Posted on: Mar 28, 2017 10:27AM

gb2115 wrote:

Ok, lumpectomy + 3 nodes removed, and radiation to ALL the lymph nodes. I have already seen a lymphedema therapist twice as part of an ongoing monitoring program (she takes measurements every 3 months or so). No swelling yet. Yet I live in <<constant>> fear of lymphedema. The list of precautions is almost overwhelming, everything that needs to be done to protect the arm. Every paper cut freaks me out. And activity...from what I read activity prevents lymphedema, treats lymphedema, and causes lymphedema. My therapist said to increase activity gradually. Ok, I'm trying to do that, but feel like it's a crapshoot. I did a Leslie Sansone walk away the pounds DVD yesterday (30 minutes) and did about 1/3 of the arm moves she was showing (trying to ease in). Was it too much, I have no clue. Although if lymphedema develops from such gentle arm work, it's probably going to happen anyway and therefore such a person is generally screwed. I used to be soooo active, this makes me want to cry. I might be tearing up...

And the "don't injure your arm" bit. Short of living inside bubble-wrap, how do you do that? I'm at work, and there is a giant mosquito flying around the break room. I will be afraid to go in there to eat lunch, lest I get bitten and end up with lymphedema from a stupid mosquito. I would ask someone to go in there and kill it for me, but they'll think I'm nuts. They already probably do.

Sorry, I'm really frustrated. This is no way to live. I could use a pep talk if anyone can help.