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Topic: Mystery sores on LE arm?

Forum: Lymphedema —

Talk with other about how to lower your risk of lymphedema and how to manage it if you've been diagnosed.

Posted on: Nov 30, 2019 10:59AM

Whatjusthappened wrote:

Hi all, I'm wondering if anyone has had a similar experience to mine. I have mild LE from lymph node removal/radiation and some pain and fibrosis in the muscles of my shoulder. I also have cording that popped up a few months ago.

I went through physical therapy to learn drainage, improve range of motion, and break up the cords but I'm out of PT and the cords are coming back. I can feel them all the way down to my wrist. I have areas of my arm that are "thickened" for a lack of a better term, and very painful. I don't wear my sleeve because the pressure on these areas hurts too much from it.

Now I've developed itching and weeping sores in the crease of my elbow, like an excema or something (this is new to me). Is this related to the LE or cording? Anyone else experience this?

BRCA2 positive; multifocal LCIS/ILC found after sugery Dx 2/2019, LCIS/ILC, Right, 4cm, Stage IB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy Aromasin (exemestane) Surgery Prophylactic ovary removal Surgery Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery Mastectomy: Right; Prophylactic mastectomy: Left Radiation Therapy External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Nov 30, 2019 01:35PM flashlight wrote:

If you are draining clear fluid it is probably from the Lymphedema. If the site is red, hot, and growing it might be cellulitis. In any event you should go to the doctor and have it checked out. If you have small red dots it is probably from scratching. You need to be concerned about infection.

Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Dx DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast Surgery Lumpectomy: Left
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Nov 30, 2019 02:56PM Spookiesmom wrote:

Get to a walk in clinic or ER ASAP. Have that looked at. If it is cellulitis you want to start antibiotics NOW, or you could end up in hospital on IV antibiotics. It’s not something to ignore.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
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Nov 30, 2019 03:30PM Cowgirl13 wrote:

Ditto, ditto what Spookiesmom said. In case you need a little push, It's not worth a week in the hospital hooked up to IV antibiotics.

Be the kind of woman that when your feet hit the floor each morning the Devil says: 'Oh crap! She's up! Dx 5/28/2009, IDC, Left, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/17/2009 Chemotherapy 8/3/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/21/2009 Hormonal Therapy 2/23/2010 Arimidex (anastrozole)
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Nov 30, 2019 06:51PM Whatjusthappened wrote:

Thanks all, I'll have a doctor look at it. I didn't know that cellulitis made sores. I thought cellulitis was caused from a sore.

BRCA2 positive; multifocal LCIS/ILC found after sugery Dx 2/2019, LCIS/ILC, Right, 4cm, Stage IB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy Aromasin (exemestane) Surgery Prophylactic ovary removal Surgery Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery Mastectomy: Right; Prophylactic mastectomy: Left Radiation Therapy External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Nov 30, 2019 07:00PM Spookiesmom wrote:

It usually is, and it doesn’t have to be a big one. Just a tiny scratch or cut somewhere can do it. Or on your arm, as I found out 3 weeks ago. A chair jumped out and got me on my LEG. Bled like crazy. But didn’t notice the cellulitis till 2 days later on my ARM. Then I got sick. Was really lucky I wasn’t put in hospital.

Please go ASAP.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
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Nov 30, 2019 10:04PM MinusTwo wrote:

But don't wait for a doc appointment. This is holiday weekend. Like Spookie says, get to an urgent care clinic or an ER. Tell them you have LE and are concerned about cellulitis. Good luck.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 30, 2019 11:13PM Cowgirl13 wrote:

Definitely go to the ER.

Be the kind of woman that when your feet hit the floor each morning the Devil says: 'Oh crap! She's up! Dx 5/28/2009, IDC, Left, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/17/2009 Chemotherapy 8/3/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/21/2009 Hormonal Therapy 2/23/2010 Arimidex (anastrozole)
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Nov 30, 2019 11:40PM Whatjusthappened wrote:

I sent a couple pictures to my doctor and he said it looks like it could possibly be cellulitis. He gave me some instructions for tonight and told me to call him tomorrow. Thanks ladies, I didn't realize the urgency.

BRCA2 positive; multifocal LCIS/ILC found after sugery Dx 2/2019, LCIS/ILC, Right, 4cm, Stage IB, Grade 2, 1/3 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy Aromasin (exemestane) Surgery Prophylactic ovary removal Surgery Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery Mastectomy: Right; Prophylactic mastectomy: Left Radiation Therapy External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)

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