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Topic: My rebounding experience

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Oct 8, 2019 10:48AM

lynn1946 wrote:

Hi gang...just wanted to share this. I have LE in both arms, chest, back and abdomen.. I would say it's a bit more than mild with swelling in the chest and back and my arms. I use Sigvaris sleeves and wear gauntlets when I walk my two miles each morning and have been wearing a Marena Compression garment which comes down to my waist.. I cut the long sleeves off and make it short sleeves for just covering my compression sleeves. I do Lebed exercises each morning and sometimes in the afternoon if I get a bit desperate..so... hang in there with me while I get to the point. Lately my LE seems worse and it's been a bit of a struggle to keep it under control (we all know how that feels) .. I started rebounding (gentle jumps WITHOUT leaving the surface) for 6 mins twice a day.. I started out with more but it felt too much and made my LE feel worse, burning and pain under my right rib.. found it hard to put my socks on for the pain if I bent over... SO... at first I think I felt a bit worse but I'm putting that down to the lymph moving.. after a week of doing this every day my body feels calm, my pain has all but gone (I dare not say it's completely but it could be) I can put my socks on easily - AND I haven't worn my compression garment for three days straight!!!!! unheard of.. I truly and absolutely believe I'm moving lymph like crazy - also peeing a lot. I got my rebounder (mini trampoline) from Walmart - less than $40 I think..I did not wear my gauntlets this morning and my wrists stayed normal looking. I'm really excited about it.. I use spotify music - any you like at about 112 to 118 beats a minute..there is a low tempo playlist with some good tempo music if you search. It's not hard to do.. keep it gentle (I tend to get carried away) easy on the knees... I can feel the lymph moving now which is reassuring.. drink lots of water after (squirt of lemon is good) to flush toxins..If you try it and I hope you do let us all know how you felt about it and if it worked for you. We need all the help we can get. (remember to hold onto something - when bouncing). Would love to hear from you.

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Oct 8, 2019 01:10PM Trishyla wrote:

Sounds wonderful. I'm so glad you're getting relief. I have truncal lymphedema that has now spread to my legs. I've been looking at surgical options, but I'd rather try less invasive treatments if possible. I'm going to look into the rebounding.

Thanks for the info.

Trish

Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 8/4/2017 Xeloda (capecitabine)
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Oct 9, 2019 12:38PM SuQu31 wrote:

lynn1946,

Thank you so much for posting this! I had not heard of rebounding. My lymphedema (arm and side of breast) is relatively mild, but I've been trying to consider all options for dealing with it. Rebounding makes sense to me, and it also sounds like fun, good exercise. I'm excited about the possibility of finding something proactive I can do to get my lymph fluid moving, instead of just dealing with swelling after it occurs. I had exchange surgery a few weeks ago, so I won't be able to try it right away (don't want any jiggling), but I will post my experience after I try it. Please continue to keep us posted!

Re-excision for close anterior margin 10 days after BMX. Dx 10/31/2018, DCIS, Left, Stage 0, Grade 3, ER-/PR- Surgery 12/9/2018 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap; Reconstruction (right): Latissimus dorsi flap Dx 12/10/2018, DCIS, Left, 2cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 12/19/2018
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Oct 9, 2019 02:26PM Yogatyme wrote:

I bought a trampoline just before my diagnosis but haven’t started using it yet. So glad to hear it is helping you so much!! I’ll have to get rebounding...

Yogatyme Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/13/2019 Mastectomy: Left, Right
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Oct 9, 2019 03:38PM lynn1946 wrote:

I think rebounding would help anyone with lymphedema.. I love the idea that when you gently bounce you are opening and closing little valves in the lymph system that pumps the lymph around to were it should go.. apparently you have more lymph in the body than blood and the lymphatic system doesn't have a pump so bouncing takes the place of a pump.. works for me... I'm still not back in my compression top.. just my sleeves.. I'm REALLY excited about my improvements.. HIGHLY recommend it.. give it a week before you really feel good.. I didn't feel so good for the first couple of days but that gradually went away. I think my lymph was stuck in all the wrong places and refused to move for a couple of days.. SOON FIXED THAT.. don't forget.. recommended is 5 mins 3xday for lymphedema.. not staying on it for 30 mins or more.. start out carefully. There is a ton of information out there to google.. look for rebounding and lymphedema..

Happy bouncing my friends.

Lynn

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