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Topic: Massage - considerations for sub-clinical LE?

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Jul 20, 2018 11:36AM

Lexica wrote:

Hi, all.

I had a BMX in December 2017 - 11 nodes removed. I have subclinical LE and am wearing a sleeve almost every day, and one at night as well. I have some pain and discomfort, not terrible, and gets better when I wear the sleeves. When my LE specialist/PT scanned my arm after wearing the sleeve for a week, there was a significant difference in volume, so the sleeves are effective.

Anyway, I want to get a massage because my muscles are so tight in my neck and shoulder on the cancer side, and I fear doing it may trigger more LE. Has anyone gotten a massage with LE, or subclinical LE? I plan to find someone who is trained (i.e., not just a massage envy person), but I wanted to get some opinions before I go ahead with it.

Thanks.

Diagnosed at 34. Dx 7/2017, IDC, Left, 6cm+, Stage IIIC, Grade 3, 5/11 nodes, ER+/PR+, HER2- (IHC) Surgery 12/15/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 1/16/2018 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Aromasin (exemestane) Chemotherapy AC + T (Taxol)
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Jul 20, 2018 11:54AM NancyD wrote:

I was given a gift card to a local spa and very fortunately the masseuse had taken training in LE massage. I don't think I would have let her work on me if she hadn't. She was very careful about my left side (cancer side) and I actually saw a small reduction in my arm when I went home later.


Life is good. It's not perfect. but it's good. Dx 2/22/2008, IDC, Left, Stage IIIA, Grade 2, 4/10 nodes, ER+/PR+, HER2- Chemotherapy 3/21/2008 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 7/10/2008 Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 8/31/2008 Arimidex (anastrozole) Radiation Therapy 9/4/2008 Breast, Lymph nodes Surgery 1/27/2010 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Jul 20, 2018 05:20PM ksusan wrote:

You might ask your LE specialist for a recommendation. I don't have LE but did have nodes out on both sides, so I'm alert to potential triggers. I had my trained LE specialist train a massage therapist on how to avoid triggering LE and how to do some drainage while she was working on me. I really needed massage for range of motion, myofascial release, and scar adhesions. So far, so good.

Mutant uprising quashed. Dx 1/2015, IDC, Right, Stage IIA, 1/1 nodes, ER+/PR+, HER2- Dx 1/2015, DCIS, Left, Stage 0, Grade 3, 0/2 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right Radiation Therapy Whole-breast Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jul 23, 2018 06:33AM Lexica wrote:

Thanks for the tips :)

Diagnosed at 34. Dx 7/2017, IDC, Left, 6cm+, Stage IIIC, Grade 3, 5/11 nodes, ER+/PR+, HER2- (IHC) Surgery 12/15/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 1/16/2018 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Aromasin (exemestane) Chemotherapy AC + T (Taxol)
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Jul 23, 2018 02:54PM HersheyKiss wrote:

Some LE specialists are also licensed massage therapists. Perhaps contacting the LE training programs for specialists in your area will be helpful.

https://lymphaticnetwork.org/living-with-lymphedem...


Dx 3/1/2017, ILC, Left, 2cm, Grade 1, 3/16 nodes, ER+/PR+, HER2-
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Sep 6, 2018 07:07PM NM71 wrote:

I got Lymphedema soon after surgery, wore sleeves gloves for a year. Our local Lymphedema clinic is worthless. Then 2 yrs ago I found a great lymphatic massage therapist. I get one , whole body lymphatic,every week and haven’t worn a sleeve for most of the last two years. I probably have stage 1, but recommend it for all. Expensive, but worth it, or of insurance pays. She also has gotten rid of most of the deep radiation scarring.

If u can find a licensed lymphatic therapist, insurance may pay. Medicare doesn’t.

Dx 3/18/2015, IDC, Right, 2cm, Stage IIB, 1/7 nodes, ER+/PR+, HER2- Chemotherapy 4/19/2015 AC Surgery 7/22/2015 Lumpectomy; Lymph node removal: Right Radiation Therapy 9/9/2015 Whole-breast Hormonal Therapy 11/1/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 6, 2018 08:40PM JKL2017 wrote:

Lexica, my LE was sub-clinical & I had a single episode of LE swelling over a year ago. I have been getting regular MLD massages since then. The massages have been effective in clearing any congestion I'm experiencing & I believe they've kept me healthier than ever (I haven't had a cold in over a year).

I also think the massages have kept my LE from progressing; I have been told that I currently have no evidence of LE. My therapist is familiar with LE & is very careful not to aggravate it. At times I have asked her to work on tight muscles on my affected side & she has always been able to relax them without creating any LE flares. Just make sure to find an LE trained masseuse & discuss your concerns with her in advance. Good luck!

Dx 2/2/2017, ILC, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/7/2017 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 3/19/2017 Multi-catheter: Breast Hormonal Therapy 5/23/2017 Arimidex (anastrozole), Aromasin (exemestane)

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