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Help with Abbreviations

Topic: First timer

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Sep 26, 2018 02:57PM

lg10 wrote:

Hi everyone. I will be seeing a specialist tomorrow, but I wanted to see how people have handled mild le flare ups in their hands. This is my first experience and it was brought on by radiation. I feel a lot of tightness around the joints in my hands and there is some mild swelling. I read that is was hard to treat lymphedema in the hands so I wanted to see if you ladies had any suggestions or advice. Anything specific i should ask my therapist tomorrow? Thanks so much!

Dx 1/3/2018, DCIS/IDC, Right, 2cm, Stage IIA, Grade 3, 1/14 nodes, ER+/PR+, HER2+ Surgery 1/29/2018 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Right Chemotherapy 3/15/2018 AC + T (Taxol) Targeted Therapy 5/10/2018 Herceptin (trastuzumab) Targeted Therapy 5/10/2018 Perjeta (pertuzumab) Hormonal Therapy 8/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 8/12/2018 Whole-breast: Breast, Lymph nodes, Chest wall
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Sep 26, 2018 04:09PM Morwenna wrote:

Hello there.

If it is both hands it's pretty unlikely to be lymphedema. I see you recently started on Tamoxifen as well and that can cause joint swelling.

If you do have hand lymphedema there are compression gloves that one normally wears with a sleeve. Hand lymphedema alone is also unusual.

Just be prepared to describe when and where you notice swelling, if it follows any pattern and what makes it better or worse if anything.

Lymphedema arises when the normal lymph drainage channels are damaged and unable to cope with transporting the lymphatic load from the tissues in the affected area which then back up with fluid collecting in the tissues.

Dx 11/8/2012, IDC, 6cm+, Stage IIIA, Grade 3, 1/11 nodes, ER-/PR-, HER2- Surgery 11/23/2012 Lumpectomy: Left; Lymph node removal: Left Surgery 12/12/2012 Mastectomy: Left Chemotherapy 1/9/2013 AC + T (Taxol) Radiation Therapy 7/22/2013 Breast, Lymph nodes Surgery 1/6/2015 Prophylactic mastectomy: Right; Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap
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Sep 26, 2018 04:36PM lg10 wrote:

Thank you for your response! I’m interested to see what she says tomorrow. I don’t notice any swelling in my arm. It’s mostly located between my knuckles—only on my surgery hand. Maybe I just have some severe inflammation from the radiation.

Dx 1/3/2018, DCIS/IDC, Right, 2cm, Stage IIA, Grade 3, 1/14 nodes, ER+/PR+, HER2+ Surgery 1/29/2018 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Right Chemotherapy 3/15/2018 AC + T (Taxol) Targeted Therapy 5/10/2018 Herceptin (trastuzumab) Targeted Therapy 5/10/2018 Perjeta (pertuzumab) Hormonal Therapy 8/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 8/12/2018 Whole-breast: Breast, Lymph nodes, Chest wall
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Sep 27, 2018 08:33PM Outfield wrote:

Ig10, my arm is affected, but my hand not so much - only very occasionally. I do have a glove that I can wear if it does swell, but I've found that wearing my nightgarment, which covers my fingers to their tips, is often good enough. I also learned how to wrap, including my fingers.

Everyone's lymphedema is unique, so if you do end up getting a lymphedema diagnosis it's definitely a good idea to research strategies, but you'll have to experiment a bit to find what works for you.

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Oct 3, 2018 07:45PM hugz4u wrote:

if it’s le and in your fingers it would be wise to get a well fitting glove

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