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Topic: Super uncomfortable from wrapping. Help!

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Nov 5, 2019 03:42PM

mellee wrote:

I just started complete decongestive therapy and got my arm wrapped for the first time this morning. Now, it's only three hours later, but I'm already feeling really uncomfortable. I have throbbing pain at various points in my arm. My fingers are uncomfortable too and the tips looks slightly purple. I'm getting almost claustrophobic if that makes sense.

I'm freaking out a little because I have no idea how I'm gonna make it through two to three weeks of this. Does it get better? Do you get used to it? I would appreciate any tips you ladies have!

Diagnosed with a 2.3 cm tumor (Grade 1, Luminal A). 100% ER+, 97% PR+, Her2-, Ki67 6%. Oncotype: 17. Mammaprint: Low risk. 2 years later: local recurrence due to needle biopsy seeding. Dx 10/6/2016, IDC, Right, 2cm, Stage IIB, Grade 1, 2/32 nodes, ER+/PR+, HER2- (IHC) Surgery 11/8/2016 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/3/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 6/8/2017 Reconstruction (right): Silicone implant Dx 12/8/2018, IDC, Right, Grade 1, ER+/PR+, HER2- (IHC) Surgery 1/10/2019 Lumpectomy: Right Radiation Therapy 2/28/2019 Whole-breast: Chest wall Hormonal Therapy 3/12/2019 Zoladex (goserelin) Hormonal Therapy 6/8/2019 Aromasin (exemestane)
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Nov 5, 2019 09:48PM MinusTwo wrote:

Melee - I don't have any experience with wrapping, but I hope you called your doc. Doesn't sound right that your fingers are turning purple. Sounds like the wrapping is too tight.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 5, 2019 10:22PM mellee wrote:

My husband told me I am overreacting about the purple fingers. They look OK now. But I did put a call into my PT since it's still really uncomfortable. I'm seeing her tomorrow morning so we'll see if I can make it til then!

Diagnosed with a 2.3 cm tumor (Grade 1, Luminal A). 100% ER+, 97% PR+, Her2-, Ki67 6%. Oncotype: 17. Mammaprint: Low risk. 2 years later: local recurrence due to needle biopsy seeding. Dx 10/6/2016, IDC, Right, 2cm, Stage IIB, Grade 1, 2/32 nodes, ER+/PR+, HER2- (IHC) Surgery 11/8/2016 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/3/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 6/8/2017 Reconstruction (right): Silicone implant Dx 12/8/2018, IDC, Right, Grade 1, ER+/PR+, HER2- (IHC) Surgery 1/10/2019 Lumpectomy: Right Radiation Therapy 2/28/2019 Whole-breast: Chest wall Hormonal Therapy 3/12/2019 Zoladex (goserelin) Hormonal Therapy 6/8/2019 Aromasin (exemestane)

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