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All TopicsForum: Lymphedema → Topic: Flexitouch pump

Topic: Flexitouch pump

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Jun 5, 2017 03:57PM

Castigame wrote:

for my BC sisters who are concerned about Lymphedema,

I have neither direct nor indirect interest in Tactile Medical systems who sells the equipment first of all.

Here are Pros.

1. For me doing manual drainage on my side was hard unless DH does it for me. I did not want to trouble him on top of everything else.

2. I use the machine daily usually right before I go to sleep. Best Massage ever. Combined w compression sleeve wear avg 8 hrs a day, my PT thinks my ALND arm may be smaller than SNB arm.

3. Depends on you health insurance, co pay may be minimal. Mine was zero. There is some chance I can get my SNB arm sleeve. I love it so much I am willing to pay up to $1,000.00


The cons are,

1. It is bulky.

2. Getting in and out of needs some practice. After about three tries, it takes me about 1 min which includes adjusting light and finding TV channel i like during treatments



Mimi Dx 1/11/2017, IDC, Left, <1cm, Stage IA, 0/2 nodes Dx 1/11/2017, IDC: Papillary/IDC: Cribriform, Right, 3cm, Stage IIIA, Grade 2, 4/17 nodes, ER+/PR+, HER2- (IHC) Surgery 2/15/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy 3/20/2017 Radiation Therapy 7/30/2017 Whole-breast: Breast, Lymph nodes, Chest wall
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Jun 5, 2017 04:31PM Kicks wrote:

I love my FlexiTouch MLD that I've had for 6+ yrs. I use it daily (well sometimes not possible like if out camping and no electricity).

Mine was gotten for me by VA so have no idea of any cost. I just got a new set of garments we the old ones were having 'blow-out' between the chambers. The chest section is less 'combersome' than the last one I had but I understand that they have ones that are even less 'combersome' for the newer machines.

It does a MUCH better job at MLD than I can. I usually use mine in the morning but depending on what I have to do could be any time of day. Basically except for when doing FlexiTouch, I will have my day garments on or night garment on.

I have no problems getting in or out of mine. Well, the first few times with my new chest garment it was a bit 'different' but now - no issues.

Dx 8/7/2009, IBC, Stage IIIC, 19/19 nodes, ER+/PR-, HER2- Chemotherapy 8/24/2009 AC Surgery 10/20/2009 Lymph node removal: Right; Mastectomy: Right Chemotherapy 11/10/2009 Taxol (paclitaxel) Radiation Therapy 2/3/2010 Breast, Lymph nodes
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Jul 12, 2017 12:00PM Castigame wrote:

Kicks,

I had two day long treatment at hospital consists of scans and port removal. All came out good. (I thought I could run home 110 mjles from the excitement)

Have not beeen able to use flexitouch pump. Was surprised that Docs and PAs did not know about the machine. (Moffitt)

Was told wait till tonight and i am antsy. About five or six hrs till I can get in.

Question for you is my right chest wall is to be radiated. 6 wks. Any suggesstions how i can use the machine? I will show RO the video when I ask.


Thank you again.

Mimi


Mimi Dx 1/11/2017, IDC, Left, <1cm, Stage IA, 0/2 nodes Dx 1/11/2017, IDC: Papillary/IDC: Cribriform, Right, 3cm, Stage IIIA, Grade 2, 4/17 nodes, ER+/PR+, HER2- (IHC) Surgery 2/15/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy 3/20/2017 Radiation Therapy 7/30/2017 Whole-breast: Breast, Lymph nodes, Chest wall
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Jul 15, 2017 09:36AM - edited Jul 15, 2017 09:37AM by TampaBayBucsGirl

I am so happy to see this subject. I'm getting a fitting and demonstration for the FlexiTouch pump system on Monday. I'm assuming I will need the full torso. I have lymphedema of the breast (not the arm). I was on the fence about doing this, but now I'm eager about purchasing it after reading the results. It was recommended to me by the lymphedema therapist at BayCare. I'll update everyone once I get it (and start using it). I have very dense breast tissue, so hopefully this does the trick. As the therapist said, it's very difficult to do this on yourself. I just can't hurt myself (I guess).

RebaMacFan - I was told by my RO not to get lymphedema therapy during radiation therapy. It's too much of an irritant during that phase. I'm post radiation therapy. I can tell you that the tissue hardens up during this time. Maybe it's because the swelling is in my radiated breast and not the arm.

Dx 9/29/2016, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Surgery 10/25/2016 Lumpectomy: Left; Lymph node removal: Sentinel Targeted Therapy 12/1/2016 Herceptin (trastuzumab) Chemotherapy 12/1/2016 Taxol (paclitaxel) Hormonal Therapy 2/27/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/28/2017 Whole-breast: Breast
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Jul 15, 2017 10:44AM Kicks wrote:

Rebamacfan - Sorry I missed your question - wasn't ignoring just missed seeing it.

I did not have my FlexiTouch when I did my 25 days of rads. I was already dealing,with LE though. Mine started 9 weeks post UMX (3 post surgery and 6 weeks into 12 weekly Taxol) so I didn't yet have my FlexiTouch during rads but was dealing with LE in elbow area. Talk to your Rads Dr but to me (non-professioal medical person) it would seem logical that ,unless issues develope, FlexiTouch could be used as it is is systematic massage done gently by consistantly by a machine instead of your hands. You might also want to call FlexiTouch and talk with one of their Staff with your questions/concerns. I've called them a couple of times and got good answers to my question(s) by very polite, courteous and apparently knowledgeable Staff.

(Hint - I always have a light cotton (or mostly cotton) long sleeved T- shirt on when I use mine. Even in cooler weather (or with a 'cranked up' A/C), I tend to 'get damp' (read sweat) some and without the long sleeved T-shirt on, the garment sections, arm especially, tend to get a bit 'sticky' when removing. Also the garment sections can not be washed so a long sleeve T-shirt on under allows to easily wash what is actually touching your skin.)

Dx 8/7/2009, IBC, Stage IIIC, 19/19 nodes, ER+/PR-, HER2- Chemotherapy 8/24/2009 AC Surgery 10/20/2009 Lymph node removal: Right; Mastectomy: Right Chemotherapy 11/10/2009 Taxol (paclitaxel) Radiation Therapy 2/3/2010 Breast, Lymph nodes
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Jul 21, 2017 01:27PM Castigame wrote:

yes i agree i should not use the pump. I guess I have to rewire my brain how to MLD w/o it.


Mimi

Mimi Dx 1/11/2017, IDC, Left, <1cm, Stage IA, 0/2 nodes Dx 1/11/2017, IDC: Papillary/IDC: Cribriform, Right, 3cm, Stage IIIA, Grade 2, 4/17 nodes, ER+/PR+, HER2- (IHC) Surgery 2/15/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy 3/20/2017 Radiation Therapy 7/30/2017 Whole-breast: Breast, Lymph nodes, Chest wall

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