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Jul 10, 2019 09:01AM
Poor fit is exactly why I stopped wearing a sleeve and gauntlet eleven years ago!
My lymphedema didn't seem to get worse without them until I had my second breast cancer and mastectomy/DIEP reconstruction in January of this year. I'm reluctantly going to see a new therapist today. My MO wanted me to see one because of the increase in swelling. I am dreading the whole wrapping/new garments thing and I know it will cost me a lot more than it did years ago. I am going for a consultation (1 hour) today, so I am not sure what the therapist will recommend.
I really hate that this condition exists. It is a life sentence. I know there are worse things, but it adds to my depression.
I just got back from vacation, 3 days, one way, by car to see my son and family, because I am too afraid to fly. My son said he didn't think driving all that way was any better for the lymphedema. I know I can't do that drive again, just too much!
I am trying to have a positive attitude, planning a more plant based diet and incorporating an exercise program.
6/4/2003, IDC, Left, 1cm, Stage IB, 0/24 nodes, ER+/PR+, HER2-
7/16/2003 Lumpectomy: Left
11/4/2018, ILC, Left, 1cm, Stage IB, Grade 2, 0/0 nodes, ER+/PR+, HER2- (IHC)
1/9/2019 Mastectomy: Left; Reconstruction (left): DIEP flap
4/25/2019 Femara (letrozole)