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Topic: Lymphedema in the breast

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Jan 30, 2018 05:28PM

angiepie wrote:

I've been wearing a sports bra almost non stop and have gone to a lyphedema specialist for MLD, Kinisio tape, exercises, etc for two weeks to no avail. My breast is still quite firm and swollen. Any suggestions??

Dx 7/26/2017, IDC, Right, <1cm, Stage IB, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 8/25/2017 Lumpectomy: Right Surgery 9/8/2017 Lumpectomy: Right Radiation Therapy 9/22/2017 Multi-catheter: Breast Chemotherapy 10/7/2017 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Jan 30, 2018 07:05PM - edited Feb 13, 2018 11:59AM by buttonsmachine

Hi angiepie, I don't know if this will help you, but I thought I'd share my experience because I got very conflicting advice from healthcare people on how to manage my breast LE.

I developed breast LE after my lumpectomy and SLNB surgery. My LE therapist had me in sports bras, no underwires, etc.. But I am larger breasted so those weren't supportive, and the lymph was pooling on the underside of my breast. My breast surgeon then suggested that I keep my breast elevated to help drain the lymph. I tried a bra with a more perky shape and an underwire (although I should say that I do not have LE where the underwire sits), and it worked great! Most the lymph drained out in a day or two. I still have a little LE in the underside of my breast, but it is significantly improved now. For me, having breast support and elevation was the single most helpful way to solve the problem.

My friend who also has breast LE told me that solaris swell spots have helped her a lot. Maybe you could give those a try too.

Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 11/1/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/1/2017 Whole-breast Hormonal Therapy 5/1/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 9/2017, IDC, Right, Grade 3, 2/5 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 12/27/2017 AC
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Jan 30, 2018 07:25PM gb2115 wrote:

I don't have any advice, but I think I have breast LE too, developed over the last week. It goes away when I don't wear a bra but am having trouble figuring out what type of bra is best because I would prefer wearing one. I have a call out to my CLT, hoping she can help.

Dx IDC in October 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Mammaprint low risk luminal A, Lumpectomy + radiation + tamoxifen.
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Jan 31, 2018 10:46AM Lovey222 wrote:

Wow...I have similar symptoms and it never occurred to be it breast lymphedema. I was seeing a LE specialist until my exchange surgery in September. How were you diagnosed with this. Can you elaborate on what breast lymphedema feels like?

Thanks, Lovey


Dx 7/2015, IDC, Left, 2cm, Stage IIA, Grade 1, 0/3 nodes, ER+/PR+ Dx 10/2016, IDC, Left, 1cm, Grade 1, ER+/PR+ Surgery Lymph node removal; Mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement Radiation Therapy Breast, Chest wall Surgery
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Jan 31, 2018 05:51PM angiepie wrote:

Thank you, Buttons! I am trying the underwire sports bra and have ordered a swell spot! Great ideas

Lovey- Apparently I've had it for months but it came and went and I just kept thinking it was from surgery and aggravation from chemo as well as the multi-catheter radiation I did in Sept. Was googlng and researching and figured it out and went to a lymphatic massage therapist. After two sessions with her (and no relief) she sent me to the Baylor Lymphedema Clinic/specialist...

Dx 7/26/2017, IDC, Right, <1cm, Stage IB, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 8/25/2017 Lumpectomy: Right Surgery 9/8/2017 Lumpectomy: Right Radiation Therapy 9/22/2017 Multi-catheter: Breast Chemotherapy 10/7/2017 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Feb 1, 2018 07:41PM - edited Feb 1, 2018 07:42PM by hugz4u

Try no band around you rib cage. A really tight stretchy to small cami with a swell spot. That should work because you won't be trapping fluid around the rib cage with a braband. Under wires are usually not recommended but hey we're all different here and what works for one may not work for another. A band kills me unless super loose.

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Feb 7, 2018 11:41PM - edited Feb 7, 2018 11:44PM by Susanrebecca

Did they teach you how to do your own manual lymph drainage massage? Lots on YouTube. Really helped me with swelling and pain. Mine was bad for months even with massage, taping and physical therapy. It seemed to slowly get better after 3 years .Arimidex made my lymphdema significantly worse. Stopped taking it. I am now going to try tamoxifen. Since my lumpectomy was on the right side. I have to sleep on my left side or it increases the lymphdema in my right breast and armpit. My thoughts are with you.

Dx 11/17/2014, IDC, Right, <1cm, Stage IA, Grade 2, 0/7 nodes, ER+, HER2- Surgery 12/8/2014 Lumpectomy: Right; Lymph node removal: Right
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Feb 8, 2018 05:29AM gb2115 wrote:

I have found I have to apparently wear an undergarment that is not necessarily tight (like compression), but is absolutely smooth on the side. If the fabric wrinkles at all, fluid will fill the wrinkle in one area. Truly the most bizarre thing. I don't get bra strap indentations, just this fluid ridge. For right now I am making an effort to smooth the side of my bra during the day, and take it off when I get home. Seems to help. Planning to shop soon to try some different items. Maybe a loose cami. Gut feeling is that loose is best. I'm pretty small so could get away with it.

Dx IDC in October 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Mammaprint low risk luminal A, Lumpectomy + radiation + tamoxifen.

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