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All TopicsForum: Lymphedema → Topic: Your story for early signs of Lymphedema

Topic: Your story for early signs of Lymphedema

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: May 9, 2018 07:12PM - edited May 9, 2018 07:13PM by Aliceinchains

Aliceinchains wrote:

I had 6 nodes removed during my sentinel node biopsy (it was about 9 days ago). I am experiencing sore, numb, achy and nerve pain in my left arm/armpit/shoulder. I am curious if others experienced this as early warning signs of lymphedema. I see my oncologist tomorrow but was curious about others and appreciate the insight anybody may be able to give.💖

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May 9, 2018 07:45PM Billb464 wrote:

I also had 6 nodes taken out along with my lumpectomy and reconstruction in January. I had all of the things you have mentioned. I was told by BS, and PS and PT that this is normal ( the nerves are trying to regrow). I started PT after radiation in April and I did have some banding in the arm pit area. I have exercises to help with that. We also took a measurement of my arm the 1st week in April and then last week, my arm had actually lost a little fluid from the 1 st measurement. So we don’t think it will be a problem. But, as I am sure you know everyone is different. When you see your surgeon or MO I would ask for a referral to a PT that specializes with BC patients. Good Luck and I hope this h

Dx 8/6/2017, IDC, Right, 1cm, Stage IIA, Grade 2, ER+/PR+, HER2- (IHC) Chemotherapy 8/24/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx 1/10/2018, DCIS/IDC, Right, 2cm, Stage IIB, Grade 1, 2/6 nodes, ER+/PR+ Surgery 1/10/2018 Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Reconstruction (right): Latissimus dorsi flap Radiation Therapy 3/1/2018 Whole-breast: Breast, Lymph nodes
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May 10, 2018 08:41AM Aliceinchains wrote:

Thank you Billb464! I will ask today for some help in that direction. I’m so glad yours is doing well!! I hope to have the same outcome

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May 20, 2018 11:09AM cookiegal wrote:

OK, so my journey to LE

Started with breast swelling after rads (Jan)

Injured arm in exercise for breast cancer class (April)

had months of painful spasms in arm and frozen shoulder (May June)

Developed small circle of swelling (July)

Eventually turned into arm LE (August, September, Oct)


You deserve a cookie!
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May 21, 2018 11:02AM hugz4u wrote:

Welcome all. Please see stepup-speakout.org. A fabulous educational website our savvy girls here wrote. It’s a catch all lymphedema website.

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May 21, 2018 09:37PM Micmel wrote:

Definitely ask about it early. Mine felt heavy like a balloon with no more room, some Tingles, certainly discomfort and odd pain with touching. Even with a shirt. I had every node out of my arm, I saw a specialist immediately and it helped me tremendously, just don't wait. Get a hold on it now. So it can be managed, if that is what you're developing. Unfortunately, they don't really explain that risk very well with mastectomies or anything node related. It can get pretty painful, so stay ahead of it, and be persistent.They may recommend a compression sleeve which I find relieves the pain immediately. I wish you luck. ~M~

Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/20/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/7/2016 Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Chemotherapy Chemotherapy
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May 28, 2018 09:48PM Shigh wrote:

What are the first signs besides swelling will I see for Lymphedema?

Sue high
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May 28, 2018 09:49PM - edited May 28, 2018 09:49PM by Shigh

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Sue high
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Jun 1, 2018 08:21PM - edited Jun 1, 2018 08:23PM by hugz4u

Not always swelling. Mine is very little. Tingly,full like a water ballon feeling. Tight. Achey or just plain weird are all signals.might get tired arm fast after activity. One or all together. Today's change of weather is making it weird.

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