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Topic: SHingles

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Dec 7, 2019 06:40AM

KBeee wrote:

Anyone experience shingles on their "bad" arm? I've had lymphedema flare up periodically since 2015, but it's been pretty much kept at bay for about a year. Now I am dealing with shingles all over my right "bad" arm. I now have spots on the uppermost parts of my arm, and one on my upper chest area where the outer pole of my "breast" is. Any words of wisdom? The PA I saw of course was not knowledgeable in how the lack of lymph nodes would affect it (nor did I expect that to be her area of expertise), but put me on antiviral. I am very alert for cellulitis. and look at it very often for ominous signs. I have messaged MO and PCP for advice. MO just said to keep an eye on it and call Monday if it worsens. PCP has not gotten back to me yet. If anyone has dealt with this, I'll take any and all advice.

Thanks.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/25/2013 Mastectomy: Left, Right Chemotherapy 9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/22/2014 Reconstruction (left); Reconstruction (right) Surgery 1/28/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Surgery 2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Chemotherapy 3/30/2015 AC + T (Taxol) Radiation Therapy 8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Dec 7, 2019 09:24AM MinusTwo wrote:

Oh No KBee - sorry I don't have any advice but I will keep you in my thoughts. Please do let us know how you're doing.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Dec 7, 2019 10:35AM Beaverntx wrote:

KBee, I had shingles on my trunk a few years before BC. For me, the anti viral was critical in controlling the rash, never developed full blown blisters. Did have pain with residual nerve pain for several months after the rash healed. However, I did not receive the antiviral as soon as I might have so my results could have been different. Sending hopes and hugs for quick healing for you, shingles is a miserable illness!

Diagnosed at age 77-- Oncotype 17, dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 21, 2020 02:12PM - edited Jan 21, 2020 02:13PM by 7of9

Hi KBee...how are you/ manage shingles? I've been dealing with what appears to be lymphedema for almost a year but afraid something is lurking. It comes and goes mostly just upper arm, nothing hand or wrist. I go in February for ck up and possible 7th Zometa. I haven't pushed for Ultrasound for year and a half, had clear CAT a year after recurrence. Thinking its time to be as sure as I can. Hope you are well and often think of your support and encouragement. Was just talking to a friend at Christmas about my dealings and you came up and some other strong voices incl Lottanodes and my counselor. My friends daughter is battling stage 4 neuroblastoma. :( On a happier note my job is well, 10 yr old has straight As and we were in Florida last week. :)

If you're going through hell, keep on going. You might get out before the devil even knows you're there. Dx 1/18/2012, IDC, Left, 2cm, Stage IIB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/31/2012 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 10/31/2012 Reconstruction (left); Reconstruction (right) Dx 12/23/2015, IDC, Left, 2cm, Grade 2, 10/14 nodes, ER+/PR+, HER2- Surgery 1/18/2016 Lymph node removal: Left, Underarm/Axillary Surgery 1/18/2016 Prophylactic ovary removal Radiation Therapy 2/10/2016 Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy 3/31/2016 Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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Jan 21, 2020 02:46PM Emelle wrote:

Sorry to hear you have developed shingles. Ouch, they are painful! I developed them in March 2019, not on my ‘bad’ arm but across, mainly my back, ‘good’ arm and chest. For people who have previously had chicken pox, shingles often appearswhen your immunity is low. If you can stomach them, I found foods scientifically proven to boost immunity such as cooked mushrooms and nutritional yeast helped me. Perhaps you can add these to shorten your recovery time. Good luck

Dx 7/16/2014, IDC, Right, 5cm, Stage IIIB, Grade 3, 1/10 nodes, ER-/PR-, HER2+ Surgery 7/24/2014 Lumpectomy: Right; Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Silicone implant Chemotherapy 8/27/2014 CEF
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Jan 22, 2020 12:31AM KBeee wrote:

7of9, definitely push for that ultrasound to get things figured out. Hoping it shows all to be clear. I get lymphedema from time to time too, but mine is always in my hand and lower arm. I am glad you're doing well and that your 10 year old is doing well. I'll be praying for your friend's daughter. How awful!!! My daughter's friend is dealing with stage 3 rhabdomyosarcoma, and I would go through this stuff a thousand times before having to deal with watching my child endure it. Such a cruel disease.

Thanks for the tips Emelle. They are finally healed. I was supposed to have a physical with my PCP this week and was going to ask her about my immunity, but they had to reschedule the appointment to next month because she'll be out of the office. I have taken epicor, which is a nutritional yeast. Time to reorder it though!!!


Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/25/2013 Mastectomy: Left, Right Chemotherapy 9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/22/2014 Reconstruction (left); Reconstruction (right) Surgery 1/28/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Surgery 2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Chemotherapy 3/30/2015 AC + T (Taxol) Radiation Therapy 8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)

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