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Topic: New Compression Sleeve: Advice

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Jan 11, 2019 07:35PM - edited Jan 11, 2019 08:34PM by Jojobird

Jojobird wrote:

Hello wonderful ladies,

I just got a compression sleeve for mild lymphedema. Mostly upper arm. If you have one, did you start with wearing it all day? It is not painful but it does feel tight. How were your first days with your sleeve?

Thank you for any suggestions.

Jojo

My blog: pinkstinks.blog/ Dx 3/2016, IDC, Right, 6cm+, Stage IIIC, Grade 3, 21/21 nodes, ER-/PR-, HER2- Surgery 4/18/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Dx 4/2018, IDC, Right, 5cm, Stage IIB, Grade 3, ER-/PR-, HER2- Chemotherapy 4/27/2018 Taxotere (docetaxel), Xeloda (capecitabine) Chemotherapy AC + T (Taxol) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Jan 12, 2019 01:50AM - edited Jan 12, 2019 01:51AM by Binney4

Jojobird, good question! Hopefully you were properly fitted for the sleeve by your lymphedema therapist or a trained fitter, yes? Start off with a couple of hours (or even just an hour) at a time, and see how your arm responds. Work up gradually to all day (or whatever your therapist has recommended). Most important times for using your sleeve would be for exercise, any unusual activities, lifting anything (groceries, for instance), and driving, so maybe start out with those times and work up.

Here's some information about the way a sleeve should fit and feel:

http://www.stepup-speakout.org/proper_fitting_of_l...

You don't mention a glove or gauntlet (fingerless "glove"), but you might want to consider getting some hand protection as well. Here's why:

https://lymphedivas.com/blog/use-of-hand-compressi...

Good for you for being on top of this early! Gentle hugs,
Binney


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Jan 12, 2019 11:20AM Jojobird wrote:

Thank you so much, Binney! I did get a gauntlet. All of this was fitted. It’s a beautiful henna tattoo style. I really appreciate your suggestions and links. Hopefully all will go well. Many thanks

My blog: pinkstinks.blog/ Dx 3/2016, IDC, Right, 6cm+, Stage IIIC, Grade 3, 21/21 nodes, ER-/PR-, HER2- Surgery 4/18/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Dx 4/2018, IDC, Right, 5cm, Stage IIB, Grade 3, ER-/PR-, HER2- Chemotherapy 4/27/2018 Taxotere (docetaxel), Xeloda (capecitabine) Chemotherapy AC + T (Taxol) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Jan 14, 2019 09:36AM - edited Jan 14, 2019 09:37AM by sherl

When I first begin to were my sleeve it was a little tight. I found out it is best to were it when you are actively up and about. I take the sleve off at night or when I take a nap. It does feel a little tight at first but after continiously wearing the compresion sleeve ,I noticed the swelling did go down and less pain in the arm and hand.

SLE

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