Oct 12, 2019 11:17PM rlmessy wrote:
Hi max2111...you might have moved on from this question but I am newly diagnosed and scanning the boards and saw your question.
My mom was dx with BC in 2006. Right mastectomy and multiple lymph nodes removed. From 2006 - 2012 we had no issues with lymphedema. We moved to South Carolina in 2012 and cellulitis started aggressively. She has had about 13 episodes since then. The last one landed her in ICU for 5 days.
Honestly, I cannot figure out the rhyme and reason for when she will get it. She filleted her forearm one time, just peeled back about an inch of skin. I treated that at home with the top of a tube sock holding the dressing on because I could not use tape. The ICU visit had no identifying starting injury or cut.
Couple of things we have started doing are AM and PM inspections to check for any redness or swelling. I am able to wrap her arm so if any swelling begins I wrap instead of her normal compression sleeve. We also keep antibotics at home so if anything starts I begin treatment right away and monitor every 30 minutes.
The timing varies but one of my moms signs it is starting is getting the chills. Within a few hours of that complaint the redness will start. Then it moves fast for her. I mark it with a sharpie and check every 30 minutes after starting treatment.
I also measure pretty often and have been told that swelling can be a risk factor.
Hope some of that helps.