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Dec 6, 2017 04:34PM
I haven't had individual fingers flare, but for the longest time my hand, then finally my fingers became affected. Since I've had bypass surgery it's not as much of an issue, but while we were doing it, my super awesome great PTs told me to do the following:
When doing MLD you can spend a lot more time on the affected fingers. During the day you can just rub those fingers whenever you think about it, as well as your hand. You can press a little harder than normal when doing your hand to really help force the fluid down. Usually MLD is a lighter touch, but I was advised that to get a little more pressure a try in my hands and fingers. Also, instead of each motion 15 times, on my hands and fingers I spent a lot more time.
If you're not drinking a ton of water of day, see if that makes any difference. For me, the biggest change in my LE was dropping weight, nothing else made a noticeable difference except the bypass. You already said you were tall and thin (so am I now) so that probably won't be your magic bullet. From my research, LE in the hands and fingers is the toughest to fix, but it's not impossible. The hard part is finding the thing that affects your LE and address it. It could be salt, dairy, gluten, typing, exercise, lack of exercise, you name it.
My LE doctor is in plastics and is at one of the hospitals who began the bypass procedure. He's wonderful. The first bypass surgery repaired blockages in my arm below the elbow, the second one found no blockages. I'm not cured, but right now I'm not wearing a sleeve. I need it when exercising, toward the end of the week with all the typing I do, but it's not this constant focus.
2/1/2015, LCIS, Left, Grade 1, ER-
9/30/2015, ILC, Left, 6cm+, Stage IIIA, Grade 1, 1/1 nodes, ER+/PR+, HER2-
11/19/2015 Mastectomy: Left
12/10/2015 Lymph node removal: Underarm/Axillary
1/21/2016 Taxol (paclitaxel)
10/13/2016 Whole-breast: Breast, Lymph nodes, Chest wall
8/17/2017 Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap, Tissue expander placement; Reconstruction (right): Tissue expander placement