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Topic: Survey Study of LE and quality of life--easy to do

Forum: Lymphedema —

Talk with other about how to lower your risk of lymphedema and how to manage it if you've been diagnosed.

Posted on: Nov 7, 2019 07:35AM

kira wrote:

It's a somewhat lengthy survey, but I thought it was excellent--explored breast swelling. It showed up in my email and I did it in about 10-15 minutes and thought it could be really helpful. I'll put the link on the bottom. Brigham and Womens has a PROVE center to look at how patients experience treatment and afterward.

Here's the information about the study:

Purpose of this Study: The BREAST-Q is a questionnaire used around the world in patient care and research. The BREAST-Q measures quality of life and breast satisfaction. In this study, researchers are testing 5 new scales relevant to all breast cancer patients and 7 new scales for women who develop arm lymphedema. These new scales will make it possible for researchers and health care providers to better understand the impact of breast cancer and lymphedema on quality of life.

The research team began recruitment for this study in July 2018 and is expanding the study to include all women with any stage of breast cancer, with or without breast reconstruction.

Andrea Pusic, MD
Brigham and Women's Hospital
Harvard Medical School
Boston, MA

Anne Klassen, DPhil
McMaster University
Hamilton, ON

Knowledge is the antidote to fear, Ralph Waldo Emerson Dx 5/10/2008, IDC, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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