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Topic: a fun topic: what do you store your LE stuff in?

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Nov 22, 2017 02:40PM

cookiegal wrote:

At home I have an old yellow Jack Spade leather stand up tote I got at a crazy sample sale in a rundown townhouse with my ex.

On the road I have a nylon drawstring bag from a place that I used to want to work at.

Peace, love, and COOKIES!

You deserve a cookie!
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Nov 22, 2017 06:50PM Kicks wrote:

When at home - My newer day garments (year or less) 'live' in my underwear drawer.. Night sleeve and opera length Isotoner glove stay in the drawer in night stand.

Traveling - 'everything' just gets packed with all other 'clothes'. Sometimes in a suitcase but more often in a backpack depending on where going.

The 'elder' garments get a new (somewhat different) life when new ones come (2 new sets every 6 months). They get recycled into my 'using' boxes. These include my tack boxes, vehicle tool boxes in each of our vehicles, boat tool box, each of my tackle boxes (fly and spinning), my leather working box etc. so IF I'm somewhere that I might be getting 'nasty' (could ruin my newer garments that am wearing) I can switch into an older set before staining/ruining my new ones.

FlexiTouch has his place where he stays at home as is real close to where I usually run him. FT has a smallish 'tub' for travelling with garment sections so all is together.

Dx 8/7/2009, IBC, Stage IIIC, 19/19 nodes, ER+/PR-, HER2- Chemotherapy 8/24/2009 AC Surgery 10/20/2009 Lymph node removal: Right; Mastectomy: Right Chemotherapy 11/10/2009 Taxol (paclitaxel) Radiation Therapy 2/3/2010 Breast, Lymph nodes
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Nov 23, 2017 03:34AM hugz4u wrote:

Oh this is a good one. I keep one in my shed outside in my earthquake kit one in my trunk of car if there's a earthquake in my car, one in my earthquake runaway bag by my bed( granola bars in there to!) yup it's all about the earthquake here.

Otherwise I keep in the bathroom in Landry closet my 2 new current ones as the earthquake ones are worn out. Oh and then I keep a old glove in my garden box because I don't want my new one to get garden dirty!

Hum...... I almost forgot I keep a old set at moms cause once I went there late at night and the next morn I hadn't packed one the night before. Lesson learned.

I will not be caught compressionless! That's my story and I'm keeping to it!

Oh and I keep oldone at the cabin.

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Nov 28, 2017 04:13PM cookiegal wrote:

OMG I love the responses.

I have a bunch of old sleeves, but almost no old gloves, due to my really bad lost glove ratio!

You deserve a cookie!
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Dec 18, 2017 12:26PM amygil81 wrote:

I keep my LE sleeves and gloves in the same dresser drawer as my bras and prostheses. The new ones go on top. When I need one for gardening or swimming, I reach further down the pile.

I keep my bandages and wrapping supplies in the drawers of a vanity table with a seat, that I had bought for my bedroom the month before I found my breast lump. Its mirror is the first place I dared to look at my brand-new mastectomy scar and now-single breast. That's where I sit and rest my LE arm on the table when I wrap it at night, or during a flare when I have to bandage 23/7.

I keep a full set of bandages at my BF's house, one less thing to carry or forget when I stay over. I also have a few sleeve/glove pairs, in case I get one dirty. A spare knitted knocker. And a set of indoor crutches with soft tips so I don't mark up his wood floors. I wish I didn't need any of these things. But we all do what we need to do to get rid of the cancer, then keep on living.

Osteosarcoma in left leg at age 13. DCIS in left breast at 33. IDC recurrence in left chest wall at 42. Dx 12/2000, DCIS, Left, 1cm, Stage 0, 0/3 nodes, ER-/PR- Surgery 12/10/2000 Lymph node removal: Sentinel; Mastectomy: Left Dx 12/2009, IDC, Left, 1cm, Stage IIIB, 3/10 nodes Surgery 12/17/2009 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 1/11/2010 CMF Chemotherapy 5/31/2010 Taxol (paclitaxel) Radiation Therapy 10/31/2010 External: Lymph nodes, Chest wall
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Dec 18, 2017 01:08PM KBeee wrote:

I keep mine in a basket my my bed. I keep an old one and a black one in my work bag. The others are in the basket. Newest ones are in a bag in there together, and older ones are in another bag in there. My bandages are in a plastic bag that I keep in my closet.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/25/2013 Mastectomy: Left, Right Chemotherapy 9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/22/2014 Reconstruction (left); Reconstruction (right) Surgery 1/28/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Surgery 2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Chemotherapy 3/30/2015 AC + T (Taxol) Radiation Therapy 8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Dec 18, 2017 02:02PM Kicks wrote:

Just remembered something else I do with my garments.

When I get new sets, I use a permanent marker and put the date on the tag in them so it's easy to be sure which are newer and which aren't. Over time, use, washing, the dates do fade even though supposed to be 'permanent', so when start getting 'faint/fadded', I remark them.

Dx 8/7/2009, IBC, Stage IIIC, 19/19 nodes, ER+/PR-, HER2- Chemotherapy 8/24/2009 AC Surgery 10/20/2009 Lymph node removal: Right; Mastectomy: Right Chemotherapy 11/10/2009 Taxol (paclitaxel) Radiation Therapy 2/3/2010 Breast, Lymph nodes

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