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Topic: Help with Cording

Forum: Lymphedema — Risks, tips for prevention, and info about products that can address the symptoms of lymphedema.

Posted on: Jul 18, 2020 12:18AM

Emily12 wrote:

Hello,

I am hoping for some advice on how to treat cording on the breast. I had developed cording that runs from my SLN biopsy scar towards my armpit and recently from the scar below and sideways across the breast to the nipple.
I have been stretching and massaging the cords in the armpit and I don’t have much pain and issues with flexibility.

The cords that run across the breast are different story. I can’t massage them much as I have expanders and any pressure just pushesdown on the expander so no resistance. These cords are painful and when I stretch my arm my breast skin actually hurts.

Any advice how to deal with the breast cords?

Thank you

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Jul 18, 2020 09:36AM MinusTwo wrote:

Emily: How far out are you from surgery? You need to see a certified, trained Lymphadema physical therapist. They will know what to do to correctly resolve the issue. They will also train you how to correctly massage to prevent progression of LE. Take a look at this site below for more details.

https://www.stepup-speakout.org/


2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jul 18, 2020 01:52PM cyathea wrote:

Emily12, I agree with MinusTwo, go to an LE trained PT. Mine has done wonderful things to significantly reduce the discomfort from the cording I have in my arms from my BMX. You might think that massage is just a “feel good” technique, but it is not. There is scientific research to back up why the massage helps cording issues. My PT told me that research done on mice has shown that massage has a statistically significant effect on scar tissue versus not doing the massage. (They can’t do the research on humans because it requires a cellular analysis after the treatment.)

I hope you can get some help and feel better soon

Dx 6/17/2019, DCIS/ILC, Right, 5cm, Stage IV, metastasized to bone, Grade 2, ER+/PR-, HER2+ (FISH) Targeted Therapy 8/1/2019 Perjeta (pertuzumab) Chemotherapy 8/1/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 10/8/2019 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 10/10/2019 Herceptin (trastuzumab) Surgery 3/17/2020 Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy 4/15/2020 Other Radiation Therapy 6/1/2020 3DCRT: Breast, Lymph nodes, Bone Hormonal Therapy 8/20/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab)
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Jul 18, 2020 08:36PM Emily12 wrote:

MinusTwo,


I am 5 weeks out of surgery. My cording appeared 2-3 weeks post surgery. I am seeing a physical therapist and she had done massages and showed me how to do them but it looks like my cording keeps getting worse. I do not have LE for now. But the cords especially on the breast are inco

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Jul 19, 2020 05:54PM Rah2464 wrote:

Emily I will echo what the previous posters said. Get with a certified lymphedema therapist to work those cords. I have battled cording issues for about two years and finally have gotten them resolved. The massage therapy can be painful at times though especially on your chest area. At least mine was but it took that amount of pressure and work to loosen the cords.

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/26/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/26/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 20, 2020 11:23AM BlueGirlRedState wrote:

Maybe stupid question. But is cording the same/similar to scarring? Cancer was on left, but I opted for bi-lateral. Scar more pronounced on right side. IT seems like the oncologist and surgeon felt that massage etc would not help with scarring. I do see a lymphatic therapist, she concentrates on that, should I ask her to work on the scar as well?

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Jul 20, 2020 02:45PM MinusTwo wrote:

No - and most docs have very little knowledge about LE. Usually 15-30 minutes in 7-10 years of school. From NIH - here's a basic definition:

Lymphatic cording or axillary web syndrome (AWS) refers to a ropelike structure that develops mainly under the axilla but can extend to involve the medial aspect of the ipsilateral arm down to the antecubital fossa. It usually appears after axillary dissection and can develop after a patient's last surgical follow-up.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jul 20, 2020 09:30PM - edited Jul 20, 2020 09:30PM by Emily12

I saw my LE PT today and she confirmed that I am not imagining the cord across my breast as my BS suggested. . Granted having the cord run from below the armpit across the breast towards the nipple was something my PT said she has not seen in her 20 years of experience. Nevertheless it is frustrating when the doctors won't believe I had it. I just needed to vent. I am scheduled for PT every week now. Thank you for the support. This forum is amazing.

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Jul 21, 2020 02:12PM MinusTwo wrote:

Emily - sorry you do have cording. But great that it is now properly diagnosed and you can get treatment.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jul 22, 2020 03:23AM Rah2464 wrote:

Emily I had the same weird cording across my new foods and attached to one of my nipples. I still have one remaining that goes down my cancer side arm all the way into the palm of my hand. They can attach anywhere, even circle around to your back. Apparently it tends to be more pronounced if you are thin, which I am. So glad you found a good PT and are working on it. I hope they break loose quickly for you! Don't be surprised if after a few therapy sessions that you get random cord releases when you least expect it. I had one release at the breakfast table one morning. Hubs even "heard" it because it made a muted popping sound when it detached. So bizarre.

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/26/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/26/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 22, 2020 09:30PM Emily12 wrote:

Rah2464,

that is so interesting. I was told that the release can happen when I don’t expect it and it may sound like a popping sound. So far nothing has been released. I am happy to hear that I am not the only one that has a cord across the foob. My PT said in her 20 years of practice I am the only patient she has seen with a cord running across the foob. I was thinking “ gee I am not trying to be overachiever here “. She did confirmed that thin patients get more often cording, so I guess we have to be thankful for that too. I am hoping the cording resolves sooner rather than later. Good luck to you too.

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Jul 28, 2020 11:00AM Zillsnot4me wrote:

I have a cording question too.


BMX and rads 2013. Lymphadema mild in summer months. Worse on xeloda. Have garments, pump, confident with massage. Liver rads 12/2020. Cording in armpit. Fluid gets stuck. I have a waterbed in the back and painful ribs. Saw CLPT. Showed how to tape and given exercises.

Midmorning it reared it’s ugly head. It’s so painful. I can’t get any relief. Plus extra stress with possible Covid exposure and back to school. I have found another CLPT. While I’m all for education and not driving an hour and juggling child care, I just want somebody else to drive the bus. I want Them to massage it and break it up.

In the mean time does anything stop the pain? Bath? Tylenol? Biofreeze? Heat? I just need to limp along until I can safely see someone.

Thanks

7/22/2020 A/A combo, 11 cm liver spots! piqray, zometa, faslodex 6/11/2020 rads to liver 12/2020 3 cm liver 10/2019, Liver spots 1/ 2016, Xgeva 9/2015, Bones 4/2015, Lungs 4/2013 Dx 4/2013, 4cm, mets, ER+/PR+, HER2- Surgery 4/28/2013 Lymph node removal: Right; Mastectomy: Right; Prophylactic mastectomy: Left Chemotherapy 5/22/2013 AC Hormonal Therapy 10/2/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 11/5/2013 Breast, Lymph nodes Surgery 9/25/2015 Prophylactic ovary removal Hormonal Therapy 1/6/2016 Femara (letrozole) Targeted Therapy 1/7/2016 Ibrance (palbociclib) Hormonal Therapy 2/3/2016 Arimidex (anastrozole) Hormonal Therapy 4/23/2017 Faslodex (fulvestrant) Chemotherapy 11/15/2017 Xeloda (capecitabine) Dx 10/2019, metastasized to liver, ER+/PR+, HER2- Radiation Therapy Liver
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Jul 28, 2020 11:30AM BlueGirlRedState wrote:

ZillsNot4Me - I've been told to stay away from hot baths/hotsprings , so I'm thinking you should not use heat. I use a pump and wear compression sleeve/glove. I was doing self-massage, but got lazy after getting the pump. I need to get back to self-massage, I think it helps. I wish I had an answer for what you are experiencing. Even when my arm was badly swollen, I did not experience pain. Some people have posted about finding relief (from pain/discomfort/sleep) with CBD/CBD-THC. I tried both for sleep issues/anxiety, but it did not help.

Some people have posted about success with surgery for lymphedema. It is a new technique, and results seem mixed. I've been trying to find out if nutrition plays a role - are there things I should avoid or include? I think my LE is trying to get rid of me. She is always telling me how well I am managing it, and pushed appointments from 2x/month to 1x/2-3 months. I've been unable to self-measure, and find perception unreliable. Sometimes the affected arm looks smaller than the other (right after pumping), and other times it looks like a balloon, but it always feels the same.

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Jul 28, 2020 01:39PM - edited Jul 28, 2020 02:25PM by moth

my cording didn't appear until I finished rads, about 10 mos post surgery.

Mine was from axilla to wrist, no breast involvement. I was resigned to doing self massage and having the RMT work on it but one day, I was standing near the dining table and leaned on it in a weird way to look at dd's laptop screen. I had rotated my arm outwards and rested the palm of my hand on top of the table, fingers under the table. The cord snapped when I leaned forward.

It wasn't painful, just very weird feeling. It was a bit bruised feeling for a few days after and I just gently massaged the arm.

I wouldn't recommend snapping it on purpose as I'm not sure if that is the best way to deal with it but if presented with cording again I think I would gently stretch in that position to loosen the tissue.

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/11/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/12/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/17/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy External
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Jul 28, 2020 02:35PM Zillsnot4me wrote:

Thanks RSBG. My arm would feel full or ache. This rib thing is new. I have a lot of scar tissue. Two drains removed in that location. Had to go to chest wall to get clear margins so concave. I think rads have increased scar tissue or decreased the elasticity. Sometimes it stings, sometimes it hurts.

I have a swell spot that just came in. Was told I could wear it under a Walmart shaper. The one I had no longer fits thanks to piqray. Lost 10 lbs. can’t get out to get a smaller one or a true compression tank because of possible exposure to Covid. Pumping doesn’t seem to make much difference. I agree heat and salt make it worse.

7/22/2020 A/A combo, 11 cm liver spots! piqray, zometa, faslodex 6/11/2020 rads to liver 12/2020 3 cm liver 10/2019, Liver spots 1/ 2016, Xgeva 9/2015, Bones 4/2015, Lungs 4/2013 Dx 4/2013, 4cm, mets, ER+/PR+, HER2- Surgery 4/28/2013 Lymph node removal: Right; Mastectomy: Right; Prophylactic mastectomy: Left Chemotherapy 5/22/2013 AC Hormonal Therapy 10/2/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 11/5/2013 Breast, Lymph nodes Surgery 9/25/2015 Prophylactic ovary removal Hormonal Therapy 1/6/2016 Femara (letrozole) Targeted Therapy 1/7/2016 Ibrance (palbociclib) Hormonal Therapy 2/3/2016 Arimidex (anastrozole) Hormonal Therapy 4/23/2017 Faslodex (fulvestrant) Chemotherapy 11/15/2017 Xeloda (capecitabine) Dx 10/2019, metastasized to liver, ER+/PR+, HER2- Radiation Therapy Liver
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Jul 29, 2020 09:34AM BlueGirlRedState wrote:

ZillsNot4Me - check out posts on Comfrey. I do not have link on which forum. But people report success with that as well to help alleviate discomforts etc.

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Jul 30, 2020 03:33AM Rah2464 wrote:

Zills I agree with you that someone else doing the lymphatic massage is more effective. We just cannot manipulate the tissues as well, no matter how much we try. I know I feel on cloud 9 after seeing my massage therapist. Although that expense is getting too high now so I am going to have to manage differently, maybe see her less. I am truly sorry you are having this issue and I do not understand why most insurance will not cover ongoing supportive massage therapy because I feel it is key to preventing the condition from worsening.

As far as garments, can you order something online at all to try instead of going out in person?

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/26/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/26/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 30, 2020 10:02AM BlueGirlRedState wrote:

Does any one use or have thoughts on unlicensed LE massage therapist. I did see one, and she seemed knowledgeable, and the massage felt good, she spent 30-1 hr on massage. BUT when I got a referal to a medically trained licesensed LE, she recognized immediately that something was very wrong since it was contralateral. She referred me back to the oncologist. Unfortunately it was a new cancer in the R-Axilla. The licensed LE also was able to get oncologist to Rx compression sleeve/glove and later a pump. But she spends very little time on massage. Just measuring, maybe 5-10 minutes massassge, 5 minutes pump. I also think she is trying to get rid of because she thinks I am doing a good job of managing it. Instead of seeing her 2/month, I know see her 1/2-3 months. I have a problem with perception. Sometimes to me it looks like swelling has gone down, when it has not, other times up, when it has not. I have tried to self measure, but am unable with a regular tape, and need to find a "smart' tape.

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Jul 30, 2020 01:44PM MinusTwo wrote:

Lots of people are comfortable just getting a massage. I even found the name of one who supposedly understands breast cancer patients and maybe has some medical training. That would be just to pamper myself if my shoulders get tight, or my back gets kinked.

I would not use someone who is not trained or certified for lymphadema to address my LE. In fact, I probably would tell a "regular" massage therapist not to touch me there.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jul 31, 2020 03:03AM Rah2464 wrote:

I would not use an untrained LE therapist personally. I would be concerned they could exacerbate the issue accidentally. I will go to a regular massage occasionally well I used to pre-covid, but I have them leave my affected area (left arm) alone.

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/26/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/26/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 15, 2020 03:44PM LivinLife wrote:

I wasn't quite sure where to post this....??? I developed cording after surgery. I am in physical therapy (non-lymphedema) - they will not work on the cording other than giving me exercises at home due to my healing issues. I've had a bad tennis elbow since June so that is what they're focusing on. The exercises helped a lot with cording - I nearly have my range of motion back. I will likely seek out the one lymphedema center out after more healing time. I've since realized the P.T. was correct in her concern (don't ask.... : ( )

My real question is whether or not one can develop cording vertical along the sternum. I have what feels like a cord there - been there for a bit now and it is uncomfortable. I don't always notice it. My other cords went from my upper chest area into both armpits and down my upper arms to my elbows. I can't see those anymore though know there is still some residual in my armpit area.....

Dx 7/2020, DCIS, Left, 1cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 8/31/2020 Mastectomy: Left; Prophylactic mastectomy: Right
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Nov 16, 2020 01:53AM Rah2464 wrote:

LivinLife those cords can develop all over the place. A knowledgeable trained lymphedema therapist can work stubborn cords loose for you although word of warning it can be a bit painful. I hope you will pursue that therapy sooner rather than later to give you some relief.

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/26/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/26/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 16, 2020 04:33AM LivinLife wrote:

Thanks for responding Rah! I truly appreciate that!! I really do believe that is a cord - and it's below my sternum more in my diaphragm area. I will have to wait some tho to contact the local lymphedema agency- doing just a little myofascial release (me) to the side of that area resulted in some bleeding - not bruising - not a lot a ... it will reabsorb in a few days or so - at least it did around weeks 4-6. I'm truly not healed enough yet which is a wake-up call to me... I am going to have to wait until my tissue heals a bit more or damage will occur. I'm hoping just another month or two. My BS is on medical leave until the end of the year and her office is 4 hours away. I did not do well with her P.A. and I don't think they could do anything about this anyways other than to tell me to leave it alone. I am a very slow healer due to other medical issues....

Dx 7/2020, DCIS, Left, 1cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 8/31/2020 Mastectomy: Left; Prophylactic mastectomy: Right
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Nov 16, 2020 10:52AM MinusTwo wrote:

Livin - I agree with Rah. A trained LE therapist need to be involved now. Early measurements and plans are critical. A trained LEPT will NOT do anything that will effect your healing process - in fact may help. You will be trained to do self-massage - which is just the whisper of a touch. Below is a link with lots of helpful advice and a way to find someone in your area. As we've said before, most docs don't know much about LE

https://www.stepup-speakout.org/

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 16, 2020 11:36AM LivinLife wrote:

Thanks MinusTwo and again Rah! I did check out that website before and did not see any place in this area listed? There is a place in town though that lists certified lymphedema therapists. I've known someone else who went there before too for lymphedema for a different reason/medical issue. I will call today and check that out... Thanks!

Dx 7/2020, DCIS, Left, 1cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 8/31/2020 Mastectomy: Left; Prophylactic mastectomy: Right
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Nov 16, 2020 11:43AM moth wrote:

small thing to keep in mind that under your sternum is your liver. Any pain in that area should be examined by a GP or an MO who will do a liver palpation exam and possibly send you for bloodwork just to make sure your pain is not referring from the liver.

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/11/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/12/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/17/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy External
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Nov 16, 2020 12:06PM LivinLife wrote:

Yikes! Thanks moth... I actually feel what seems like a cord on the surface (above where my diaphragm would be) which seems to be the cause of the discomfort. I can only feel it for a short distance. I will call the P.A. at my PCP's office. My PCP is new to me (only seen him twice) and he seemed fairly uncomfortable when I saw him a month or so after surgery - he didn't ask to look at anything or examine me when I expressed concern about my shoulder issues which I now know was from cording issues. The P.A. is a female ....

Also for Rah and MinusTwo - Wow! Just called the once local lymphedema place - closed down... not sure when that happened. Another place about 1/2 hour from here is no longer in business either. The only other two places I found on the stepup website were 1 1/2 and 1 3/4 hours away. I called the one in Camp Hill near Harrisburg - its an actual lymphatic massage center - sounds like a sole owner - left a message for her so hopefully hear back. There were a couple others listed though those were at inpatient rehab centers. Meanwhile I'll call my PCP's office to schedule with the P.A. I also see my OBGYN in less than 3 weeks....

Thanks to all three of you! I'll keep you posted...

Dx 7/2020, DCIS, Left, 1cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 8/31/2020 Mastectomy: Left; Prophylactic mastectomy: Right
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Nov 17, 2020 02:53AM Rah2464 wrote:

LivinLife sorry you are having to go so far to access care. I wish I could box up my therapist and send her to you she is wonderful. Good luck with everything!

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/26/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/26/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 17, 2020 04:31AM LivinLife wrote:

Thanks Rah! The lymphedema therapist from Harrisburg called back-she was soooo nice and helpful. She had me try another place here in town I thought was inpatient rehab only. They have one o/p lymphedema therapist though they are closing end of December. That local lymphedema therapist called me back too - again she was sooooo nice. She agreed to see me while they are open. I meet with one of my PCP's P.A.'s this afternoon about the things I wrote yesterday. I will ask for a referral. The therapist in the Harrisburg area does not accept insurance either though is open to seeing me if I want or need that in the future. I don't think the local therapist will do any private work once the business closes.

I will check back in once I get more info.....

Dx 7/2020, DCIS, Left, 1cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 8/31/2020 Mastectomy: Left; Prophylactic mastectomy: Right
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Nov 17, 2020 03:57PM LivinLife wrote:

I met with my PCP's P.A. this afternoon. She believes the lumps and bumps on the side a node was removed are scar tissue types of things which I expected though there is always some question, huh? She was not concerned about what I thought might be a small seroma - it has sort of come and gone since a month or so after surgery, esp. after any real physical activity - always in the same spot. I don't think she could even see it to be honest - she didn't really say - so I won't worry about it. I see my OBGYN for my regular annual in about two weeks too so that just feels reassuring....

The P.A. was able to feel the cord(s) - I think I found a subtle second one - in my diaphragm area. She had no problem writing and faxing an order to the one lymphedema therapist in this area. The places closes at the end of December so I'll be calling mid afternoon tomorrow if I don't hear from them before then.

Thanks to each of you Rah, MinusTwo and moth!

Dx 7/2020, DCIS, Left, 1cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 8/31/2020 Mastectomy: Left; Prophylactic mastectomy: Right

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