We are 222,923 members in 82 forums discussing 156,988 topics.

Help with Abbreviations

Topic: Lymphedema & Keto diet

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Sep 10, 2019 06:28AM

fishingal68 wrote:

Hi,

Last week my PA put me on a keto diet, totally unrelated to my truncal and arm lymphedema. (I had gained an excessive amount of weight due to SE from medication). A BC survivor friend told me she had a noticeable improvement of her lymphedema when she lost weight. Have any of you experienced improvement or total resolution of your lymphedema while on a keto diet?

Dx 9/7/2017, DCIS/IDC/IDC: Cribriform, Right, 2cm, Stage IIB, Grade 3, 1/3 nodes, ER-/PR-, HER2+ Targeted Therapy 10/9/2017 Herceptin (trastuzumab) Chemotherapy 10/9/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 2/16/2018 Mastectomy; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 5/14/2018 Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Page 1 of 1 (8 results)

Posts 1 - 8 (8 total)

Log in to post a reply

Sep 10, 2019 07:50AM - edited Sep 10, 2019 07:56AM by Spoonie77

Many people experience a variety of SEs or vice versa a rainbow of different improvements for many reasons since our bodies are all different. One thing works for another while it may not work at all for another. Unfortunately this seems to be true for Lymphedema.

Perhaps losing weight will help your LE. I hope it does! That would be wonderful and certainly has happened in the case of your friend. However if it doesn't, please do not get discouraged. It hasn't helped me with my LE either.

There are studies showing that the majority of people do not see LE improvement due to weight loss or exercise programs. That being said, weight loss (which is a goal of mine as well) will benefit us in many other ways.

I wish you much luck on the continuing weight loss. :)


From BCO -

Home-Based Weight Loss, Exercise Programs Don't Help Breast Cancer-Related Lymphedema

"Neither at-home weight loss nor exercise programs — nor a combination of the two — improved lymphedema beyond the standard of care in overweight women who had been treated for breast cancer, according to a study."

Life long "Spoonie". Entered the BC world @41 w/ DX of IDC. DXd @ 42 w/ MS. Treatment: LX/SLNB/RADs. Plan A: 5mg Tamoxifen = 0 QOL. Plan B: Zoladex = Confirmed Allergy. Plan C: Unknown, the journey continues. PS: Not a doctor, just a curious Googler. Dx 7/20/2018, IDC, Left, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Dx 8/30/2018, DCIS, Left, 1cm, Stage 0, Grade 2 Surgery 8/30/2018 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/1/2018 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 3/30/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 7/2/2019 Zoladex (goserelin)
Log in to post a reply

Sep 10, 2019 08:17PM fishingal68 wrote:

Thanks, Spoonie, for the information. LE was my 'one thing' I knew would get to me in this cancer hell...and it certainly has.

Dx 9/7/2017, DCIS/IDC/IDC: Cribriform, Right, 2cm, Stage IIB, Grade 3, 1/3 nodes, ER-/PR-, HER2+ Targeted Therapy 10/9/2017 Herceptin (trastuzumab) Chemotherapy 10/9/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 2/16/2018 Mastectomy; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 5/14/2018 Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Sep 10, 2019 08:32PM SpecialK wrote:

fishingal - I have bi-lat lymphedema, worse on the right side that had more nodes removed. I gained weight during chemo and anti-hormonals - eventually ending up about 20 lbs heavier than at diagnosis. I tried a number of ways to lose, South Beach, Mediterranean with walking 5 miles a day, etc. - that had worked in the past, pre-cancer, when I tried to lose a few vanity pounds. I lost nothing. I tried an anti-inflammatory elimination diet after a friend did it for arthritis pain and she lost weight as a side benefit. I had three surgeries during that six month period and still lost 22 lbs. I found that eliminating foods that commonly cause allergies and sensitivities did improve my arm. This is the diet I used:

http://www.chewfo.com/diets/the-virgin-diet-by-jj-virgin-2012-what-to-eat-and-foods-to-avoid-food-list/

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
Log in to post a reply

Sep 11, 2019 12:06AM SerenitySTAT wrote:

Not keto, but after a Whole30 and 5 1/2 lbs down, my LE went down a little.

"Do not overlook the little joys!" (Hesse, 1905) 🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC Left IIIC 10/11 nodes ER+PR+HER2-, 12/2015 Left Mast, 2/2016 4 AC+12 Taxol, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane
Log in to post a reply

Sep 11, 2019 09:38PM fishingal68 wrote:

Thank you all for giving me reinforcement !

Dx 9/7/2017, DCIS/IDC/IDC: Cribriform, Right, 2cm, Stage IIB, Grade 3, 1/3 nodes, ER-/PR-, HER2+ Targeted Therapy 10/9/2017 Herceptin (trastuzumab) Chemotherapy 10/9/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 2/16/2018 Mastectomy; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 5/14/2018 Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Sep 11, 2019 09:45PM Yndorian1 wrote:

Kathy Bates, the actress, who also had BC and lymphedema, said that her lymphedema improved a lot when she lost weight. Good luck!

"Only Love turns the mud into a Miracle" Silvio Rodriguez Dx 9/2018, IDC, Left, 2cm, Stage IIB, Grade 2, 4/8 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 10/17/2018 AC + T (Taxol) Surgery 6/10/2019 Lumpectomy; Lymph node removal: Left, Underarm/Axillary Radiation Therapy 9/1/2019 Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Sep 16, 2019 10:29AM Acucindy wrote:

I have LE in my breast only. I sleep in my bra. If I go with out the bra it is MUCH worse and hurts. I am starting radiation today. Any thoughts on how to balance needing compression from the bra

and the burn of radiation? Rock and a hard spot! ??

Dx 7/5/2019, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Radiation Therapy Surgery Lumpectomy: Left; Lymph node removal: Sentinel
Log in to post a reply

Sep 16, 2019 12:55PM Yndorian1 wrote:

Acucindy : I think you shouldn't have problems with your bra until 10/15 rads ... today I did 11/33 and my skin is doing well. You can use a cotton cloth between your skin and your bra. You can take a look at what Spoonie77 writes here about his boob lasagna:

https://community.breastcancer.org/forum/70/topics...

Good luck!

"Only Love turns the mud into a Miracle" Silvio Rodriguez Dx 9/2018, IDC, Left, 2cm, Stage IIB, Grade 2, 4/8 nodes, ER+/PR+, HER2- (IHC) Chemotherapy 10/17/2018 AC + T (Taxol) Surgery 6/10/2019 Lumpectomy; Lymph node removal: Left, Underarm/Axillary Radiation Therapy 9/1/2019 Whole-breast: Breast, Lymph nodes, Chest wall

Page 1 of 1 (8 results)