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Topic: Cording surgery

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Apr 28, 2018 02:02PM

jan-m wrote:

I have tried massage therapy to release the cording but it has never worked.

I am booked to have it released surgically May 18/2018, but am a little concerned that it may induce lymphedema. I have it a little in my arm but don't want to wake a sleeping lion and have it get any worse.

Has anyone had surgery to release cording?

How did it go?

IDC, ILC, DCIS 1.9cm & 3.8cm (larger one didn't show on mammo) Lumpectomy March 17th. Apr, 21st Unilateral Mastectomy + Axillery node dissection Dx 2/23/2010, IDC, Left, 5cm, Stage IIIA, Grade 2, 1/22 nodes, ER+/PR+, HER2-
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May 1, 2018 01:36AM hugz4u wrote:

Welcome from the west coast.Don’t know much about cording. Go to stepup-speakout.org It’s our lymphedema website some girls here wrote about le education. It’s fantastic. It will have cording education there.

You also need to be seen by a lymphedema therapist to teach you self care with your lymphedema. That website will help you find a therapist nearby who specializes in this therapy. No fly by night course therapist allowed. Certified only. This is tricky treatment that needs to be done proper. Keep asking questions. Also at the main menu here at lymphedema threads type in cording in the search bar and see what comes up.

Even if you have a little bit of lymphedema you will want to educate yourself to keep it from progressing because then it turns into life long beast. You must look after it now and not ignore it. Proactive is smart with LE.

Jump over to British Columbia threads and join us there. We are a friendly bunch.

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May 1, 2018 03:42PM Outfield wrote:

Yes, I did.

I had one enormous cord that was much like a tendon. On the path report, the diameter is listed as 1cm. None of my doctors had ever seen anything like it, and it was just too big and thick to respond to the usual treatments. I really, really tried hard to stretch it out - 100% effort for about a year.

My incision was very small - horizontal in my axilla above my mastectomy scar. My mastectomy scar follows the bottom of my pecs. The surgeon removed a lengthwise piece of it so it couldn't reattach - similar to a vasectomy. I still have smaller ones but they were stretchable and don't bother me, and we agreed he was just going after the big one.

I had lymphedema before the surgery - mild and manageable - and it didn't change afterward.

Good luck.


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May 15, 2018 11:21PM jan-m wrote:

Thanks so much for your responses hugz and Outfield!!

I will definitely go and check out the website you suggested hugz!

And Outfield, I am very glad to hear that your surgery went well and that your Lymphedema didn't change after the surgery. Yours sounds very similar to mine and I feel encouraged that mine will not change as well!!

Thanks again, ladies!!

IDC, ILC, DCIS 1.9cm & 3.8cm (larger one didn't show on mammo) Lumpectomy March 17th. Apr, 21st Unilateral Mastectomy + Axillery node dissection Dx 2/23/2010, IDC, Left, 5cm, Stage IIIA, Grade 2, 1/22 nodes, ER+/PR+, HER2-
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May 16, 2018 03:52PM buttonsmachine wrote:

Hi jan-m, please let us know how things go with your surgery. I have had lymph nodes removed three times and I've had cording every time. The first two times it resolved with gentle stretching, but this time the cords are not releasing the way they did before. Not yet anyway, maybe they still will. Best wishes to you and keep us posted.

Initial diagnosis at 32 years old. Chest wall resection 18 months later due to skin metastasis, probably from needle track seeding during initial biopsy. Skin graft from right thigh! Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 11/1/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/1/2017 Whole-breast Hormonal Therapy 5/1/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 9/2017, IDC, Right, Grade 3, 2/5 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 12/27/2017 AC Dx 1/2018, IDC, Right, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 3/13/2018 Lymph node removal: Underarm/Axillary; Mastectomy: Right Chemotherapy 5/13/2018 Xeloda (capecitabine) Radiation Therapy 5/14/2018 Chest wall
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May 16, 2018 10:20PM jan-m wrote:

Thanks so much buttons!

For sure I will let you know how things go!

Thanks again!

IDC, ILC, DCIS 1.9cm & 3.8cm (larger one didn't show on mammo) Lumpectomy March 17th. Apr, 21st Unilateral Mastectomy + Axillery node dissection Dx 2/23/2010, IDC, Left, 5cm, Stage IIIA, Grade 2, 1/22 nodes, ER+/PR+, HER2-
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May 28, 2018 12:00PM jan-m wrote:

So far so good on the lymphedema in my arm not getting any worse from the cording surgery :)

As with Outfield, my surgeon took a little piece of the cording out using my mastectomy scar. He got the large cord but I have found since that I have smaller ones also, which do get quite tight.

I will be going to see my surgeon in a few weeks for a follow up and I guess will go from there to see if we go after any of the other cords

It is very nice to have the extra extension in my arm when I put my arm up

.

IDC, ILC, DCIS 1.9cm & 3.8cm (larger one didn't show on mammo) Lumpectomy March 17th. Apr, 21st Unilateral Mastectomy + Axillery node dissection Dx 2/23/2010, IDC, Left, 5cm, Stage IIIA, Grade 2, 1/22 nodes, ER+/PR+, HER2-
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May 30, 2018 11:55PM buttonsmachine wrote:

Glad to hear your range of motion is better, and that the surgery hasn't worsened your lymphedema - that's great news! Let us know how things go for the smaller cords too.

My big cord has improved slightly, but not much, so I started PT last week. We'll see if that works - although I'm glad to know there are other ways of dealing with stubborn cords.

Thanks for sharing your experiences on this! :-)

Initial diagnosis at 32 years old. Chest wall resection 18 months later due to skin metastasis, probably from needle track seeding during initial biopsy. Skin graft from right thigh! Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 11/1/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/1/2017 Whole-breast Hormonal Therapy 5/1/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 9/2017, IDC, Right, Grade 3, 2/5 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Chemotherapy 12/27/2017 AC Dx 1/2018, IDC, Right, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 3/13/2018 Lymph node removal: Underarm/Axillary; Mastectomy: Right Chemotherapy 5/13/2018 Xeloda (capecitabine) Radiation Therapy 5/14/2018 Chest wall

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