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Topic: Is cording lymphedema?

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Aug 8, 2017 08:04PM

VL22 wrote:

I've had so many issues just trying to get chemo started, I just assumed the issue under my armpit had to do with my infection. Now I realize it is cording. First, is this lymphedema? Can I go to a PT for this whil getting chemo or wait until after? Will doing my own stretches help? Thanks

Dx 5/5/2017, IDC, Right, <1cm, Stage IB, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 6/14/2017 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/23/2017, IDC, Right, 1cm, Stage IB, Grade 3, ER-/PR-, HER2- Chemotherapy 8/9/2017 AC + T (Taxol)
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Aug 8, 2017 09:55PM - edited Aug 8, 2017 09:56PM by Jackster51

I'm not an expert in this in any form.. but I also got cording after surgery.. Went to PT - but home stretching worked the best for me... Like a lot of stretching the arm. In doorways... sitting on the floor with arm stretched behind me.. Try and get a professional diagnosis before you start anything... as maybe it is your infection? Hard to say but gentle stretching on your own I don't think could hurt anything.. I hope you find resolution quickly.Oh and to add - I am 5 years out with no Lymphedema as yet.

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Aug 8, 2017 10:16PM Rrobin0200 wrote:

I had mild cording, and when I went to the PT, she indeed said it was mild lymphedema. Stretching and massage several times a day helped me. My cording finally popped..it sounds like a branch breaking...and once it popped, it went away for good.

Dx 3/6/2017, DCIS, Left, 1cm, Stage 0, Grade 3, 0/4 nodes, ER-/PR- Surgery 3/31/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Aug 8, 2017 10:30PM ChiSandy wrote:

Cording is most likely an individual clogged lymph channel so obstructed that it becomes palpable and even visible (I say “most likely” because there are several theories). Lymphedema is swelling due to lymph fluid that has pooled and stagnated so that it can’t flow back through lymph channels into nodes in order to be circulated out into capillaries and into the kidneys to be excreted. The reason it can’t flow is that one or more lymph nodes have been removed or otherwise compromised—usually by surgery or trauma. Both phenomena are disorders of the lymphatic system, which is relatively poorly understood because there is so little education about it in med. school. Visible cording is more common in thinner people, LE more likely to strike the obese or even moderately overweight.

Some of us got stuck with both. It was a cord in my forearm that caused me to make an appt.with the city’s top lymph system expert; by the time I saw him 6 weeks later, the cord had popped but after I told him I had some finger swelling during a transatlantic flight, despite wearing compression, he diagnosed subclinical (Stage 0) LE—so that Medicare would pay for PT. I did once get a flare up to Stage 1, but it receded. Still, I always wear compression for exercise and long flights.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Aug 8, 2017 10:31PM SerenitySTAT wrote:

It's a good idea to see a lymphedema specialist. You can see one during chemo.

Lots of stretching at home got rid of my cording. I would put my hand high in the doorway and pull away gently. I never had popping though.

"Do not overlook the little joys!" (Hesse, 1905) 🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC Left IIIC 10/11 nodes ER+PR+HER2-, 12/2015 Left Mast, 2/2016 4 AC+12 Taxol, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox
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Aug 9, 2017 12:34AM ksusan wrote:

My PT and nurse don't consider it to be LE, but a related phenomenon.

Mutant uprising quashed. Dx 1/2015, IDC, Right, Stage IIA, 1/1 nodes, ER+/PR+, HER2- Dx 1/2015, DCIS, Left, Stage 0, Grade 3, 0/2 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right Radiation Therapy Whole-breast Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Aug 9, 2017 08:15AM VL22 wrote:

Thanks so much for all of the responses!

Dx 5/5/2017, IDC, Right, <1cm, Stage IB, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 6/14/2017 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/23/2017, IDC, Right, 1cm, Stage IB, Grade 3, ER-/PR-, HER2- Chemotherapy 8/9/2017 AC + T (Taxol)

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