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Topic: Can Lymphedema get worse after reconstruction surgery?

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Nov 5, 2019 04:48PM

sunnyjay wrote:

I got mild LE on my left arm (surgery side) after chemo. It has gotten better in the last year I don't need to wear a sleeve and glove daily. I still get flare-ups when I over use my arm (cleaning, cooking, etc.) and subsides after compression. I am planning to get reconstruction soon, maybe the first part of next year. Since LE is a result of lymph node surgery, iIs there any possibility that my LE will get worse after reconstruction surgery?

Dx 3/23/2017, DCIS/IDC, Left, 4cm, Grade 1, 1/21 nodes, ER+/PR+, HER2- Surgery 5/17/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement Surgery 5/19/2017 Lymph node removal: Underarm/Axillary Chemotherapy 7/20/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Nov 5, 2019 09:41PM MinusTwo wrote:

I've asked my PS about tweaking the reconstruction implants I has installed in 2011 - but specifically asked if there was any chance that my LE could get worse. He said he would give no guarantees. I understand LE can flare at any time - even 25 years down the road from the prick of a rose thorn.

Check out this site created with input from a number of BCO members. Maybe there will be something useful for you.

https://stepup-speakout.org/



2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014

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