hormonal Therapy 8/7/2016 Femara (letrozole) Hormonal Therapy 9/19/2016 Aromasin (exemestane) Hormonal Therapy 10/22/2016 Arimidex (anastrozole)
Log in to post a reply

Feb 13, 2017 06:56AM Tyge48 wrote:

Thank you so much for the info, I will look into it

Log in to post a reply

Feb 13, 2017 08:25PM MinusTwo wrote:

Tyge - regardless of what your doc's say, you will always be at risk for lymphadema. I saw one lecture by a Stanford professor who explained that the average time most docs spend learning about LE in their 8-12 years of medical school is FIFTEEN MINUTES. Yup - 15 minutes.

I would not take a chance with my arms when it is easy to draw blood & put a line for anesthesia in your foot. And no, with a good head nurse, it doesn't hurt anymore than your arm.

Here is a link that some of our BCO women helped to write that may answer some of your questions.

http://www.stepup-speakout.org/


2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
Log in to post a reply

Feb 13, 2017 09:19PM Tyge48 wrote:

Ok that may work for the surgery on my non affected arm but what about my affected arm I have a lot of pain in it and it goes all the way up my arm into my chest and shoulder blade they know its carpal tunnel but need to do the EMG to diagnose and then what about surgery for it, its worse than the non affected arm.

Log in to post a reply

Feb 14, 2017 01:37AM jbdayton wrote:

I only had my sentinel nodes removed during my mastectomy.

I had the EMG done on both wrists. Then I did Carpal Tunnel surgery on both arms 4 months after my reconstruction surgery.

I did my non affected arm first and I had the IV in the foot. No more pain than a regular IV. I don't remember having a blood pressure cuff if I did it must have been on my leg also.

3 weeks later Idid my cancer side with an IV in my hand on the non affected side.

It's now been over 3 years and all is well.


Jeannine. My bi-lateral DIEP turned into a single DIEP due to bad veins. Next was a Ruben's flap. Wound opened requiring a wound vac. 6 revisions using fat grafting and scar revisions; completed nipples and tattoos. Dx 2/4/2013, IDC, Left, 3cm, Stage IIB, Grade 3, 0/2 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 3/12/2013 TAC Dx 8/26/2013, DCIS, Left, 1cm, Stage 0, Grade 1 Surgery 8/26/2013 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 10/9/2013 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 11/21/2013 Arimidex (anastrozole)
Log in to post a reply

Feb 14, 2017 07:13AM Tyge48 wrote:

Thank you so much for that information, it puts my mind at ease. I know everyone is different and bodies react differently but this gives me hope.

Log in to post a reply

Feb 14, 2017 09:32AM KBeee wrote:

A couple thoughts because I have faced similar circumstances.

1. I had both carpal tunnel and cubital tunnel surgery after SNB. These were on affected side. They did not use a tourniquet for surgery, like they sometimes do; they just cauterized as needed. IV nad BP cuff were on other arm.

2. I had carpal tunnel surgery on non affected side on a different day. They did BP and IV in leg at my request/insistence. These are things I discussed with teh surgeon in my preop visit so she could prepare accordingly and so the OR staff would be aware.

3. Since that time, I had a recurrence and 13 nodes removed. I developed numbess about a year after radiation and doc ordered an EMG. The dc performing the EMG is not one I'd ever return to, and I learned later that his license was just recently reinstated. I did develop some lymphedema after this. I am not sure if it was the EMG, the way he did the MEG, or if it was from increased activity. I'll never know.


Good luck.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
Log in to post a reply

Feb 14, 2017 09:46AM Tyge48 wrote:

Thank you, I have my pre op physical tomorrow I will let them know then about the bp cuff and IV

Log in to post a reply

Feb 14, 2017 09:52AM Tyge48 wrote:

RobinLK, I tried talking to a LE Therapist I was told they couldn't give me any advice since I wasn't a patient and they are not accepting new patients for a few months and no other therapist would give mne any advice either if I am not a patient. She said I should consult my Dr.

Log in to post a reply

Feb 14, 2017 02:55PM RobinLK wrote:

I am so sorry they will not discuss this with you. I understand their position, but wow, one would think there were more options out there, considering how many people have gone through this

Mixed BC: PILC with a little IDC thrown in to make things interesting. Extra nodal extension and LVI. Dx 10/11/2013, ILC/IDC, Right, 2cm, Stage IIIA, Grade 3, 9/9 nodes, ER+/PR+, HER2+ (FISH) Surgery 10/28/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Surgery 11/13/2013 Mastectomy: Right Chemotherapy 12/3/2013 AC Targeted Therapy 1/29/2014 Herceptin (trastuzumab) Chemotherapy 1/29/2014 Taxol (paclitaxel) Hormonal Therapy 5/1/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 5/26/2014 Breast, Lymph nodes Surgery 10/4/2015 Prophylactic ovary removal Hormonal Therapy 8/7/2016 Femara (letrozole) Hormonal Therapy 9/19/2016 Aromasin (exemestane) Hormonal Therapy 10/22/2016 Arimidex (anastrozole)
Log in to post a reply

Feb 14, 2017 03:25PM Tyge48 wrote:

Yes I know right, but I have an appointment with my Dr. tomorrow so I will see whatbvshe thinks although she is not a surgeon at all or even deals with this type of thing (makes no sense to me)

Log in to post a reply

Feb 14, 2017 08:51PM hugz4u wrote:

tyge. Be prepared for anything your doc might say or do as he's not the one spending thousands on le treatment. hopfully your doc is le educated because then they will tell you not to use needles and no cuffs on your affected side. And if they site the latest study on this that was recently published that it's ok to get needles and bp on affected arm that was a faulty study that many doc now believe in. Use feet and legs instead. No problem I did.


Log in to post a reply

Feb 15, 2017 08:49AM Tyge48 wrote:

hugz4u thanks for the info but what about the EMG I need on the affected arm and the surgery I need on the affected arm would that be safe to do? I'm in so much pain on that side it's much worse than the other side.

Log in to post a reply

Feb 15, 2017 08:17PM hugz4u wrote:

tyge. Sorry I can't answer on EMG. I don't have experience with that and have no clue what it is. Ask if there is an alternative.

Log in to post a reply

Feb 15, 2017 08:30PM Tyge48 wrote:

Ok thanks anyway.

Page 1 of 1 (23 results)