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Topic: Lymphedema or inflamatory breast cancer or ??

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Nov 10, 2017 09:49AM

Beehappy wrote:

Hi there. I had a lumpectomy in May. radiation June and July. No huge issues... Now for the last 3 days I have had a painful breast... Flushed, tight, ripply, burning feeling. I had only one node taken out. Could this be lymphedema or more frightening inflammatory breast cancer?

Dx 4/18/2017, IDC, Left Surgery 5/2/2017 Lumpectomy: Left; Lymph node removal: Sentinel Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Radiation Therapy Whole-breast: Breast
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Nov 10, 2017 02:47PM Binney4 wrote:

Beehappy, I'm so sorry this has flared up now--bummer!

If your doctor is not available today, please go right away to the ER, because what you're describing may be cellulitis, a skin infection that can spread rapidly and needs IMMEDIATE treatment.

http://www.stepup-speakout.org/Emergencies_and_Med...

It could also be the onset of truncal (breast/chest) lymphedema, which does often present this way. Lymphedema is an inflammatory condition and in the breast in particular can take the form of tightness and redness. The redness can be from the lymphedema, but since it's not possible to determine that right away, YOU NEED TO GET MEDICAL HELP AT ONCE IN CASE IT IS AN INFECTION INSTEAD.

If antibiotics don't reduce the redness, that's an indication of lymphedema. The next step would be to find a well-trained lymphedema therapist and get started on the gentle massage treatment and compression that will get it back into control.

If you're still reading this, please stop and get to your doctor or ER now!

And do, please, keep us posted and let us know how you're doing.
Gentle hugs,
Binney

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Nov 10, 2017 04:41PM - edited Nov 10, 2017 04:47PM by Kicks

If you can't see your Dr today a trip to an UC or ER would be in order - sooner rather than later as something is definately going on that needs to be seen by medical personnel.

See a LET (LymphEdema Therapist) for a base line evaluation and education as soon,as possible but what you are says seems to need to be seen by your Dr. (or another Dr, PA, or NP) as something is going on.

Yes - it is possible for LE to develope even if only 1 node (or none) was removed. The more nodes removed the more likely that 'it' might raise it's' ugly head. It can develope after any surgery or any traumatic injury.

IBC would be incrediably unlikely! 'Something' is 'going on' and there is no one here who can tell you what is. Only a Dr who actually sees you can. Further testing may be needed and referrals to get 'whatever' is going on undercontrol.

Dx 8/7/2009, IBC, Stage IIIC, 19/19 nodes, ER+/PR-, HER2- Chemotherapy 8/25/2009 AC Surgery 10/21/2009 Lymph node removal: Right; Mastectomy: Right Chemotherapy 11/11/2009 Taxol (paclitaxel) Radiation Therapy 2/4/2010 Breast, Lymph nodes
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Nov 12, 2017 06:50PM LymphActivist wrote:

Sentinel node biopsy (especially in the upper-outer quadrant) followed by full breast radiation makes you a candidate for breast lymphedema (sometimes diagnosed as delayed breast cellulitis). For further information see the article on breast and truncal lymphedema at www.lymphactivist.org/breast_lymphedema_for_therapists.pdf.

I noticed that your original posting was back in April. Have you been diagnosed yet? Have you been seen by a lymphedema therapist? Can you update us?

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Nov 15, 2017 01:46PM Beehappy wrote:

Hey all. Happy to say the breast started to calm down by the weekend. I am on 10 days of antibiotics. Today they did an ultrasound and another mammo. Next week decisions will be made and they will do biopsies if things have not improved completely.

Dx 4/18/2017, IDC, Left Surgery 5/2/2017 Lumpectomy: Left; Lymph node removal: Sentinel Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Radiation Therapy Whole-breast: Breast
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Nov 15, 2017 11:03PM Binney4 wrote:

Beehappy, glad to hear you're moving toward answers. Do, please, keep us posted.

Be well!
Binney

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